For those of you taking Fosamax. . .

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Nancy2581
Nancy2581 Member Posts: 1,234

. . .can you tell me your experience with it? I just picked up my prescription today since I was denied Prolia injections (thanks insurance grrrr).

Thanks,

Nancy

Comments

  • chronicpain
    chronicpain Member Posts: 385
    edited July 2018

    It is generally very well-tolerated. Tens of millions have used it. I was on it weekly for several years for osteoporosis before my cancer dx, no side effects. Every possible side effect is in the insert but relevant is what is statistically more common than with placeo, like GI upset.

    1. cannot take it if you have serious esophageal problems or bad kidney disease.

    ten percent of eligible pts get stomach upset anyway and have to stop it and go to another drug,

    2. should finish any major dental work before starting it to minimize very rare complication of ONJ, osteonecrosis of the jaw.


    atypical femur fracture, AFF, is also a superrare complication after many years in most cases, Asians at increased risk

    3. avoid dental implants

    4. nuisance to take: once a week with water full cup, empty stomach, do not lie down or take anything but water for thirty minutes, no coffee, no other pills, no food

    5. some people do not absorb it so some endocrinologists check absorption markers fasting after three to four months, NTX and CTX.

    6. If not absorbed or GI upset, can change to zometa IV once a year or get prolia approves.


    want to know baseline bone density and again in 18-24 months. Do you already have osteoporosis now?

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited July 2018

    thanks for the info chronicpain. No I don't have osteoporosis, but I do have osteopenia. I'm sure that's why I got denied. I am on femara so my MO wanted me to take a bone strengthening medication. Gotta pick a day I'll remember to take it or set my phone as a reminder.

    Nancy

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited July 2018
  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited July 2018

    Hi Nancy!

    Before I was approved for Prolia, I was on Fosamax. I second this point by Chronicpain: "nuisance to take: once a week with water, full cup, empty stomach, do not lie down or take anything but water for thirty minutes, no coffee, no other pills, no food."

    It helps to pick a day when it's convenient for you to take Fosamax, which for me meant Saturday (and then Sunday after I forgot one Saturday morning). You can't be in a hurry to get your morning going because you won't be able to eat or drink coffee until after your special Fosamax half hour or so.

    I, personally, didn't really suffer any noticeable side effects from Fosamax, no GI upset or anything. Then again, I don't get side effects from much, so maybe I'm just lucky.

    My insurance company wanted me to try Fosamax first (much cheaper than Prolia) and was only willing to move on to Prolia when the Fosamax wasn't working. Good luck!

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited July 2018

    Hi there Nancy. I've been on Fosomax for two years and take it weekly. No side effects for me, tho I agree that the instructions are a pain. I have it built into my routine on Saturday morning, and sometimes I cheat first by having some coffee, waiting 30 minutes for it to clear my system, then having the water + Fosomax. But that's just me and my extreme caffeine addiction...


  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited July 2018

    Hi Elaine - thanks for the response. I haven't started it yet. Trying to pick "my day" lol. Shouldn't be too much of a problem as I have to take Synthroid first thing in the morning and wait a half hour before I eat anything. So on days I have to take Fosamax that will stink because I'll have to do it first then Synthroid and another half hour of no food. Oh well I'm used to it. Glad you haven't had any side effects from it. Yeah I was denied Prolia. Hate insurance. They said I hadn't tried any of the other bone strengthening medications. Grrrr. I'm surprised the Fosamax didn't work for you. I didn't know that was possible, but I guess like anything it can happen. Thanks for the info.

    Nncy

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited July 2018

    Ha ha ha Georgia. I get the caffeine addiction. I don't drink coffee, but do drink diet coke late afternoon. Probably much worse than coffee and I refuse to give it up. Anyway glad to hear you're doing well on Fosamax - thanks.

    Nancy

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited August 2018

    Nancy:

    I got denied Prolia as well -- though have osteoporosis in hip. So starting Fosamax this week. We tried battling with insurance but feel it may be because I'm pre-M, not post.

    It is the first thing in this BC joyride that they have denied, so I guess I can't really complain.

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited August 2018

    Thanks for the tips, too, on how to take it!

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited August 2018

    Eastcoast good luck with the Fosamax. I haven't had any issues with it - kind of a pain to take, but oh well. And yeah my insurance has paid for everything except Prolia so I'm over it lol.

    Nancy

  • hapi2bee
    hapi2bee Member Posts: 19
    edited August 2018

    Hi Nancy! I'm 73 and was on Prolia for a year. My Medicare and gap insurance paid for it 99% (very unusual). The shots were something like $1600 each, every six months. After a year of continual bone pain I refused to take another Prolia shot. I am taking Fosamax and like every one else find it a pain, but only a minor one. I put the once a week pill out Saturday night on the sink in my bathroom right next to my contacts. Sunday morning I put in my contacts and can see the pill and the 8 oz plastic glass, take the pill and get in the shower. Have had zero side effects but will never take Prolia again. I personally think my doctor was getting some sort of incentive to prescribe it because he wasn't happy when I said "enough".

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited August 2018

    Oh good to know hapi2bee. I also heard that the jaw problems, though rare, people experience with these bone strengthening medications is usually from the ones that are injected not the pills. Not sure if that's true or not as I can't remember where I read that. I'm ok with the Fosamax. Glad it's ok for you too. Thanks for your input. I think when I originally posted this I was pretty mad at my insurance company for denying me Prolia. How dare they was my thought as I pay them big bucks lol. I'm over it now.

    Nancy

  • Mominator
    Mominator Member Posts: 1,575
    edited August 2018

    Nancy, I've been on Fosamax twice now.

    First time, was just as I was finishing having and nursing my babies. I lost a lot of bone mass. I had osteopenia (just one point away from osteoporosis) before age 40, and was pre-menopausal.  I did so well on Fosamax after a few years (maybe 5?) that my bones were close to normal again and my doctor took me off Fosamax. 

    Second time, I was 56 and 2 years post oophorectomy and had lost a lot of bone mass again: spine has osteoporosis, and back has osteopenia. I've been on Fosamax for a year now.

    I take my Fosamax on Friday. I have reminders on my phone for "Fosamax Friday" that remind me Thursday night to set out my Fosamax and water; and Friday morning to take it first thing . I also have reminders for my calcium and vitamins. 

    Best wishes, Madelyn / Mominator


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