Emotional state

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Rach123
Rach123 Member Posts: 8

I had my first round of AC last Mon and about to have round 2 this Monday. By day 5 a d through the weekend I was feeling really mentally out if it. Like a weird combination of everything hurt , drugged, numb, and depressed. Like nothing about my body felt normal. I’ve never experienced anything like it and wasn’t expecting it. Has anyone experienced this? I am dreading round two and would love to find ways to deal with these emotional effects. Obviously, I am allowed to have my low moments but this felt different and scary. For background I am 39 and got my dx a month ago and am doing 4 rounds AC, 12 Taxol, followed by mastectomy; also herceptin and projeta. Thank you so much. This is my first post.

Comments

  • moth
    moth Member Posts: 4,800
    edited June 2018

    Hi Rach, sorry you're feeling so odd.

    It could be a result of the steroid crash if you're getting dexamethasone or other steroids for the first 3 days? That was part of my protocol and yeah, the steroid crash after made me feel really weird.
    Hydrate lots and rest and try to get outside for a walk every day.

    Do mention it to your chemo nurse before your treatment on Monday.

    best wishes,





  • ClareCo
    ClareCo Member Posts: 66
    edited June 2018

    Hi Rach123. Sorry you are having a rough go of it—I just logged on for the same reason. I had my second AC 2 days ago and I just feel out of it. It’s very strange- I feel a little queasy, fatigued, and definitely really down. I want to go out and distract myself but the idea of pulling myself together and moving around seems impossible. I wish I had some good advice for you- all I can say is that you aren’t most definitely not alone!! Hang in there- I’ll be thinking of you

  • Moderators
    Moderators Member Posts: 25,912
    edited June 2018

    Hi Rach and welcome to Breastcancer.org,

    We're so sorry to hear of your diagnosis, and that you're having these treatment side effects. In addition to the great information and advice you've received from Moth and Clare, we wanted to share that it could be that you're experiencing fatigue, which is a common side effect of chemo. You can read some great information and tips on the main Breastcancer.org site's section on Managing Fatigue that may help! Also you may find the Managing Chemo Side Effects page useful.

    We hope this helps and we hope to hear more from you soon!

    --The Mods

  • beauz
    beauz Member Posts: 207
    edited June 2018

    Hi Rach, I definitely felt that AC twisted my body and mind. i had strange cravings for food, a lot of food tasted differently. I couldn't stand those fragrance from soap, hand gel, deodorant ……my body smelled awful for a few days after each AC infusion. It felt like AC took me for a ride in a dark world. Hang in there. You are not alone. We are here for you and each other.


  • Meow13
    Meow13 Member Posts: 4,859
    edited June 2018

    That is what heard, like moth says lots of water. Also I have heard fasting helps.

  • CBK
    CBK Member Posts: 611
    edited June 2018

    Hi Rach-

    I think Moth could be right that the steroid crash could be futzing with the body and mind. My dark days on AC were day 3 and 4 after infusion. My steroid amounts were cut in half what a “normal” person would receive. I received steriods at time of infusion only. I would be up all night and then crash on day 3 or 4.

    Make sure you report how you feel to oncologist. In my case I would need to scream really loud to get her attention sometimes. Don’t be shy.

    It’s so hard to get out there during this time. But even if it’s taking a walk with one trusted friend it can help immensely. I thought people would want to avoid me during chemotherapy, but your real friends come shining through. All they want to do is see you.

    Please let us know how you are doing and keep reaching out!!

    You will get through this and be stronger than you ever imagined.

  • Lula73
    Lula73 Member Posts: 1,824
    edited June 2018

    This goes back to chemo for Hodgkin lymphoma, but very similar post chemo symptoms and a steroid regimen. Since foods are tasting different, I personally did not worry so much about what I ate but rather just that I ate. I lived on mac n cheese and pork roast pretty much for a year because those were the only things that tasted right. I found that resting the day or two following onset of the symptoms worked well for me (but i wasn’t working at the time and didn’t have kids, so i could). And the steroids can make your teeth hurt, so don’t freak out if that happens.

  • badger
    badger Member Posts: 34,614
    edited June 2018

    hi Rach123 and welcome to BCO. I had TC chemo and got IV steroid (dexamethasone) with infusions. Was buzzed for a couple of days then crashed. Definitely talk to your onc nurse tomorrow but there should be someone on-call 24/7 if you have concerns. I found that exercise lifted my mood. Some days all I could manage was a slow slog to the mailbox and back, and some days I surfed the couch. So I bought a cheap pedometer and started keeping track to motivate me to move. Eight years out and I've walked nearly 7,500 miles (see sig line). Eat what tastes good and know your taste buds may change. What tastes good one day may not the next. Water - really cold - tasted good to me, it doesn't for some people, and I bought some crystal light flavor packets as well. Remember liking peach iced tea.

    If you haven't found it yet, check out the June 2018 chemo thread. There's nothing like the support from people who are going through it at the same time as you. ((hugs))

  • msphil
    msphil Member Posts: 1,536
    edited June 2018

    yes sweetie its side effects from meds But it will get better that Blah feeling. I will keep you and Us All in my prayers. Praise God I am now a 24yr Survivor this yr and can still remember that feeling oh and No energy. Hang in there sweetie. Ms Phil idc stage2 0/3 nodes 3mo chemo before and after surgery Lmast then got married We were planning our 2nd marriages when found lump. Then 7wks rads and then 5yrs on Tamoxifen.

  • DG10004
    DG10004 Member Posts: 13
    edited June 2018

    Hi there,

    I just finished my last of 6 cycle of chemo. From the very first treatment, I've experienced the side effects you're having. The "meh" feeling, as I call it, comes about 3 days after treatment and lasts anywhere from 1-4 days. The nurses speculate the crash comes from weaning myself off the steroids every week. I would take them for 5 days, but my MO said that if I'm feeling really bad I could take a steroid on the 6th day as well, to take the edge off.

    Some of the crash days were really bad. I felt fatigued, depressed, hopeless. It didn't help that my boyfriend of 5 and a half years broke up with me the day I was diagnosed.. thinking about that made my bad days even worse! But every week post chemo, there would be a day I would wake up feeling alright. I got out of bed at a reasonable time and got going with my day, actually managing to do something productive and socialise. If you do find yourself experiencing these bummer moods, know that you're not alone. It feels terrible for the time being, but the mood goes away and you'll feel like yourself again.. you just need to ride out the storm.♡

  • Callmehoney
    Callmehoney Member Posts: 5
    edited June 2018

    I felt the same way...Dizzy, light headed and generally drugged. People ask you all day and every day "How are you feeling?' I would say I'm hanging in there because they really don't want to hear all the details of our suffering so I have newly turned to this forum so I can talk to fellow "In treatment" women. I finished my 4 cycles of A/C chemo (that was gross). The smells, achy bowel movements, dizziness and sleeplessness. It is a total shock to your system!!! Now I'm on my second round of Taxol and I feel like I've been hit by a truck! I thought I was a strong person and that I was going to get through all of this like a trouper but... I am SO achy and have bone and joint pain that starts 2 days after chemo and gets a little better each day but I still feel like I have the flu for 4 days and then it's time to go back for more. I've left messages with my MO to tell him how I'm feeling in case there is another chemo he can switch me to that I will tolerate better. Has anyone else had this kind of reaction to the Taxol???

  • Rach123
    Rach123 Member Posts: 8
    edited June 2018

    Thanks so much for writing and sorry to hear about Taxol. I keep hearing the Taxol is supposed to be so much better. Crazy question but you’re not still taking the neulasta are you? I ask because just today, my chemo nurse said a patient was feeling terrible on taxol and it was because she continued it. Anyway, just a thought. And I hear you about talking here v ppl who don’t undertand

  • Rach123
    Rach123 Member Posts: 8
    edited June 2018

    Thank you all so much for making me feel normal. Had round two of AC today. MO adjusted my steroids and slowed down the C infusion. I expected to feel meh/fatigue/etc but the extreme low was scary. Hoping the changes will help a bit. Anyway, 2/4 down!

  • ClareCo
    ClareCo Member Posts: 66
    edited June 2018

    Hey there Rach123 - I did AC 2 of 4 last week. We're past the half-way point! Hang in there; we'll get through it.

  • FarAwayToo
    FarAwayToo Member Posts: 255
    edited June 2018

    I had very similar experience with being depressed while on AC, and yes, the lowest days were days 4-5. The darkness in my mind was awful. I'm also not sure if had to do with AC or steroid withdrawal. For my last dose of AC I didn't take any oral steroid, only what they gave me in the IV on the infusion day, and I thought I didn't have as much depression as other doses. Also, steroid gave me horrible heartburn. As soon as I was done with AC and steroids, the heartburn went away.

    Hang in there, you will be done with it soon!

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