DCIS Neg ES/PR anyone else with this Pathology?

You might want to combine your two threads. The mods can delete one if you contact them. Traditionally you have a choice between lumpectomy and mastectomy. Outcomes are similar.

Hi. Posted a reply on my old thread but here it is on this new one...

I know there are other ER/PR negatives out there... Anyhow, it's been 2 1/1 yrs since dx and so far so good. Had lumpectomy and radiation. Sometimes it is hard to believe I had DCIS as everything has settled down for the most part. I have a small "dimple" where I had the surgery and sometimes my muscles feel a bit tight. I did have assorted weird pain and sensations for a while but not so much any more. I cleaned up my diet and lost 30 lbs but have gained about 8 lbs back...which I am trying to lose again. So far I am happy with my decisions. Time will tell....

Lolo62, I also had hormone negative DCIS. You can see by my bi-line it was also around the same size as yours. Feel free to PM me if you have any questions.

I had DCIS both hormones negative. Intermediate to high grade. Tumor size 5cm. My nipple was involved and I couldn't save it. There were other areas that lit up on the MRI that radiologists believed were DCIS or other type of breast cancer in addition to the one that was biopsied. My breasts were an A cup so any lumpectomy I had would basically be a mastectomy. That's why I chose mastectomy (and went all the way with a double mastectomy with DIEP flap reconstruction). I was too old to need my breasts (no more babies) and too young to live without them and I preferred not to have implants. Sometimes I wonder if I made the right choice as I'm still recovering from surgery 4 weeks out. I guess so. I think it was logical considering my situation. Many with DCIS can get away with lumpectomy (some even without radiation as I've read on these boards) and I guess I could have tried for lumpectomy of all of those areas but reconstruction would have been a mess. I don't know.

What does your surgeon suggest?

This is my first post on this forum - not sure if it is still active, but I also have the same pathology. I have 2 different opinions on how to treat my DX: surgeon 1 says lumpectomy and radiation, surgeon 2 found a second set of super tiny calcifications but can't biopsy them due to the location so is recommending a mastectomy (left breast only) so I am currently mulling over my options. Lots to learn. I meet with a radiation oncologist next week and hopefully can ask some additional questions. I am very appreciative of all these posts on a variety of topics.

BvH531 - I chose BMX after my DCIS and Pagets diagnosis last year. Mainly due to previously B9 biopsies I'd had, it being stage 3 and just not ever wanting to worry about future testing and every little thing worrying me. I do believe outcomes are the same with either option so go with your gut and what you feel most comfortable with! Have you had any genetic testing? Not sure if that outcome would sway your decision.