Where did you receive treatment?

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Paco
Paco Member Posts: 208

Hi all,

I have noticed that many here do not identify the location where they are getting treatment, preferring to refer to it as "my Cancer Center" or a "nationally recognized cancer hospital". I don't know if anybody has any reason for keeping a lid on their care center but it might be helpful for future readers to know so they can ask about where they are planning on going. I tried to search the cancer center I go to, and I found very very few references on the page.

Hoping it's not a banned practice, but for all who might need to know this, I am going to Roswell Park Cancer Institute. Ask me anything you want about my treatment experience! Please share your own treatment centers, if you feel comfortable doing so!


Comments

  • VL22
    VL22 Member Posts: 851
    edited April 2018

    I have just finished up active treatment at Fox Chase Cancer Center in Philadelphia Pa. I would highly recommend this place to anyone.

  • AliceKo
    AliceKo Member Posts: 151
    edited April 2018

    I used Dana Farber in Boston. I recommend it highly. There is also MGH in Boston. I think these these are top two in Massachusetts.

    MGH is a little bit more forward with its care. Dana Farber and Brigham and Women's collaboration is a little bit more conservative, they want to see more evidence before they are changing their protocols. You are more likely to do something new at MGH, but their patient safety is a little lower than Dana Farber and Brighams and Women's collaboration. My treatment plans were the same at both, but surgery was a little different - different mastectomies

  • Paco
    Paco Member Posts: 208
    edited April 2018
  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited April 2018

    People are trying to limit identifying information.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited April 2018

    I suspect most people don't identify where they go simply because there are so many places. There's also a difference in what is desired - smaller and more personal approach vs larger and more cutting edge. Or what is needed.

    I'm always happy to answer any questions through PM.


  • Aries1
    Aries1 Member Posts: 3
    edited April 2018

    Pluta Cancer Center, affiliated with Strong Memorial, in Rochester, NY. I had the best team of doctors and supporting staff.



  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2018

    I stayed local and had wonderful care. Unless you have an unusual or complicated diagnosis, there is a Standard of Care that will be followed where ever you receive treatment.

  • Veeder14
    Veeder14 Member Posts: 880
    edited April 2018

    Aries1,

    Glad you have a great team of doctors. As a side note, I was born in Strong Memorial. I've never seen it though as we moved to Calif. when I was 1yr old.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited April 2018

    University of Michigan in Ann Arbor, MI - I had treatment there as did my mom and sister - all for breast cancer within 3 years. Cannot think of one bad thing to say about them! Amazing doctors, cutting edge treatments, and an incredible caring staff!

  • dtad
    dtad Member Posts: 2,323
    edited April 2018

    ruthbru...I'm glad you are happy with your care but...I do not agree that all treatment facilities are equal. I'm in the medical profession and IMO being treated at a university based teaching hospital is very important. I was stage one and my doc originally was going to do intraoperative radiation which is a one time intense radiation treatment directly to the tumor that eliminates radiation after surgery completely. Unfortunately they found more tumors when I had a pre operative MRI so I was no longer a candidate. In contrast my friend had the same diagnosis as me at the same time and was treated at a local hospital. She asked her doc about the intraoperative radiation and was told they did not offer it. Local hospitals just can't compete with a major university teaching hospital. They do not have the state of the art equipment or the best docs. That being said of course you can get good treatment with good outcomes at a local hospital. However if it was me or someone I care about I would always recommend the university hospital.

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited April 2018

    I don't believe a university based teaching hospital is absolutely necessary, either. I was treated locally and received excellent care. They had a nurse navigator, tumor board, LANA-certified physical therapist, you name it.

    I later went to an NCI-designated cancer center (University of Colorado Cancer Center) for a second opinion. The doctor I saw there confirmed every treatment I had received. However, he did tell me that he doesn't recommend an Oncotype test for any of his patients with a grade 1 tumor less than 2 cm. (I did have a larger tumor, but this was concerning to me for others considering that there are occasionally low-grade tumors with a high Oncotype score.)

  • Egads007
    Egads007 Member Posts: 1,603
    edited April 2018

    North York General Hospital Breast Clinic in Toronto.

    OBS- Dr. Brian Pinchyuk - Brilliant surgeon. Left no stone unturned.

    MO - Dr. Paula Fishman - Wonderful and caring, takes so much time with her patients, no questions unanswered.

    Sunnybrook Cancer Center

    Rads - Dr. Stanley Lee - No words to describe the level of thisdoctors care but I’ll try with - absolutely amazing!

    Gastric - Dr. Michael Bernstein - again amazing, really good lookin’ to boot!


  • dtad
    dtad Member Posts: 2,323
    edited April 2018

    SummerAngel....Getting a second opinion at a major university hospital is a great idea too!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2018

    I agree with Melissa Dallas. Many do not wish to include specifics to limit identifying information. That being said, many are wiling to name the place where they were treated. I was/am treated at Kaiser Permanente Santa Clara and think they are excellent. They place a great deal of emphasis on wellness, offer many classes and support services, including a weekly farmers market. My second opinions were at Stanford. Interns and residents from Stanford Medical school practice at Kaiser Santa Clara as well as Stanford Hospital. I am approaching my 7 year mark of living with stage IV.

  • shelabela
    shelabela Member Posts: 584
    edited April 2018

    Mayo Clinic Rochester Mn. Awesome place

  • illimae
    illimae Member Posts: 5,710
    edited April 2018

    I live in Houston, so MD Anderson was an easy choice. I’m happy with my care and feel good about all the trials and extras available to me, especially being relatively young and stage iv with brain mets.

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2019

    My surgeon retired shortly after, so there's no utility in naming him. I was happy with my chemo and current medical follow-up in Portland for chemo and an MO because I wasn't happy with my local option.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited April 2018
  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited April 2018

    Another thing, if this thread gets old and long it won't be very helpful.

    What is more useful is when someone needing treatment makes a current post asking where people in their specific geographic area are being treated, or what specific doctor are they using and liking.

    Things change, hospitals change hands. Doctors retire.
  • Bree2
    Bree2 Member Posts: 5
    edited April 2018

    I received treatment at Moffitt Cancer Center in Tampa. Great care #6 in country.

  • edwards750
    edwards750 Member Posts: 3,761
    edited April 2018

    West Cancer Center in Germantown, TN

    I don’t agree either that University teaching hospitals are the only places that offer state of the art equipment, etc. West Clinic is equipped with that equipment as well as an exemplary medical staff.

    Diane
  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited April 2018

    I think that university settings are really important for difficult to treat cases, non-responsive cancers, or access to research studies for those who need them or just wish to contribute. They're also great for second opinions - to make sure that the plan of care that's being discussed for you is the best consensus. But a local setting is often more convenient and they frequently treat their patients more as individuals.


  • msphil
    msphil Member Posts: 1,536
    edited April 2018

    I got my treatment at Graduate Hospital now Penn Medicine Tuttleman bldg in Philadelphia Pa. Ms Phil idc stage2 0/3nodes Lmast 3mo chemo before n after surgery got married yes we were planning our 2nd wedding then 7wks rads and 5yrs on Tamoxifen it is Now Praise God 24yrs this yr Survivor.

  • LisaK12
    LisaK12 Member Posts: 107
    edited April 2018

    George Washington University Hospital in Washington DC, breast surgeon Dr. Christine Teal, reconstructive surgeon Dr. Joanne Lenert. Would definitely recommend.

  • Bunsuela
    Bunsuela Member Posts: 8
    edited June 2018

    Kaiser Permanente in Orange County, CA. When it’s time for a second opinion, I’ll go to City of Hope, UCLA, or USC. I haven’t decided yet.

    It seems that Kaiser’s approach is to follow the current standard of care. And they won’t pay for genomic testing; in fact, I had to push my MO to even sign the papers so that I could have the test done at my own expense. I do apprecrate the culture of the oncology department, though. They are encouraging and supportive, and don’t treat me like I’m a lost cause.

    In any case, Kaiser has helped me to stay alive and with a good QOL for almost seven years, since my de novo Stage 4 diagnosis.

  • Icietla
    Icietla Member Posts: 1,265
    edited June 2018

    I had two (quickly arranged) breast cancer surgeries at the Community Hospital in a little country town in the Deep South. Two months after, I had my (open) TAH-BSO surgery there.

    Our special needs pet was only eight months old when I was diagnosed, and we did not want to leave him for longer than necessary. The only place to board him would be the Animal Hospital, and he really hates being at the Animal Hospital.


  • bella2013
    bella2013 Member Posts: 489
    edited June 2018

    Baptist/MD Anderson, Jacksonville, FL. Highly recommend

  • macmomma
    macmomma Member Posts: 62
    edited July 2018

    I don't agree that a university teaching hospital is necessary for BC. I trained at MD Anderson/Houston (late 80s early 90s) and always believed that if I or a loved one needed cancer treatment, that would be the place I would go. However, when my husband was diagnosed last year with multiple myeloma, it became clear that MDACC was not doing aggressive curative intervention, and we went to Mount Sinai. Then, this year, with my ILC diagnosis, I called and talked to a breast oncology surgeon at MDACC and she was very dismissive--wouldn't even discuss BMX with me because my tumor (by mammogram, mind you) was "only 5mm." She also said she would not recommend an MRI! By contrast, I'm being treated at the START Center in San Antonio, and the team is magnificent. Much better overall care than my husband got at Mount Sinai (we went there for a particular doctor who is amazing, but the place itself is terrible), and up-to-date with the literature, as well as having fully integrated services, including breast nurse navigator, breast surgeon, breast medical oncologist, plastic surgery, and genetic testing. Still haven't started treatment yet, but that's my input so far.

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