ONCOTYPE DX 17 with lymph node involvement

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Dodgerick
Dodgerick Member Posts: 72
edited June 2018 in Not Diagnosed But Worried

After being diagnosed on November 29, 2017 with ILC and DCIS in my right breast (with a 40% chance of cancer also showing up in my left breast), I had bilateral mastectomies on January 26, 2018. The 2cm tumor was ER+, PR+, and HER-2 negative. My surgeon hadn't anticipated lymph node involvement and just took the sentinel lobe. I was shocked to learn on the February 7, 2018 appointment with my surgeon, that the pathology report found the sentinel lymph node she had removed was involved by cancer with a 1.9cm extracapsular extension present. In spite of lymph node involvement, my oncologist suggested the ONCOTYPE DX to determine if I would benefit by chemotherapy. My ONCOTYPE DX came back with a score of 17, and my oncologist determined chemotherapy would not be necessary or add significant benefit in this situation. I was so excited that I wouldn't have chemo! I completed 5 weeks of radiation to my chest wall and regional lymph nodes on May 31, 2018. I have yet to find another breast cancer survivor of ILC and DCIS with lymph node involvement, that has skipped chemotherapy and I'm really nervous about it! I would like to know if there is anyone out there in my situation, please?

...by the way, they found LCIS in my left breast in the pathology report. I know LCIS is considered "a marker" but I don't think I could possibly go though this ever again! I'm glad we made the decision to remove both breasts.

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