ILC post-lumpectomy protocols? (e.g. genomic testing) Comments?

ktmv
ktmv Member Posts: 2
edited July 2018 in ILC (Invasive Lobular Carcinoma)

Recent ILC, Grade 2 @ age 70 -->> 20 years after a DCIS (excision + radiation + Tamoxifen)

Oncologist classifies this ILC as "recurrent" BC, and did not like my resisting post-surgery chemo recommendation. Neither the surgeon nor oncology doctor mentioned the Oncotype DX test (not done), utilized to be informative & predictive of chances of a BC recurrence. They surely are aware of results of the TAILORx study published years ago, casting doubt on the necessity of chemo for large percentage of women.

With no hard evidence demanding chemotherapy, and considering bad side effects, I opted for hormone therapy only (Arimidex).

Would appreciate any comments from others in a similar situation, e.g. was genomic testing done on tissue post-surgery?


· Share on FacebookShare on Twitter

Comments

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited July 2018

    Hi there. I certainly think you should ask for an Oncotype DX test to be run; either your surgeon or the MO can order it. My ILC/IDC "mixed" tumor came in at 18 and I happily chose no chemo.

    Another factor is how strongly ER/PR positive your BC is. The higher the number the better the AI will work.

    · Share on FacebookShare on Twitter

Categories