Pls help. Need positive info from anyone pls

Hi!

I was diagnosed four years ago with a 5 cm+ tumor and a positive node (Grade 3, triple positive). After chemo. my surgical pathology revealed that all of the active cancer was gone. I've had PET scans, CT scans, and MRIs. The cancer never went beyond my node. There are plenty of Stage III ladies here who never progressed to Stage IV. ((Hugs)) It's hard to get the news that your cancer is worse than expected.

I know several ladies in my group at church who are Stage III and their BC hasn’t progressed.

I’m sure you are scared. We understand that. There are also ladies on the Stage IV forum who have been around for years and years. There just isn’t any way to know for sure whose will and whose won’t progress. That goes for those of us who are Stage 1 too like me. Stats are encouraging but there aren’t any guarantees.

BC research and treatments have come a long way even since I was DX in 2011. It’s not the death sentence anymore.

I’m sure your medical team will throw everything they have at your cancer. So try to keep the faith and keep us posted.

Diane

Dlittkemann, your story is very similar to MY story.

I was older than you--56--when a tiny lump was found, estimated to be 0.8 cm. Everyone thought, no problem, let's pop it out of there, and all will be well.

Lumpectomy, with sentinel node biopsy, and it turns out my armpit nodes have cancer that so completely filled them that they could not absorb any of the radioactive tracer or the blue dye. A full axillary dissection revealed six affected nodes. Stage III.

When I went to my surgeon's office after the lumpectomy to get the drain out and hear the full results of the pathology report, I left there in a haze of grief and sadness. I don't know how I managed to drive myself home.

That was almost seven years ago and I'm doing great. The treatment roller coaster was no fun, but manageable. Really. You can do this.

My advice now is to take one day at a time. Don't try to predict or conquer the whole thing--it's overwhelming. Right now, today, you can get up, make coffee, play with your preschooler, and trust your doctors to help you. The shock will ease with a little time. And if you'd like to read about my experience, which feels like a couple of million years ago, there's a link in my signature to a blog I wrote.

Come back and let us hold you up, whenever you need to. SB

Hello, I had a Lumpectomy and 2 lymph nodes removed also on May 30th and found out last week the nodes were positive for cancer too, so now it's a cat scan next for me and then chemo. Yeah, it's terrifying thats for sure. My doctor had kinda made me feel confident it hadn't spread to the lymph nodes and I'd probably only have to do radiation, but it is what it is. This waiting is the hardest part..not knowing what is going on inside of me. I just wanted to say thanks for posting here and good luck to you as well! Reading this thread has helped me too. Thank you al

I'm over ten years out. I do have hormone positive so the anastrazole I take probably helps, but that's not saying surgery and radiation won't clean up your cancer.

Are you going to have anything beside the CAT scan before the rest of your treatment? PET, maybe?

Hi,

I am 49 and recently diagnosed tn. My tumor is 7cm x 4cm x 3.5cm deep. Spread to lymph nodes under arm . Had scans and cts and had not spread anywhere else. It is very scary but you will feel better once you start a treatment plan. I have been through 1 dense dose ac chemo. Days 3 and 4 were a little rough but then started feeling better. The chemo will hopefully shrink the tumor alot and then we will see if i need radiation or just surgery. Wish you well

I was diagnosed as clinical stage 3c, had cancer in an internal mammary node, at least 3 axillary nodes and a rotter node, per mri. Pet scan showed no other involvemant, no spread. Path report showed a much larger tumor than they thought after neoadjuvant chemo at 10.4 cm, and 3 axillary nodes with cancer. I am still cancer free and still no spread. I had a 4 and 6 year old at diagnosis. Its a bumpy ride, but I can tell you, I worry the least about the cancer coming back.

I was diagnosed with a huge 9CM tumor (never seen on mammogram) with 2 + nodes. Stage 3A. That will be 12 years ago in November of this year. I am NED and plan to stay that way. 🙂

Hang in there! Ask for help when you need it and come here often, especially in the beginning. Wonderful people o this board. Always ready to help.

Bless you.

Cyndi

I was diagnosed at 31...while I was pregnant... Had a lot of positive lymphnodes... Now I am 33...with two kids... 4 and 1 year old)... No evidense of diseas

Praying for God's peace to wash over you!

My journey at 47 started off with mammo in April 2017 detecting 1 cm mass, and looked at nodes via Ultrasound appearing all clear....lumpectomy revealed 2.5cm and 2/3 sentinel nodes. Darn! Decided on mastectomies which further revealed another 5cm tumor and 10 + nodes! We were all in a state of complete shock when that pathology was delivered!! PET scan was next to see about metastasis-- same place you are now. Longest 5 days of my life! Also the best news of my life to learn it hadn't gone beyond my lymph nodes! Sigh, relief, praise, gratitude all overwhelmed me, and then the plan is in place and the battle begins! So, to answer your question-- many, many nodes here and no further, and I pray daily that it stays that way. My cousin battled Stage 3 TN and is thriving 8 yeats later! You got this!!! Please let us all know how things turn out! We are all here for you-- praying for you!! 🙏🏻❤️

Prayers for you dilittkemann.