Breast Cellulitis

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Anyone else suffering from breast cellulitus post masectomy?


Exactly 3 weeks after surgery and within hours of having my drains removed I had chills and a high fever. Went to the ER where I was hospitalized for 4 nights. Diagnosed with cellulitus in both breasts! I was then put on a cadd pump/picc line for 1 month of continuous antibiotics.

After the month when all my CRP infection numbers were normal I was taken off the meds. 3 weeks later i relapsed again on one breast this time.


I can't seem to find the right combo of antibiotics to kill off this infection.. I can't get aspirated for fear of popping my expander. To this date i have had no fluid buildup thank god.


Anyone else suffer from cellulitis post masectomy? What drugs were used to cure the cellulitus?


Im desperate for help so i can move forward


Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited June 2018

    Dear nrioffe,

    Welcome to the BCO community. We are so sorry you are dealing with cellulitis but glad that you reached out to our members. While you are waiting for others to respond you might consider using the search function on the blue tool bar and typing in the word "cellulitis" it will lead you to other posts and members dealing with similar issues. Let us know what else we can do to help you to navigate your way around the boards. The MOds

  • DoubleBloom
    DoubleBloom Member Posts: 67
    edited June 2018

    Hello Nrioff,

    My TNBC was only in my left breast yet I opted for a double mx with Tissue expander placement on both sides since I had to have radiation. That was nearly 7 months ago! I am awaiting my final exchange surgery in late Aug where I would receive my implants.

    The morning of June 14 I woke up with 103° fever and a mild rash on the lower half of my right breast and upper abdominal areas on both the right and left side. The rash, which did not hurt and itched only slightly, extended toward my back. I went to the doctor the next day and was sent to the ER with cellulitis. By that point the rash had become deep red and extended all the way to my bellybutton. I stayed in the hospital for 24 hours to receive IV antibiotics including vancomycin and zosyn. I was discharged on two oral antibiotics including Bactrim and Cipro. I’ll be on both of these for two weeks.

    It’s now five days later, the fever is only low-grade and the rash is almost gone however I have an ongoing headache and bodyaches that have stolen by ability to do much more than lay in bed. I’m hoping and praying that we both recuperate soon.


  • nrioffe
    nrioffe Member Posts: 12
    edited June 2018

    Hi Double bloom! Wow 7 months after your surgery? What are drs saying is the cause this late after surgery?

    Sorry to hear what you are going through as well. It hasn't been fun.


    When you were hospitalized what was your CRP? What is it now? I was 200 when i was hospitalized(under 10 is within normal) I hope you are getting weekly bloodwork to check your crp. And hopefully you dont have fluid buildup.

    They didn't feel the need to put a pic line in you? You shouldn't have a fever that long. I hope you are seeing an infectious disease dr?

    I stayed in hospital for 4 days cuz i was back to square one. I only started feeling a little better after one week on meds. Then each week after i felt even more better.

    I was on IV for a month and it still didn't end the cellulitus.

    It came back 3 weeks after I was off of the meds. So the dr put me on Sivextro for 2 weeks. And now im on bactrim. Im praying these meds work.


    Let me know how you are doing

    Nicole


  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited June 2018

    Have you consulted with an Infectious Disease doctor? They should really be managing problems with ongoing infections.

    I developed an infection 5 weeks after my surgery. I only had pink areas on one breast that were a little warm and swollen - not super obvious or concerning. My PS saw me the same day I called and sent me to the hospital.

    I was there for 3 days on IV antibiotics - I think some version of Ceftin to start and then Vancomycin. I went home on 2 weeks of 2 oral antibiotics - Cipro and another that I can't remember. It took a while to completely resolve but did.

    I hope things improve for you soon!


  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited June 2018

    I wanted to add two things -

    After MX, your ability to fight off any infection is compromised by a huge decrease in blood flow due to removal of vessels. You're basically left with just what's in the skin.

    Also that breasts are not sterile. If you keep your nipples - the same openings that move breast milk through the ducts to the outside are still there. It's possible that anything could pass into the breast.


  • nrioffe
    nrioffe Member Posts: 12
    edited June 2018

    Definitely seeing an infectious disease dr. I was on a cadd pump for a month.

    I currently live out of the country and returned to the US for my surgery.

    After my infection cleared up they had me wait an additional 2 weeks to see if i would relapse. Unfortunately I relapsed at week 3 after i flew back to Singapore where i live.

    So now i found an infectious disease dr in Singapore. He didn't want to put me back on a PICC line. So he had me taking a $300 per pill once daily for 2 weeks. Now he switched me to bactrim.

    Im just wanting this infection to go away and stay away for good. Its been interesting to research what drugs other women have been successful on. Obviously my first round of pipercillin didn't work for me


    Thankfully yours went away!





  • DoubleBloom
    DoubleBloom Member Posts: 67
    edited June 2018

    nrioff,

    It seems my previous post did not go through so I am trying again.

    I honestly don’t know what my CRP was. And most likely, my infection is from the Alloderm used when the tissue expanders were placed to keep them secure.

    As I mentioned, I was admitted Friday and discharged Saturday. I did well for the weekend and departed Monday for a 12 night cruise which I planned a year ago to celebrate a lot of family milestones. My doctor said if he were in my shoes he would go on the trip and that I was only rolling the dice about 20% for “issues. He also said my breast, though swollen wasn’t that bad. I do like and trust him and for these reasons I avoided infectious diseases and the pic line which would surely have canceled my vacation.

    So here I am on the cruise. I was feeling pretty well for three days and then spiked a 101 temp last night but I don’t have a rash or any new breast swelling. The fever was down this morning but I feel beaten down. My goal now is to get thru the cruise enjoying what I can. I’ll continue taking my antibiotics and cross my fingers that they do their job. Worst case scenario I can always fly home. I’m fortunate that my husband is a doc and is watching over me.

    I am concerned about recurrence which I read happens often enough. I suspect I’ll have to have my right tissue expander addressed sooner vs later.

    How are you feeling now

  • nrioffe
    nrioffe Member Posts: 12
    edited July 2018

    Hi Doublebloom,

    Sorry for delay was in the process of an international move. How did the rest of your cruise go?

    My left breast isnt any better. I had my US drs look at me first thing Monday morning.. Im heading back to the hospital tomorrow to be put back on IV antibiotics(Daptomyacin) oral meds are not doing the job

    I guess we will try one more time to save it otherwise it will get replaced with another expander if I have no progress.


    Just want this cellulitis nightmare to finally end so i can be move forward.


    Hope your made it tp the end of your cruise



  • nrioffe
    nrioffe Member Posts: 12
    edited July 2018

    Thanks Notverybrave,

    I did keep my nipples. I think another reason of cellulitus is for women who had nipple sparing mx.


  • DoubleBloom
    DoubleBloom Member Posts: 67
    edited July 2018

    nrioff,

    Nice to hear from you though I'm so sorry to hear that your cellulitis continues. I hope this last round of ABs solves everything so you can avoid surgery. Do you continue to have a rash and fevers?

    To my family's delight, I did make it through my cruise. The first 10 days were riddled with fevers and I spent a lot of time in bed due to heavy fatigue. The silver lining is that a cruise is a wonderful place to get some rest! The last two days of the cruise and nearly to the end of my two week AB regimen, is when my fevers finally broke. I've now been fever free for almost a week. Fatigue remains an issue and my breast is still swollen and hard. My fingers are crossed that I do not have a recurrence!

    Please do let me know how you're doing.

  • nrioffe
    nrioffe Member Posts: 12
    edited July 2018

    Dear doublebloom,

    When was your bloodwork last done and what was your CRP? You have to be under 10 to be considered within normal limits. If you are still hard and swollen that's not good :-( Hopefully that goes away soon


    My CRP iscurrently at 48 and i can tell. My skin is getting tighter.

    Sooner or later i will decide if i will just remove one this week. Attempt to replace the one. Or just wait another 6 months and try again.


    Hopefully you get some answers too!


  • DoubleBloom
    DoubleBloom Member Posts: 67
    edited July 2018

    Thanks, Nrioff.

    Neither the ER or my doctors ordered a CRP. I'm happy to say that my swelling has resolved somewhat and I seem to be in a holding pattern. My biggest complaint is fatigue which makes me wonder if there is a residual infection that lingers on. Time will tell.

    I'll be thinking of you and praying that you find a plan of action that resolves your issues once and for all.


  • nrioffe
    nrioffe Member Posts: 12
    edited July 2018

    Unfortunately i had to have my expander removed on Wednesday. Now im left to heal for 6 months and retry another expander. All of this is unreal to me. Another 9 months 2 more surgeries if Im lucky i suppose. Guess my body had had enough and finally gave up. Hopefully the next 6 months will be uneventful and i can put the past behind me and move forward now




  • ReadyAbout
    ReadyAbout Member Posts: 211
    edited July 2018

    I had bmx, snb and reconstruction in May. I woke up with fever and red, swollen left foob recently - ended up in hospital for 2 days on Vancomycin, then at home on Bactrim and Keflex for the past week. While the redness is mostly gone, the foob is still swollen and feels hard and heavy, like I've got a small grapefruit in there instead of a tissue expander. I see the PS on Monday and he said if it wasn't completely resolved, he would take out expanders on BOTH sides and replace with TEs along with antibiotic plates, which he said are not comfortable, lol. The expanders and plates would stay in for 3 weeks and then he would do exchange surgery. Has anyone heard of this procedure being an option? Not sure why he wants to remove expander on good side but I'll ask him about that on Monday because I don't want to mess with a side that is doing well.

  • DoubleBloom
    DoubleBloom Member Posts: 67
    edited July 2018

    Nrioffe,
    I'm sorry to learn that your expander had to be removed. Why does your surgeon say you must wait six months for another expander? If you're infected area is washed out properly I would imagine you could have a new one placed immediately and also so the skin can stay stretched since you'll one day have a permanent implant to keep room for. One of my TEs got infected a month after my initial mx and I got a new one immediately in surgery. Of course, every patient is unique and I'm sure your doctor's have their rationale. I certainly hope you are recuperating comfortably and will feel better in the weeks to come.

    I'm fortunate to say that I've had no new issues since my bout of cellulitis. My breast remains firm and swollen however the PS says that retaining fluid around the TE is very common. He says when he does the exchange surgery, many women have a gush of water come out after the incision is made. I'm scheduled for my exchange surgery in about 5 weeks.

    ReadyAbout,

    Sorry about your ordeal. I've never heard about antibiotic plates. Any "plate" inside the body certainly doesn't sound comfortable. It took almost two full weeks on antibiotics before my fevers went away and I'm grateful that my surgeon didn't rush in to remove my TEs. Because I had radiation, the extra time for my skin to heal and stay stretched before exchange surgery is very valuable. It sounds like a good idea to question why your surgeon plans to remove both expanders when only one is affected. I'm wishing you a great outcome.

  • ReadyAbout
    ReadyAbout Member Posts: 211
    edited July 2018

    Has anyone heard that cellulitis increases chances of lymphedema? I think I read that somewhere. I work out often and I’m currently wearing a compression sleeve when lifting weights.

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