Need input PLEASE—Could not find at time of biopsy

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Jeri68
Jeri68 Member Posts: 8
edited July 2018 in Not Diagnosed But Worried

I wrote previously that I was scheduled for a biopsy. Birads-4 (c). After reading the report from ultrasound my primary care doctor was concerned enough to let me know she would call Pathology this Monday to see if anything was complete or at least let them know we are looking for these results...

I went back for the biopsy yesterday, Thursday. It was a different technician. The original technician had 30 years experience, I know that because I thanked her for taking the time to locate the suspicious lesion, she spent a lot of time. She said so much has changed with technology it's much easier to find early changes...she was able to confirm it was not a cyst.

My report had all the key words for “less favorable." The radiologist went as far as to tell me if positive it's very early stage cancer, curable and I'd most likely only need radiation.

My primary care doctor called to talk to me the night before the biopsy. My gynecologist gave me the script for my yearly mammo, primary cc'd on reports.

I went for biopsy yesterday, to my surprise a different technician, who was rude and much younger than Grace, original technician. She could not locate anything even though the report from ultrasound gave dimensions, 9:00 position etc. All of the pics of my previous ultrasound a week ago were up in the wall in the room where I was having the biopsy.

She found nothing. The radiologist came in and ran the machine around the area and said he didn't see anything either. However, last week with the guidance of the tech he was able to find it and capture it on imaging.

Can everything disappear??? Including the very dark tissue surrounding the small mass, the Radiologist said this happens—Things go away...I insisted on an MRI and I am going on Monday. The radiologist was going to make me come back for follow up 6 months later.

I would appreciate any input, if anyone had experienced this or just a suggestion or personal opinion based upon your knowledge.

The stress I went through during this entire time including a week and a half to get in for the biopsy and the 5 days I had to wait to get in after the initial call back from mammogram has caused so much anxiety and worry. I thought I was almost there yesterday, that by next week it would all be over I proceed to a breast surgeon or get a positive result. Now, I'm still upset, worried and even more confused.

Thank you for taking the time to read if you have done so.

Comments

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2018

    An MRI is a good idea. The IDC and DCIS in my right breast was not palpable, visible, visualized on mammogram, or at all easy to locate on sonogram, but it lit up the MRI like a Christmas tree.

  • Lula73
    Lula73 Member Posts: 1,824
    edited June 2018

    ditto ksusan’s response..

  • Jeri68
    Jeri68 Member Posts: 8
    edited June 2018

    Thank you so very much for replying! 🙏 I’ll follow up once I get the MRI report

  • Jeri68
    Jeri68 Member Posts: 8
    edited July 2018

    Thank you—I feel like this has been such a whirlwind. My primary care doctor was concerned with follow ultrasound report. The radiologist told me that the mass was the size of a pea and it could be early stage breast cancer, treatable with radiation and curable. Like I said, I had a different, less experienced tech the day of scheduled biopsy.

    Mammogram said architectural distortion Ultrasound measured mass taller than wide, size of a pea, irregular and Hypoechoic. Also, that it was darker than normal, whatever that means. Some of this was told to me not on report.

    I have the report from yesterday when I was supposed to have biopsy. It says they can no longer see the mass it is most likely part of the tissue. Now, Birads-0 was Birads-4 (c).

    I insisted on MRI. Radiologist report said “alternatively I can return is 6 months for follow up."

    Obviously, I am not waiting. I'm having a Billateral MRI with and without contrast on Monday.

    If they didn't tell me the mass could be early stage breast cancer... I would have still been nervous for biopsy but I have been out of my mind with stress, worry and crying.

    Ironically, I got a call from the hospital today asking if I wanted to file a complaint. I'm guessing because I was upset?

    Thank you again—I'm a newbie soanytime I get a reply I am so grateful.


  • PatsyKB
    PatsyKB Member Posts: 272
    edited June 2018

    Jeri68 - I’m wondering about the advisability of the radiologist diagnosing based upon an image. Doesn’t seem appropriate. And for a tech to be so incompetent really floored me. I’d complain about both.

    I had a similar tech issue with my follow up ultrasound this year - tech first thought I was there for mammo. Then asked me question after question, the answers to which were right there in front of her in my papers and records. Then she couldn’t figure out where to scan. It was a sh*tshow for sure. The radiologist introduced himself as specializing in bones and joints. Swell.

    You can bet that I complained (and never heard back) and that my primary care physician and I agreed that a different radiology center, specializing in breast care, was called for for my biopsy and screenings from now on. Even though it’s 2 hours away it’s worth it.

    I am glad you’re having th MRI. Twice I’ve had “something”show up in my yearly MRI which was not visible to mammo or to ultrasound and in neither case was it palpable. The first time, 2016, biopsy showed it to be nothing alarming. (I am on twice a year screenings - since about 5 years ago: MRI and 6 months later, mammogram.)

    This year, however, it was Invasive Ductal Carcinoma. Tiny but nasty, right? I’m now done with lumpectomy, rads and am on Letrazole (an aromatase inhibitor).

    Chin up. Keep us posted!
  • Jeri68
    Jeri68 Member Posts: 8
    edited July 2018

    Thank you for you’re message PatsyKB. Ironically, I received a call from the nurse at the Women’s Center where all of this occurred the next day asking if I wanted to file a Complaint. I said no, but after giving it some thought I called the Hospital. Sure enough they were expecting my call. The Center emailed Patient Services (Quality Control) an let them know I was upset.

    It was a shit show for sure! For the past almost 4 weeks I’ve been a nervous wreck. I get my MRI tomorrow. It’s my understanding the turnaround is 24 hours. My primary care doctor is going to be calling them for the results so we can proceed as necessary or take a big breath and put this behind me. I’d much rather talk with her than anyone at the Center, including the radiologist.

    I’ll check back in with an update. Thanks again for your feedback

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited July 2018

    The radiologist saw something in my most recent mammo, and also in the diagnostic mammo I had a few hours later.  The ultrasound tech, who had been there (an NCI comprehensive care hospital) for something over 10 years, slid the ultrasound thing around and around for probably more than five minutes and could not find anything.  The radiologist searched for probably about two minutes, then made some adjustment to the machine and was able to visualize the culprit, which turned out to be a perfectly normal duct.

    My point is that it can be difficult, even for veteran techs and radiologists, to find a small whatever.  This difficulty in visualization is not the same as the blip having decided to take a hike.  I believe you are absolutely  correct in insisting on the MRI, with and without contrast.  Moreover, the doc who ordered the MRI clearly agrees with you as well. 

    If there is more than one radiologist in your facility, I'd mention in your complaint that your guy failed to for a colleague to help locate the spot.

  • Jeri68
    Jeri68 Member Posts: 8
    edited July 2018

    Hi Patsy,

    I had the MRI and it came back with mild enhancement of parachmeyal tissue. Follow up in 1 year.

    Due to Birads 4 on my diagnostic mammo due to archetectural distortion...and the issues with the Center where all this started I still wanted a 2nd opinion. The 2nd opinion breast surgeon found 2 palpable lumps on exam and they felt like cysts. She confirmed that the negative MRI was great news and not to worry; however, she did want me to have a 2nd look ultrasound with the imaging facility she is affiliated with in the Hope Center.

    I went for 2nd look US. The radiologist came in with my reports, was a bit confused and arrogant, left the room and the tech proceeded with the US. I told her I don't enjoy all these tests, I’m certainly not coming due to my own fruition—She got it. I said I felt like the radiologist was bothered by me, like I'm getting too many tests and if I am, this last one was ordered by the breast surgeon. I think he was bothered most likely because they squeezed me in and he didn't look over all of my reports yet.

    Okay, US did find the two palpable cysts. Radiologist came in and confirmed they were cysts and he had a huge attitude adjustment, actually, kind and he didn’t brush off my questions .

    He said, you have had 3 modalities, 2 negative and 1 positive (Birads 4 mammo). I think he looked at my films while I was in getting US. It's his opinion that when 1 modality is positive he pursues it. I'm getting another diagnostic mammo. If the architectural distortion is still there I'm getting a stereotactic biopsy. He called my BS and talked to her PA and she called me to make sure I understood the next step.

    So, I’m back to researching. 😑 I have read that early DCIS may not show on US and MRI— my husband's cousin had DCIS, had chemo/radiation after. She told himl last night! My NEW obsession until this is truly over. Any insight?

    Thank you for allowing me to vent ladies. 🙏 I hope to close this chapter in the next few weeks. I suffer from severe anxiety and I feel it's making it more difficult than it should be.😊

    As a footnote, I lost my Aunt to cancer and she was only 39 and my grandmother at 55 (Not breast cancer). As you may know, when you see a loved one with cancer you know it happens, you live it, it makes cancer so real—like, it does happen and you see it firsthand.

    The pain of caring for them was horrible, watching a loved one suffer. Losing them to cancer changed my life. Obviously, I loved them so much. My Aunt was like a big sister (I'm only child), my grandmother was a huge part of my life from birth through early teens. Their deaths changed me forever

  • jzq15
    jzq15 Member Posts: 9
    edited July 2018

    Hi Jeri,

    Im following up to see how your MRI went? I have a well defined but slightly irregular (vertical) shaped nodule as well. Its only 5mm. I have a biospsy scheduled next week. The breast surgeon did mention to me not to be surprised if it disappears. I hope they can find it again so I can get a definitive answer but I suppose this is not uncommon especially if its a cyst. Just curious how it turned out. I hope all went well

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