Guide me friends My lumpectomy reports
Two weeks after lumpectomy I got my pathology reports from lumpectomy
Bad news - Margins not clear
But lymph node 0/5 - all clear
Tumour Grade 1 IDC 2.7 cm with DCIS component
ER+/PR+, HER2-
Age 46 years (My first mammogram and it was caught)
The breast surgeon will do re excision .He is a nice man .No surgeon likes to do re excision He looked sad .He said if it fails then mastectomy
I asked him two questions which he was not sure .He just said I cant say anything right now
I told my husband that the BC forum I joined has super sharp women who can guide me .The surgeon gave me such blank looks that I decided not to dig furthur
My two questions
1.Will I be needing chemo ?
2 If lumpectomy fails then is there any chance to skip radiation after mastectomy .
Frankly the BS did a beautiful job. No pain lovely scar healing .It is just sad that margins are unclear . He has warned me that second re excision means smaller breast which will shrink more after radiation . But I will take a chance but if I can skip radiation after mastectomy then it will be a big consolation .
Comments
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Hi Dhanno, first you should ask for Oncotype to determine if you will benefit from chemo. Secondly, yes, you may not need radiation if you have a mastectomy, but there are many factors involved in that decision that you will have to discuss with your doctors. I am concerned that your surgeon couldn’t answer these questions. You might try to see someone else for a second opinion.
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Thanks Peregrinelady for a quick reply Yes the surgeon was very apprehensive in answering my questions .He said that most probably I will need chemo . It will take some time for me get an appointment with my oncologist .It is a public hospital in Brisbane so only after I am done with surgical part I will be assigned a oncologist Thanks again for replying
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Dhanno- I too needed a reexcission, it's pretty common. I was told that if she needed more tissue than anticipated I'd end up with a MX vs the LX. I trusted my surgeon and told her I was good with it if that's what she had to do to get it out of me. She was able to leave my breast pretty much the same, probably a larger divot, but nipple intact.
Chemo would be decided between you and your MO. A lot will depend on your Oncotype DX score - a test on a slice of tumor sent to a lab, given a score on % chances of reocurrance. You can read more on Oncotpe scores on the main site here under the TAILORx results recently published.
Radiation after LX is normal protocal. I didn't have a MX but I believe most don't need radiation due to breast tissue being removed. You could ask your MO.
You're young, and you will get through this. This is a group no one wants to belong to, but its a strong group of women on this site and all are willing to support you. Best wishes on the reexcision.
PS - I'm small breasted. The rads breast looks perkier, not actually smaller.
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Thanks Cindy for your reply. I really wanted this lumpectomy to go right so that I could move forward to next step of treatment .But again everything is delayed . But then not everything is in our hands .Thanks again for a helpful reply
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Just chiming in to say many women need a re-excision for lumpectomy—I’ve read 25-40%. I did with my first one but not my second. I told my BS to “go big” this time around. ;-)
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I had a lumpectomy and had to have a second surgery to even the margins. I freaked at first but evidently it’s very common. However. the Path report showed a micromet in my SN. My BS said it would get me chemo. Not his call and it didn’t. It’s the oncologist’s decision.
I had 33 radiation treatments following my surgery. I also had the Oncotype test. My score was 11 with an 8% chance of recurrence. That test result allowed me to dodge chemo.
I was IDC Stage 1b, Grade 1. I noticed yours is Grade 1 too which is good. No lymph node involvement - also good.
My sister had a MX and did not have chemo or radiation. She has ILC.
We know you are anxious. Perfectly understandable.
Keep the faith and keep us posted.
Diane
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Did you have an mri at any point? Personally, I’d do that first before another lumpectomy. Dirty margins can mean they just didn’t get enough tissue around a single tumor site but they can also mean another undetected area of DCIS or IDC adjacent to the one they did detect. Mammogram and u/s do not pick everything up, but mri does. Then you’d know if another lumpectomy would likely be successful or if there is more going on and go ahead to mx and you can keep it to 1 more surgery to get the cancer out. Yes for many with smaller low grade HER2- tumors without node involvement going with MXmeans no rads needed.
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No I didn’t have a MRI. I see your point but my BS never advised having one. All good so far, 7 years out next month.
Diane
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1. Will I be needing chemo ?
- What is your EP/PR/HER2/Ki67 data? You will need to discuss the further treatment plan with your medical oncologist. All words from the surgeon is just a guess based on his/her experience. MO may order Oncotype or not based on his/her evaluation on your pathaology report. With tumor size larger than 2cm, one of my friends had chemo done prior to her surgery.
2 If lumpectomy fails then is there any chance to skip radiation after mastectomy .
- Your chest area could be given only one radiation treatment in your whole life. And radiation can make chest bone frangile, higher broken risk.
- I was 47 and chose to have bilateral mastectomy with no reconstruction last July with two tumors on left side, 0.8cm and 1cm. No radiation after surgery. And no chemo with Oncotype scores 14 and 16.
- With my past year experience, almost all doctors are only carefully providing treatment options, but not actively helping on patient to make decision.
Strongly suggest to do research on this forum. There are many first hand, very very useful information from our BC sisters! I learned from them on everything and then made my own decision.
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Thank you Braver17 Was the tumour IDC or DCIS ?
Thank you edwards750 Even my BS did not order the MRI . Lula73 has pointed this right May be there is another tumour .The IDC was 2.5 cm in ultrasound and path reports shows it 2.7 cm .The BS made a 7 cm incision around the tumour and yet superior and inferior margins unclean .
Thank you Lula73 You made a valid observation . I will ask my BS for MRI .
Thank you Ingerp Your BS must be very good .5 cm means a very big margin and to get it right with good result must be a huge relief .Yes even I will tell him to go for Big one this time
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