Beware: Athletes who choose reconstruction may regret it

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Comments

  • hugz4u
    hugz4u Member Posts: 2,781
    edited January 2018

    I just got to add my two cents worth here.

    In 2005...yes 2005 my PS said that I didn't have enough fat for my tram. I was kinda happy about that because I really didn't want to lose my AB muscles. He then wanted to do LAT with implants and I objected because I wanted my lats as I was a very active outdoor person. He said ok I've never done this before but I'll try a IMPLANT OVER YOUR PEC even though your chest is so very very radiated and scarred. I had the most radiation a person can get.

    We S L O W LY stretched with the TE for way over six months, maybe close to a year I can't remember. It was so gentle that the fills were not painful.

    Got my both my B size saline implants in and I have NO troubles at all. Yes my boobs aren't as pretty as they should be but I dont blame the student PS at my university hospital.(his first complete surgery)It's mostly because they had to carve so deep into my chest to get the hockey sized puck attached tumor from my chest-wall, I had no flesh to work with left. Also I had very radiated skin that was thin and tough.

    At my age I really only wanted something to fill up a bra anyway.

    So I am happy my PS tried this and that I can be very active with my upper body.

    I do watch that I don't flare up my lymphedema and I have normal strength and continue building muscle thru gradual weightlifting. I do have shoulder problems but that is from pre cancer days not from implant over pec surgery.

    I often wonder if my PS was the first one to ever try this out! He's a teacher at the university in reconstructive. Anyone got it done before 2005!

    Edited to add: kbee is right cancer can hide. Where I live there is no after bc screening procedure for me (paid by insurance or offered by my medical system )that I am aware of. That's scary but ONC comforted me a bit by saying if bc comes back it's usually in the scarline where you can feel it. I laughed to myself when ONC told me that because they were deflecting from the responsibility of finding a way to follow up back in 2005. I think MRI might be able to detect reoccurrence. Do any of you get MRI for afterscreening especially with implant over pec? Ultrasound and Mammo can't see under pec implant I understand.



  • LM070917
    LM070917 Member Posts: 323
    edited March 2017

    hugz4u that's great, esp after rads! I was just wondering how do they hold the implant in place to stop it moving around if over the muscle? I know previously they put implant under pec muscle. Also thinking about recon and this option sounds amazing!

  • Chloe3278
    Chloe3278 Member Posts: 31
    edited September 2017

    is this thread still alive lol??

    I'm a competitive powerlifter hoping to go back to competeing with implants too. This thread has been helpful yet it's scared the shit out of me!

    I have underdeveloped chest muscles, my surgeon had to use mesh to mould it. I wonder if that means I'll have the same issues as the rest of you atheletic women or I'll be at a lower risk of it

  • Gran
    Gran Member Posts: 104
    edited September 2017

    Hi Chloe3278,

    I don't know anything about the use of mesh, so I wouldn't want to hazard a guess. I think you'll have to find out when you go back to doing your competitive powerlifting. I hope it works out well for you! Let us know, okay? Take care and thanks for writing.

    Gran

  • Gran
    Gran Member Posts: 104
    edited October 2017

    This thread is still alive!

    Gran

  • gracem1
    gracem1 Member Posts: 28
    edited June 2018

    hello gran/ ladies !

    I can't seem to get a straight answer from anyone about the dynamic distortion. It's driving me crazy. I was/am a very athleticperson, massage therapist and yoga instructor. I did my first deep tissue massage two days ago (around 41/2 weeks post op) and it was awful! The amount of implant movement and pec distortion is NOT something I can get used to, like the doctor siad I would when I brought it up prior to surgery. Even cutting a loaf of bread or opening a jar or door puts me in a spin. I ask others that have had augmentation and reconstruction and they don't seem to have it or it doesn't seem to bother them! IS THIS BECAUSE I WAS ATHLETIC BEFORE ? Your post gran was pretty demoralising as I see it's many years after your surgery. I was hoping it would get better. I have posted many times about it but no one seems to answer that question or if there is anything I can do at this early stage to help. I'm still restricted in terms of excerise for another week and a half or so. I have no idea how this surgery hasn't impacted the rest of the sports and activities I love to do yet. How are you doing now gran.. did you remove them.? How is everyone else doing/coping? Has anyoneS dynamic distortion gotten better? Is anyone back to their before surgery activities without problems..? I need some hope ...so pissed at the surgeons for not being moreforthcoming With this important information. Any advice wold be greatly appreciated!! I remember reading before the surgery many people getting back to weight lifting etc so I thought I would be ok.

  • exercise_guru
    exercise_guru Member Posts: 716
    edited June 2018

    well the worst is when I am doing extra curricular activitiesin the bedroom with my husband. My flexing breast really freaks me out and makes me incredibly self conscious. I do noticed the movement ( I call it breast flex) when I am doing just about everything. I have read that women with Tight Pecs from exercise have this condition the very worst but really in my case there is only a thin layer of skin so basically my breast is my pectoral muscle. I would have to travel to try to get something on the outside of my pec but in hindsight I wish I had just waited to get reconstruction and then chosen either DIEP or over pectoral muscle implant. I do not do any chest exercises now because I am worried about the pec muscle pushing my implant under my armpit. My breasts are already quite wide apart from the exercises I do for back and abdomen.

  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited June 2018

    I only had my TE for a few months and then it was removed, but sadly my pec muscle has never been the same after being cut and having something wedged under it. For example, I still can't open jars with my dominant hand sometimes. I never liked that distortion/animation thing either. I could always feel my muscle sliding over the TE. Not painful, just weird.

    I'm a swimmer, and was pretty active generally, but I haven't gotten back to all my normal activities yet. I hope things aren't too impacted. Not having a breast at all has its own set of issues and challenges, so it's a very personal decision. I hope to do autologous reconstruction one day, but we'll see. That's just my experience.

  • Gran
    Gran Member Posts: 104
    edited June 2018

    Hello gracem1,

    I am so sorry to see another athlete in a similar situation. It makes me really sad. My female triathlete plastic surgeon said I would have no problems doing my extreme sports, so when I tried to pump up a bicycle tire with a hand pump 10 weeks after the surgery and the implants went crazy, I freaked out and texted her. She was no help (she'd already gotten paid and didn't seem to care at all!) Things got worse from there, and even wiping up the kitchen table made the implants move - to the point where I felt like I had space aliens living in my chest. I had super bad distortions (the implants would push out toward my armpits and become the shape of triangular pastries) whenever I tried to use my pecs. I consulted with another PS and he asked me to flex my pecs and he saw the distortions. He said that usually when he asks women to flex their pecs he sees no movement (both before and after surgery because most women's pecs are underdeveloped) so he said I was an outlier/didn't fit the norm. I think if I had gone to him initially, he would have seen the problem and would have advised me against implants (I didn't really want them anyway! My boyfriend did.).

    For 3.5 years I tried to get my life back to normal. I struggled to try and do a push-up when I had previously banged out sets of 40. I tried going back to the gym but the distortions were crazy, and like 'exercise_guru' said in her post above, I felt like my implants were going to pop out under my armpits because of the force my pecs put on them. My boyfriend came with me to an MD appt re: my implants and told the PS that I wasn't working out hard enough to get my strength back and that it was my fault. The doctor set him straight: a pec muscle can't be used when it is no longer attached! They just atrophy and the remaining muscle that is attached becomes stronger. My upper pec that was never cut from the sternum looks like a thick cord of muscle bilaterally, while the rest of the pec muscle doesn't respond at all. I had my implants removed after 3.5 years of struggle and depression. I feel much better without them, but I have lost the joy of working my pecs and I haven't put the effort into trying to get them back because it has simply been too devastating and depressing to go through the process. At some point I am going to have to deal with the loss on a deep emotional and spiritual level and make the choice to move on and do what I can do. I'm getting closer to that goal.

    This summer I am going to try and get back to some of the sports I love, and maybe by fall I will be able to go to the gym and try to do bench presses with dumbbells or the bar. I feel like nobody understands the grief I am feeling -- people always say that I'm lucky to be alive. I am lucky, but I am also still grieving a totally unnecessary loss of function. The thing people don't understand is that the mastectomies saved me, not the implants.

    If you want to private message me with your email address I can share some implant distortion photos with you if you think that would help. I am always here and I wish you the best.

    Gran

  • Runrcrb
    Runrcrb Member Posts: 577
    edited June 2018

    I hated my TE and knew that DIEP was the right reconstruction for me. Not fully back to normal but so much better than before. I don’t feel a squeeze when using my right arm to close the trunk. Push ups feel normal as do other upper body strength moves.

    Sorry you are going through all this

  • LisaK12
    LisaK12 Member Posts: 107
    edited June 2018

    For those experiencing this, it might be worth consulting with a PS to see if you are a candidate to have sub-pectoral implants moved to above the muscle. I have always had a very strong upper body and chose above the muscle placement because I wanted to avoid any disruption of my pectoral muscles. They used AlloDerm to hold the implants in place. I am very happy with mine and it is disheartening to know how many women are not offered this option.

  • Gran
    Gran Member Posts: 104
    edited June 2018

    Hi LisaK12,

    Thanks for your post. Back in 2010 above-the-pec implants were not an option -- I asked about it and was told that it was simply not possible because the pec muscle was needed to support the implant. I'm very glad to hear that it's an option now!

    Gran

  • macb04
    macb04 Member Posts: 1,433
    edited June 2018

    Look at my thread about Over the Pectoral Implant Reconstruction. I have a listing for a PS in Toronto doing Prepectoral Implant Reconstruction. Don't know where you are in Canada. Gracem1 will also PM this to you

    Topic: TE/Implant OVER pectoral Can exercise, comfortable &NO RIPPLES!

    Forum: Breast Reconstruction — Is it right for you? Discuss timing and various procedures and techniques.

    https://community.breastcancer.org/forum/44/topics/835911?page=53#idx_1574


    I have a long story, but basically had a TE stuffed under my poor tortured Pectoral. Hated it, just hated the animation deformity. I also really hated the loss of strength. I couldn't open a bag of chips, my strength was completely missing.

    Took out the TE, and my pectoral not "reattached", just left to heal however it could. Did Fat Grafting with some sucess, but not enough to creat a breast, so new PS for me and did Prepectoral Implant Reconstruction over my Pectoral Muscle, with Seri Silk Mesh as the ADM ( Acellular Dermal Matrix, like Alloderm)holding the implant in place . Much, much more comfortable and my strength is about 95 plus percent of what it was before. Also a much faster recovery. No Animation Deform6when I use my Pectoral Muscle. My Pec6seems to have recovered its function for the most part.

    I have a list on my Thread of over 60 PS across the US doing Prepectoral Implant Reconstruction. I really believe it is the wave of the future for implant reconstruction.

  • exercise_guru
    exercise_guru Member Posts: 716
    edited June 2018

    Yes its certainly worth looking into . Its unfortunate this option is not made more widely available. There is only one kind of reconstruction available within my state. I would need to travel and certainly it would have been a better situation for me to just wait until I had finished treatment and then traveled for reconstruction. I am not convinced I am up for it financially or emotionally now but I hope other women can have this option.

  • ReadyAbout
    ReadyAbout Member Posts: 211
    edited August 2018

    I had bmx and prepectoral reconstruction in May. Even though I had several complications (axillary cording, nerve pain, etc), I was able to resume exercising quickly. I went hiking 11 days after surgery, went to spin class 3 weeks post-bmx, and resumed lifting weights 6 weeks post. I still have TEs in and will have exchange surgery in Sept. I have been very happy with how active I’ve been able to be. When I exercise, my only discomfort is cording on the SNB side that won’t go away even with PT

  • Outfield
    Outfield Member Posts: 1,109
    edited August 2018

    ReadyAbout, you really should read Gran's whole story. She's a world class athlete, and what happened to her should have been predictable.

  • Samnjb
    Samnjb Member Posts: 26
    edited October 2018

    hi

    I am 5 days out from double mx. I have above muscle te and planning for saline implants. I am not allowed to work out yet but am so scared after reading all this. My pec muscles are very developed. I am a 38yr old who competes in CrossFit and isn’t very active. Please can someone advise me if I am headed in a good direction. My world has been turned upside down.

    GrAn I feel your pain. My strength is tied to who I am. Hugs to yo

  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited October 2018

    Samnjb, if your tissue expander is above the muscle, you shouldn't have the problems with your pec muscle that many others here have had (i.e. the animation deformity). Hugs and I wish you a speedy recovery.

  • DancingElizabeth
    DancingElizabeth Member Posts: 415
    edited October 2018

    Samnjb - I think I’ve had the same reconstruction done as you. And, I can tell you - my ROM is 100%. I workout HARD and don’t hold back. I do push-ups and all the upper body exercises and go all out. I might end up with lymphedema - but one thing I learned from having breast cancer is there are no guarantees...

    I do a lot of HIIT classes, including Turbo-Kick, “Insanity”, and Grit Plyo. And, can tell you that I am in better shape than before BC. (though I do eat a lot of junk).

    I Hope that helps!!!

  • Gran
    Gran Member Posts: 104
    edited December 2018

    Hi Samnjb,

    I just saw your post today. As others have said, you should not have the problems that I and others have had since your pecs should ot be cut for TE placement just under the skin. That technique was not available in 2010 (although I personally never wanted any form of implant given that I shoot big fish with spines that could easily puncture an implant!). I’d love to know how things are going for you. How do they support the implants? Alloderm slings or ??? Very curious about this new technique, especially as it pertains to athletes.

    Hugs,

    Gran

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