Advocate registration open for ILC focused educational course

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  • momand2kids
    momand2kids Member Posts: 1,508
    edited July 2018

    Hi all,

    looking forward to this event-- will be there on Saturday--hopefully there will be a way for all of the BCO ILC'ers to connect....

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  • Hipline
    Hipline Member Posts: 195
    edited July 2018

    Hi,

    We will do our best to identify all the advocates on Saturday and for sure the session that starts at 3:15ish will be advocate focused and we can all meet and will have a few hours. I will be there looking for you! Thanks and Happy 4th!


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  • jackel
    jackel Member Posts: 12
    edited July 2018

    Hi Yogalady,

    Just wondering if you got my email.The person I was supposed to room with is doing chemo and has an unexpected infection. Her plans are up in the air, so if you are still interested in sharing a room on Thursday and Friday night, I would like to do that. That way your friend can still stay with you on Wednesday. Please let me know by Monday if possible.

    Best,

    Julia

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  • momand2kids
    momand2kids Member Posts: 1,508
    edited July 2018

    Are people going to the whole program on Saturday or just the part on ILC alliance in the afternoon?


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  • leighseattle
    leighseattle Member Posts: 14
    edited July 2018

    Everyone attending:

    On Friday night the conference organizers are holding a reception for all registrants at the hotel from 5:30 to 7:00pm. Look for LBCA there - we will have buttons and some sort of signage - this is a great chance to meet others. We are not organizing a dinner afterwards in addition to this receptions.

    On Saturday, there will be a meeting for LBCA advocates and allies immediately after the conference adjourns at 3:30. We hope you can stay and join us from 345 to 5 pm - we will have a meeting room in the hotel. This will be an opportunity to meet other advocates and allies and discuss moving forward to advance ILC research and refine treatments for patients.

    Thank you!

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  • Hipline
    Hipline Member Posts: 195
    edited July 2018

    Hi,

    Many people will be going to all three days, which you are welcome to and certainly all day Saturday. While it may not all be ILC focused it will be a great learning opportunity. See you there!

    Here's the current agenda:

    http://cmeregistration.hms.harvard.edu/events/breast-cancer-new-horizons-current-controversies/agenda-302235c57c554ba6894500768d09c592.aspx?RefID=cmecatalog

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  • momand2kids
    momand2kids Member Posts: 1,508
    edited July 2018

    thanks hip. I will only be there on Saturday. Just back from vacation so have to go back to work!!!! Will try to catch up with you all then


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  • momand2kids
    momand2kids Member Posts: 1,508
    edited July 2018

    I am here today. It has been a very interesting agenda related to ILC. Hope to meet some of you this afternoon!!

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  • Hipline
    Hipline Member Posts: 195
    edited July 2018

    Thank you to everyone who attended the Boston meeting. If you were there and I did not meet you please feel free to reach out and let me know how you found the meeting and information.

    p.s. We talked about a large International ILC specific Symposium in 2020 in Pittsburgh and feel confident that will happen. Stay tuned!

    Lobular Breast Cancer Alliance

    Lori

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  • MMSS
    MMSS Member Posts: 103
    edited July 2018

    Lori, do you know if they have any plans to post the ILC papers from the Boston meeting like they did the ones from the ILC meeting in Pittsburgh a couple of years ago? I would love to access to them. Thank you for any information that you might have

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  • Hipline
    Hipline Member Posts: 195
    edited July 2018

    Hi,

    Yes, thanks for asking that! We are in the process of getting approvals from the speakers to post their slides and should have approvals soon. We will then post them for all to see. I'm guessing it could take a week or two at the most. Thanks!

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