Emotional state
I had my first round of AC last Mon and about to have round 2 this Monday. By day 5 a d through the weekend I was feeling really mentally out if it. Like a weird combination of everything hurt , drugged, numb, and depressed. Like nothing about my body felt normal. I’ve never experienced anything like it and wasn’t expecting it. Has anyone experienced this? I am dreading round two and would love to find ways to deal with these emotional effects. Obviously, I am allowed to have my low moments but this felt different and scary. For background I am 39 and got my dx a month ago and am doing 4 rounds AC, 12 Taxol, followed by mastectomy; also herceptin and projeta. Thank you so much. This is my first post.
Comments
-
Hi Rach, sorry you're feeling so odd.
It could be a result of the steroid crash if you're getting dexamethasone or other steroids for the first 3 days? That was part of my protocol and yeah, the steroid crash after made me feel really weird.
Hydrate lots and rest and try to get outside for a walk every day.
Do mention it to your chemo nurse before your treatment on Monday.best wishes,
-
Hi Rach123. Sorry you are having a rough go of it—I just logged on for the same reason. I had my second AC 2 days ago and I just feel out of it. It’s very strange- I feel a little queasy, fatigued, and definitely really down. I want to go out and distract myself but the idea of pulling myself together and moving around seems impossible. I wish I had some good advice for you- all I can say is that you aren’t most definitely not alone!! Hang in there- I’ll be thinking of you
-
Hi Rach and welcome to Breastcancer.org,
We're so sorry to hear of your diagnosis, and that you're having these treatment side effects. In addition to the great information and advice you've received from Moth and Clare, we wanted to share that it could be that you're experiencing fatigue, which is a common side effect of chemo. You can read some great information and tips on the main Breastcancer.org site's section on Managing Fatigue that may help! Also you may find the Managing Chemo Side Effects page useful.
We hope this helps and we hope to hear more from you soon!
--The Mods
-
Hi Rach, I definitely felt that AC twisted my body and mind. i had strange cravings for food, a lot of food tasted differently. I couldn't stand those fragrance from soap, hand gel, deodorant ……my body smelled awful for a few days after each AC infusion. It felt like AC took me for a ride in a dark world. Hang in there. You are not alone. We are here for you and each other.
-
That is what heard, like moth says lots of water. Also I have heard fasting helps.
-
Hi Rach-
I think Moth could be right that the steroid crash could be futzing with the body and mind. My dark days on AC were day 3 and 4 after infusion. My steroid amounts were cut in half what a “normal” person would receive. I received steriods at time of infusion only. I would be up all night and then crash on day 3 or 4.
Make sure you report how you feel to oncologist. In my case I would need to scream really loud to get her attention sometimes. Don’t be shy.
It’s so hard to get out there during this time. But even if it’s taking a walk with one trusted friend it can help immensely. I thought people would want to avoid me during chemotherapy, but your real friends come shining through. All they want to do is see you.
Please let us know how you are doing and keep reaching out!!
You will get through this and be stronger than you ever imagined.
-
This goes back to chemo for Hodgkin lymphoma, but very similar post chemo symptoms and a steroid regimen. Since foods are tasting different, I personally did not worry so much about what I ate but rather just that I ate. I lived on mac n cheese and pork roast pretty much for a year because those were the only things that tasted right. I found that resting the day or two following onset of the symptoms worked well for me (but i wasn’t working at the time and didn’t have kids, so i could). And the steroids can make your teeth hurt, so don’t freak out if that happens.
-
hi Rach123 and welcome to BCO. I had TC chemo and got IV steroid (dexamethasone) with infusions. Was buzzed for a couple of days then crashed. Definitely talk to your onc nurse tomorrow but there should be someone on-call 24/7 if you have concerns. I found that exercise lifted my mood. Some days all I could manage was a slow slog to the mailbox and back, and some days I surfed the couch. So I bought a cheap pedometer and started keeping track to motivate me to move. Eight years out and I've walked nearly 7,500 miles (see sig line). Eat what tastes good and know your taste buds may change. What tastes good one day may not the next. Water - really cold - tasted good to me, it doesn't for some people, and I bought some crystal light flavor packets as well. Remember liking peach iced tea.
If you haven't found it yet, check out the June 2018 chemo thread. There's nothing like the support from people who are going through it at the same time as you. ((hugs))
-
yes sweetie its side effects from meds But it will get better that Blah feeling. I will keep you and Us All in my prayers. Praise God I am now a 24yr Survivor this yr and can still remember that feeling oh and No energy. Hang in there sweetie. Ms Phil idc stage2 0/3 nodes 3mo chemo before and after surgery Lmast then got married We were planning our 2nd marriages when found lump. Then 7wks rads and then 5yrs on Tamoxifen.
-
Hi there,
I just finished my last of 6 cycle of chemo. From the very first treatment, I've experienced the side effects you're having. The "meh" feeling, as I call it, comes about 3 days after treatment and lasts anywhere from 1-4 days. The nurses speculate the crash comes from weaning myself off the steroids every week. I would take them for 5 days, but my MO said that if I'm feeling really bad I could take a steroid on the 6th day as well, to take the edge off.
Some of the crash days were really bad. I felt fatigued, depressed, hopeless. It didn't help that my boyfriend of 5 and a half years broke up with me the day I was diagnosed.. thinking about that made my bad days even worse! But every week post chemo, there would be a day I would wake up feeling alright. I got out of bed at a reasonable time and got going with my day, actually managing to do something productive and socialise. If you do find yourself experiencing these bummer moods, know that you're not alone. It feels terrible for the time being, but the mood goes away and you'll feel like yourself again.. you just need to ride out the storm.♡
-
I felt the same way...Dizzy, light headed and generally drugged. People ask you all day and every day "How are you feeling?' I would say I'm hanging in there because they really don't want to hear all the details of our suffering so I have newly turned to this forum so I can talk to fellow "In treatment" women. I finished my 4 cycles of A/C chemo (that was gross). The smells, achy bowel movements, dizziness and sleeplessness. It is a total shock to your system!!! Now I'm on my second round of Taxol and I feel like I've been hit by a truck! I thought I was a strong person and that I was going to get through all of this like a trouper but... I am SO achy and have bone and joint pain that starts 2 days after chemo and gets a little better each day but I still feel like I have the flu for 4 days and then it's time to go back for more. I've left messages with my MO to tell him how I'm feeling in case there is another chemo he can switch me to that I will tolerate better. Has anyone else had this kind of reaction to the Taxol???
-
Thanks so much for writing and sorry to hear about Taxol. I keep hearing the Taxol is supposed to be so much better. Crazy question but you’re not still taking the neulasta are you? I ask because just today, my chemo nurse said a patient was feeling terrible on taxol and it was because she continued it. Anyway, just a thought. And I hear you about talking here v ppl who don’t undertand
-
Thank you all so much for making me feel normal. Had round two of AC today. MO adjusted my steroids and slowed down the C infusion. I expected to feel meh/fatigue/etc but the extreme low was scary. Hoping the changes will help a bit. Anyway, 2/4 down!
-
Hey there Rach123 - I did AC 2 of 4 last week. We're past the half-way point! Hang in there; we'll get through it.
-
I had very similar experience with being depressed while on AC, and yes, the lowest days were days 4-5. The darkness in my mind was awful. I'm also not sure if had to do with AC or steroid withdrawal. For my last dose of AC I didn't take any oral steroid, only what they gave me in the IV on the infusion day, and I thought I didn't have as much depression as other doses. Also, steroid gave me horrible heartburn. As soon as I was done with AC and steroids, the heartburn went away.
Hang in there, you will be done with it soon!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team