Highly suspicious of malignancy

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  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    Thanks girls. I’m so glad to have you all through this. Scared for the chemo.

  • lisap62
    lisap62 Member Posts: 22
    edited June 2018

    tell your family when you feel ready. Take the time you need to process the information given. No one wants this shut in their bodies,but take the time to choose your treatment logically and not emotionally. Lots of sisters her to help or vent to. Be gentle with yourself. You are not alone.

  • MiCyn
    MiCyn Member Posts: 73
    edited June 2018

    Oh Nicole,

    I'm so sorry..when I read your posts waiting for pathology, then finally getting results, it just breaks my heart. Your mind will switch from waiting & wondering, to now fighting mode. That's where I'm at now. Three hours before I was to start rads, my Dr delayed it. Most likely doing chemo first. I'm scared too. I find out next Tuesday. Remember you are not alone in this journey. Hugs, Cyn

    I come here every chance I get for support, and it does help calm my fears. I'm thankful for it every day.

  • SOMANYQUESTIONS
    SOMANYQUESTIONS Member Posts: 21
    edited June 2018

    Nicole, I'm very sorry for the news. I've been checking in to see how you were doing.

    SunnyDee I am thinking of you, too.

    WayTooAnxious, thank you for the advice you shared.

    Well, I've been trying to stay calm since what seems like forever ago, but in reality was only ten days ago on June 12 that I had my call back mammo views and ultrasound findings that launched me into this process. In just a few hours today I will meet the breast surgeon for the first time to see if she agrees with the radiologist's recommendation of a stereotactic biopsy, and if she does it will likely be done on Tuesday, the 26th.

    I have kept myself very busy to distract myself, shoving as many appointments as I could into these last ten days to help clear my schedule (either for the coming treatments if needed, or a well deserved rest if things are B9). I also continued going to PT for my back and upper body strengthening, which has helped keep me calm - truly without the PT exercises to expend my energy, I would be an anxious mess and getting no sleep these last ten days. PT takes all the anxious wind right out of my sails.

    In a way, after the first couple days of panic, once I decided on which surgeon to consult, I have felt oddly calm and very detached, which makes me wonder if that is very good or very very bad.. not quite autopilot, not quite denial, more like compartmentalized with a touch of pissed off and determined. Even though my husband will be driving me today and sit by my side, the men can't understand really, not the way a woman can, especially one who is going through it or one who has survived it... I will feel like I have all of you and those who have gone ahead of us sitting beside me as well, giving me strength and courage to hear what ever the surgeon has to say. Thank you all.

  • Krysm7
    Krysm7 Member Posts: 52
    edited June 2018

    nicole...I'm so sorry to hear your dx. Finger crossed for you as you wait for final results.

    Shell...congrats on your B9 results. So happy for you.

    Somany....good luck to you!!


  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Somanyquestions - Sending prayers your way. Good luck with everything and we are always here for you.

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    Thank you. I feel like I swallowed a ballon. No tears. Yet. Working a lot and it’s hard.

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    Thanks it’s all so much. Just taking one step at a time.

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    So I’m going to have to look up sterotac biopsy now. many questions, it is the most surreal thing I’ve done so far and I’ve been through a lot. I’ve been doing the same with my schedule. It’s hard because I’m so tired but I’m doing it. Hired a housekeeper this weekend. My adult daughter and grandson live with me so that’s a help. Waiting is so agonizing. I went on a lot of walks. Now I’m working long days so I’m beat. Thinking of you. Hugs.

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Nicole - I hope you get some rest this weekend. Sending you hugs.

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    Thank you so much nonomimi! I feel less fatigued today. Since this is probably the best I will feel for a while I better toughen up. Taking the dog and grandson for a walk. Much love to all of you ladies tonight

  • InnaB2018
    InnaB2018 Member Posts: 1,276
    edited June 2018

    Hi, Nicole. Sorry to meet you here, but at least you've got us to support you in this f-Ing journey none of us volunteered for. I was diagnosed in March 26. Diagnostic mammogram was done to check on a suspicious lump in my right breast, then immediate US. Then the radiologist showed up and said that my OB ok'd a biopsy. 10 min later he called me to his office and said he is pretty sure it's cancer. I met with a breast surgeon 2 days later.

    From that point on everything went downhill. The pathologists couldn't determine the receptors. Breast surgeon insisted on a neiadjuvant chemo just in case. I went to see another breast surgeon, a wonderful lady, who said, let's cut it out first and see whether you really need chemo, but when she received the slides with the tissue, there was no cancer in them. So, they made me do another biopsy, because they couldn't do BMX without the proof of malignancy. Of course, that biopsy came back positive, and I finally had my receptors.

    Meanwhile, I got a call from the company that was supposed to do my genetic tests 3 weeks after the blood draw, and they told me they cannot proceed with the test until I had a consultation with their own doctor to determine whether it's needed. I almost flipped at that point. Did the stupid consultation and waited another 3 weeks for results. The waiting game was 6weeks long. I was on anti-anxiety meds all that time. My mornings started with me imagining my own death.

    So, I know how you feel! Once you have a plan of action, though, you'll feel better, I swear. I am now post surgery and in the middle of chemo, and I already survived a wait for MRI results (2 days), surgical pathology results (2 weeks), bone scan, that showed 'focal uptake of dubious significance in the cranium' (3 days), and CAT scan, which showed nothing, thanks G-d (3 days). I totally agree that waiting is the worst part of this nightmare.

    My advice: watch comedies and distract yourself as much as you can. Our fears are our worst enemies. And remember, we are here for you.

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    I watched 11 seasons of Grey's Anatomy in 3 months since pre-Dx and until radiation. I am not sure, but I think that is over 150 episodes. By radiation, I did not need to distract myself anymore. But until the Oncotype Dx score came back, I was in Grey's land, making myself feel better looking at giant tumor's and patients in worse conditions, albeit fiction. You will get through this...we all did. Good luck and you are in my prayers.

  • ali68
    ali68 Member Posts: 1,383
    edited June 2018

    Hi Nicole,

    Hope your feeling ok and not going mad with worry. I've been cancer free after my treatment in 2012. I had stage 3 grade 3 with many cancerous lymph nodes. Last week I went for a routine mammogram and got a letter saying I needed to do the next Stage for more tests.

  • SOMANYQUESTIONS
    SOMANYQUESTIONS Member Posts: 21
    edited June 2018

    Hi everyone,

    My appointment with the surgeon went well on Friday, and tomorrow morning (Tues) is my biopsy. I have been very calm until today, but late this evening I became nauseated over it to my surprise. Trying to sleep but I keep waking up. Feeling a little panicy tonight, now that it's real.

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    somanyquest. How did your biopsy go? Hope you are well

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    oh Inna this made my heart hurt. It is such a nightmare that no one will understand! I am so sorry you have gone through all of this I really hope that you have a good support system at home. I did not prepare financially for this I am a single woman who has her adult daughter and grandson living with her and so they depend on me paying all of the bills. I worry about a lot. I find out today if I need chemo before surgery

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    So many questions, I’m so sorry. Positive thoughts for your biopsy today. Look at the screen so you know what’s going on that’s how I knew for sure that I had cancer. I’ll be praying for you.

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    Hello Ali, congratulations on your long remission. Praying this new discovery isn’t anything. We are all here for you no matter the outcome! Positive vibes for you. Keep us updated.

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    ok I’ll need some Netflix suggestions. I watched Grey’s from the beginning. Never missed an episode.

  • bella2013
    bella2013 Member Posts: 489
    edited June 2018

    Nicole, Heartland is a great series to watch (great family movie, no violence, sex, or bad language. The writers do a great job of developing the characters. It will carry you through your treatment...Seasons 1-9 are on Netflix and Season 10 is on Amazon Prime.

    Gracie & Frankie is hilarious;

    Justified is excellent

    Longmire is excellent

    Night shift is very good (tales of the ER)

    Hart of Dixie (very light comedy, a little silly)

    I will list more as I think about them

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    Thanks Bella! I

    Will try your suggestions! I loved Heart of dixie

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    update: 6 months of chemo before surgery! So bummed. But if it’s to save my life then I’ll do it.

  • InnaB2018
    InnaB2018 Member Posts: 1,276
    edited June 2018

    Nicole, sorry to hear that, but you’ll push through. Do you know what kind of chemo regiment they are suggesting

  • SOMANYQUESTIONS
    SOMANYQUESTIONS Member Posts: 21
    edited June 2018

    thank you all.. the biopsy itself was fine and very surprisingly, nearly painless .. positioning on the table was the painful part because of my spinal problems, but the nurses were unbelievably kind and comforting. the process of how they placed my arm did re-aggravate my rotator cuff problem that i had just resolved in PT these last three months, but i can fix it again with help... i think i scared them because it was hot (i was hot, nobody else) and my pulse was so high (over 120) that i had to ask for an ice pack for my neck before they were ready for me; then because i got really quiet and was breathing through it as they did the procedure, ignoring them all..

    I saw the x-ray of the calcifications they removed on the screen... they seem to have gotten a very good sample of them... So now I wait... and try to stay sane. I've been absolutely wiped out with exhaustion since Tuesday and slept a lot... if the nurse calls with results, I'm ok. If the surgeon herself calls, I'm in trouble. this will be a very long weekend waiting, and wondering whose voice will be on the other end when the phone finally rings...

    I will try to catch up on everyone's details tomorrow, i see i missed a lot of posts the last few days... i wish it were like facebook where we could comment on each post so i dont miss anyone... for now warm hugs everyone, i can't believe we all find ourselves here... stay strong! stay strong!!

  • hoppypoprocks
    hoppypoprocks Member Posts: 17
    edited June 2018

    I’m so glad you made it through! I hope the next few days pass quickly and the nurse calls

  • SOMANYQUESTIONS
    SOMANYQUESTIONS Member Posts: 21
    edited June 2018

    Thank you hoppypoprocks! I was a bit tense today, but I'm better now. Poor hubby!

  • Misha13
    Misha13 Member Posts: 240
    edited June 2018

    Hi all. SoMany and Nicole, we three seem to be about in the same place. I had my biopsy today. US needle core biopsy, doc took 8 samples of the lump and a lymph node! Left two clips, which the doc slipped and said were for the surgeon. Then added if the biopsy is malignant...

    Nicole, you said you looked at the screen and that’s how you knew it was cancer-what specifically were you looking at? Everything I saw looked horrible and huge, so was wondering what you saw.


    This sucks but it does feel a little better to hear there are others going thru same and those who have lived to tell their tales. Thanks for listening.

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    Hello Misha, welcome to the elite club. I’m sorry you are going through this. . I asked a lot of questions as it was happening. Like what’s that black spot and then she said it was my lymph. It’s supposed be light greyish I think. We all willfight this like warriors TOGETHER! Cancer feeds off fear so let’s tell it we are going to win!

  • Nicole1966
    Nicole1966 Member Posts: 63
    edited June 2018

    giving you positive thoughts today! XXOOX

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