Bi-rads 4 but unsure why

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southernbelle77
southernbelle77 Member Posts: 27
edited June 2018 in Not Diagnosed But Worried

I'm 40 years old and I have had fibrocystic breast since I was at least 20 years old so every month there is some kind of lump in my breast.

In 2010 I had a round hard lump I couldn't move directly under my left nipple and had it removed. It was a b9 tumor that had a cyst growing in it. I wouldn't have had that removed under better circumstances but that's a long story. About 6 months ago I discovered a lump in my right breast in my aureola area. I wasn't concerned because I could move it & feel the edges. It appears to be growing from my nipple to below my aureola, it is hard & you can see the lump pushing out from my breast.

Around April the mammogram office started calling me trying to get me in for a annual mammogram. I finally scheduled that on May 23 just so they would stop calling. They conducted a diagnostic mammogram and ultrasound the same day because I have the lump in my breast. I was told by the us tech that it definitely wasn't a cyst and that I should have came in a lot sooner to have the lump checked out. They wanted a ultrasound guided needle biopsy and schedule it for May 29. That morning they called me to cancel the appt saying that after reviewing my mammogram and ultrasound I wouldn't be able to get the needle biopsy because the mass was too close to the surface of my skin and that I needed the lump removed and biopsied instead. They said they tried to get me in with the surgeon that day but he was booked and I had an appt instead the next day, May 30. I was irritated. & when I got home I logged into my patient portal to view the reports & was unimpressed.

I arrived at my appt with the surgeon and he was saying I needed the biopsy. He was extremely rude and wouldn't answer any of my questions during the appt. He is a general surgeon assigned on rotation with others to the Breast Health Clinic. I was trying to find out why they thought it was a bi-rad 4 and told him I could freely move it and have a very long history of lumps in my breast that are nothing to be concerned about. No answers, he would just repeat that the entire team decided I had a "highly suspicious" mass and they all "highly recommended" biopsy. and that bi-rad 4 was "very serious". HE told me the reason I couldn't get the needle biopsy was because "everyone is scared of implants". I have under the muscle saline implants & have had them since 2005. I don't want to have to go through an unnecessary surgery every time I have a lump in my breast and especially when I am getting ready to go on a two week vacation in July. He is also refusing to do any other incision other than an areola incision because of my implants and I had that incision for my 2010 biopsy and suffered nerve damage to my nipple as a result. He didn't even know that was a possible risk with that incision location. So needless to say I'm not looking forward to all of this, especially since it's probably for nothing.

Under pressure I caved and allowed them to schedule me for surgery on June 14th to remove the mass. Unfortunately, that's also my husband's birthday Yeah, this just keeps getting better. Below is what my mammogram and us report say. It looks like to me that a mammogram is still of no use to me because it didn't pick up the obvious lump and I don't see anything too concerning in the vague us report. Of note, this is all occurring at a military hospital. So... is this anything to be concerned about and considering my history what can I do in the future to prevent unnecessary surgeries? I have very little breast tissue and my implants have compacted it so any removals are going to leave some amount of disfigurement. I now have flat area on my left breast from the 2010 removal & that one was deeper in my tissue.

Compared with prior mammographic examination from 26 March 2010

Findings: Diffuse amount of bilateral essentially symmetric heterogenously dense fibroglandular tissue is present without suspicious dominant masses or suspicious cluster of microclassifications. Intact bilateral breast implants.

Sonographic and Doppler evaluation at patient designated location of palpable abnormality in the right breast along the 5:30 axis approximately 1 to 2 cm from the nipple demonstrates a 1.5 x 0.9 cm mass in the superficial soft tissues. There is apparent increased vascular flow.

Impression: Suspicious abnormality

Bi-rads 4: Suspicious abnormality. Recommend biopsy.



Comments

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited June 2018

    I'm getting the very clear impression that you don't trust this surgeon (I sure don't!) Can you get a second opinion? Even if it did turn out to be cancer, waiting 2-4-6 weeks isn't going to cause harm (most breast cancer is pretty slow-growing.) Dont allow yourself to be rushed into something.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited June 2018

    Increased vascular flow in the mass is an indicator of possible malignancy, as malignant tumors tend to develop their own blood vessels (angiogenesis). Ask the radiologist who did the ultrasound what led him/her to conclude it wasn't a cyst--e.g., wouldn't yield to pressure from the probe, spiculations, irregular border, sound waves bouncing back rather than penetrating, taller than wide, etc.

    Sounds like the surgeon wants to cut. General surgeons prefer to do what they're used to doing, especially if older. An ultrasound-guided core-needle biopsy is usually done by a breast radiologist--does that military hospital have one? Does the radiologist not have experience performing biopsies w/o involving the underlying implant? Can you go outside the military system for breast-health-specific surgeon & radiologist and be reimbursed?

    PM djmammo--he's a breast radiologist who posts to these boards for our guidance.

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    You are correct that I don't trust this surgeon. I would prefer a second opinion by an actual breast specialist, but in 2010 that took me 3 months of constant fighting to get. That time I had more reason to fight and I am unsure if I would be successful this time around. When I spoke with the nurse on my way out she said that as for surgeons there he is better than the rest. That the other surgeons would basically just slice and dice with no concern for the damage they are doing. So that also caused me concern of angering him and being stuck with someone even worse.

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    Thank you ChiSandy. I will call radiology on Monday and see if I can speak to the radiologist about it. I had wrongly assumed the surgeon would have been able to answer my questions since the team had discussed my case just hours prior to my appt with him. I am unsure of their experience and my implants were not given as a reason for me not being able to do the needle biopsy by radiology, they stated it was because my mass was too close to the skin. It was the general surgeon who stated it was because of my implants. As for going outside, that could take me months of fighting and I am unsure if I would be successful this time around.

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    So to update I just got home from surgery & it didn’t go so well. Woke up to find that 25% of the mass is still in my breast. He said that while it was moveable it was attached to the capsule that surrounds my implant & he couldn’t remove anymore because of that. He said he’s never seen anything like it. Has anyone ever had that happen before & what risk am I under if this is cancer & part of it still remains in mybreast?

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    Another update for others who may search this out. Turns out I was called in early so they would tell me the news before others. I have IDC so I will be moving over to the just diagnosed board.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited June 2018

    I'm really sorry it turned out this way. Cancer sucks, but its very treatable. Dont give up hope.

  • Sita26
    Sita26 Member Posts: 44
    edited June 2018

    aw I’m sorry! I was thinking about you

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    Thank you poodles. Today has been a very hard day. I’m kicking myself for ignoring that lump for so long but I was told if it moved & was smooth I had nothing to worry about. I now know that’s very untrue...

    I’m ER &PR+ HER2 is still pending. Grade 2 & right now I’m stage I. The tumor was 1.1 cm but they didn’t get clean margins & I’m doing a bilateral mastectomy. I’ll for sure be finding a new surgeon. Today was strike 4 for this one. No DCIS was found, it was all IDC. Do you know if the lack of clean margin should affects my stage or will it still be hanging on the nodes which will be biopsied at the mastectomy?

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    Thank you Sita.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2018

    Sorry for the lousy news, southernbelle77. Staging is based on total size of the tumor, number of affected lymph nodes, and presence of distant metastasis. When your mastectomy is done you'll get more complete staging information in your pathology report. Try not to worry too much about staging "labels" right now. The goal at this point is to find a breast surgeon you trust.

    You're in good company here--lots of smart, kind people around to help get through this rodeo.SB

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited June 2018

    They didn't get clean margins on my lumpectomy, either. They did a re-excision lumpectomy which did get clear margins. Thankfully, the size and stage remained tg he same, but my hormone receptor status changed to be a more aggressive type. Four rounds of chemo and a BMX fixed me right up. Im 3 years cancer free now.

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    Thank you Sbelizabeth.

    Poodles I should have listened to my gut & you about that surgeon. He was trying to pressure me again yesterday. Said a referral out would take weeks & weeks & a lot of paperwork. He didn’t want me to get a second opinion about anything. He became very hostile as soon as we asked for a second opinion on pathology. I’m just done with him & don’t trust him. I also have to have explants & not just any surgeon can successfully do those. I’m hoping I can have surgery set up before I leave for vacation. I head out to Fl for 2 weeks on July 14th. I wouldn’t think me taking that trip would harm anything

    I have no choice on the mastectomy for my right but with my family history & personal history I’m not leaving the left there. On my paternal side my great grandmother, grand mother & one aunt all had breast cancer & one had ovarian.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited June 2018

    I don't blame you one bit, southernbelle. I don't like him and I've never even met him. Most BC is slow growing, so taking a small vacation shouldn't affect you negatively. In fact, it is probably a good idea to do it now. Once you get the surgery ball rolling, you're going to be tied up for a while.

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    Thank you for the support Poodles it means a lot to me right now. I’m hoping I can quickly find the right surgical team & I also want all the tests, including genetics to come back before I have surgery in case anything needed to change. I’m also hoping the two weeks in FL will help reduce stress & get me in the right state of mind to come back & fight this with all I have. I also want to stop smoking & I need a month smoke free prior to surgery.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited June 2018

    Definitely stop smoking prior to surgery. Nicotine really interferes with healing. I know it isn't easy, but perhaps your doctor can order some medication to get you through it.

  • southernbelle77
    southernbelle77 Member Posts: 27
    edited June 2018

    I definitely will Poodles

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