Sickened with BIRADS 5, so scared and sad.
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Hello everyone,
I am always looking in and reading these inspiring stories. The support system formed here is unreal, I posted up over a year ago and since then became a lurker. For years, I had this cancer halo hanging over my head due to my dense breasts and family hx.
I was told today I have more cysts in both breasts, typical since I was in my 30s. I never miss my mammo and sono appts! I had the usual heterogeneous dense breasts, no significant masses, no calcifications....what I never had before was the Birads5, now I have that.
Highest before was 4😣....
Now, there is a complex cyst in my right breast 1.7cm, mild interval in size and 2 hypoechoic nodules in left breast 0.62cm, and 2.3cm. The rest are cysts, 7 checked out okay in right breast and 6 checked in left breast.
My heart sank and yes, I was alone when that info came in, and immediately felt scared. The Breast specialist was clear that I need to biopsy on Tuesday both breasts. Walked out and cried in front of that hospital, could not do that in front of them😢.
I have fibrocystic breasts and always felt they were deathtraps....forgive me. Spent over a decade of repeated mammo and sonos. Now, I am thinking, my family is tiny but I must figure out how to tell them. I am a 47year old woman who spent 15years in bodybuilding and pays attention to nutrition, worked since I was 14, care so much about life and people in it. Had plans to work towards personal training so other women can know why I have no life😥, What now? Djmammo has been on point so much here, and so have you all. Thank you for making me feel we will all be okay, yes I am worrying if anything is spreading, and if it is cancer what are my chances, but I want you all to know this forum is really making me feel I can still be okay. I love what yall do!!❤❤❤❤❤❤❤
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Oh, friend, I'm so sorry you're here with a BIRADS 5 report. I came here with one of those six months ago, and I was so scared. I'll just say this: you don't know anything until you know something, so try to distract yourself rather than borrow worry. If you are anything like me, you won't be able to do that.
So know that if the biopsy *does* come back with bad news, you will be able to deal with it. You really will. Sending love your way--this part you're in now is the very, very hardest part.
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Hi Sabrina and I'm so sorry you are in such an awful waiting phase. I know it's really hard, but do continue to be optimistic since nothing is final until the biopsy results are in. Plus you betcha, so many of us went through a period of not-so-fun treatment but came out the other side cancer-free and stronger in many ways. And this is indeed a warm, safe environment with lots of smart, brave women to help see you through. Keep the faith.
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Hi Sabrina. I'm so sorry you are having to go through this. Just had my biopsy today. I have broken down and cried at both my US and again today. It's normal for many of us to have crazy thoughts. One minute ok, the next anxiety. It's all so surreal and all of the waiting at this stage is hell. I've read stories on here of women being told Birads5 and biopsy results end up being benign. Nothing is certain until then. Please try to stay busy, do some things that relax you, indulge in some guilty pleasures (mine is icecream!). We are all here for each other. Stay connected, many wonderful women have been here for me while I'm losing it. 🤗 This too shall pass.
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I like the others am so sorry your here and you don't know until it's biopsied... I will say this... if it's not cancer time spent worrying is wasted happy moments.. If it is cancer you may find yourself in treatment later and wish you had found a way to enjoy the time of not knowing and being able to do something. I can say this because I have been there and I'm going through it again my biopsy is next Friday. No matter what it is you will get through it .. it just may not be a fun time. BC is not a life sentence for everyone... Best wishes and air hugs
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Thank you so much everyone for responding to me. I am sorry we all in here writing about these horrors. But I swear you all give me hope. Thank you so much, I cried my eyes out when I see you all took time out for me. I am so angry not knowing, so sad thinking the worse. I did not go to the gym last 2 days. Feeling like whats the use🤣? I may break down there 😢 Trying to get a grip and cooking my favorite Filipino dish.. chix afritado. Lol, I am not Filipino but I love all kinds of foods. I am black american with a huge afro...thinking dang , ya may have to cut it off.
Is it just me or does the likelihood of having cancer make you go back and forth with your feelings. I am totally freaked out😯😯😯😯
Unlike many of you, I have no small children, my parents deceased, down to one brother and my other 3 siblings deceased😢. Never been married, but have a very caring and loving boyfriend.
This life has been good to me still, Georgia, Cindy, Okkate, Mucki....you all have just proven that! 🤗🤗🤗🤗❤ And the fact that I am still breathing.🤣 Thank you ladies and I will send the results no matter good or bad.
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Sabrina, I too will be thinking of you. No matter what happens, I think you will find that you are stronger then you knew, and probably stronger than you really ever wanted to be. You can do this. Hugs.
Rebekah
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I forgot to wish everyone good luck as well...as this is a ongoing situation. So it seems, I know for me it always has been. Mucki I hope for B9 results on your biopsy Friday!!!❤💪
Cindy you and I may have been crying at the same time today!!! I hope all goes well for you too. This road is so bumpy! I hope you are feeling a lil better ❤💪
Okkate, you on the other side waiting for me, I want to be there💪❤
Georgia your words are as soothing as apple pie and ice cream❤🍧🍴
I will be back!!
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Rebekah, thank you so much for your well wishes!!! I am sending you the same ❤🤗I am sitting at my kitchen table in a completely quiet apartment thinking wayyy too much. I must finish up this dish and watch a movie. This crying thing is really not good until YOU really have something to cry about😢
I praise you and everyone up here, we need to keep going because we have stuff to do!!!
Big hugs, thanx❤
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Wishing you the best possible outcome, Sabrina. This forum is filled with women who have had breast cancer, have put it in their past and are doing well. You still have a shot at no cancer, despite the Birads 5. My Birads 5 was benign lesions that increase my risk of cancer, but not cancer. Your extremely healthy background can only serve you well, whatever the findings. The wait is the worst and I am sorry you have to go through that.
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why worry yourself when nothing is proven yet? Who am I kidding? I was a basket case. And looking back, it’s okay to be a basket case. There’s no harm in that. Seriously. Cry all you want. Don’t let your feelings go unnoticed.
But, then you have to gain control. Whatever this is, you’ve got it in the bag!!
My best friends MIL was dx’d back in 2000 with stage 4 IBC. She went through vigorous chemo. But guess what? She’s sailing the Caribbean right now... 18 years later!!!
I firmly believe in the power of positivity. On the flip side, Allow yourself a “time” of day to get your negative feelings out. During your morning shower? Maybe during your run? Give yourself the pity party for 15 minutes. And then, like that, turn it off. Before long, those 15 minutes will get shorter and shorter. You can do this, whatever it is. You don’t have a choice. Fight, my friend, fight.
When are you expecting your biopsy results? Over the phone or at an actual appointment time?
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Lea, thank you so much for your positive vibes as well and I am sending some also,we need it!!! I need that now at this time🤗❤, I know I have to face this but it feels better knowing people like you all can actually empathize❤💪
Robin, you are funny and yes I need that laughter now because in a few more minutes I will be bawling again,😅😢😅😢😅😢! I will make myself get up early tomorrow and do my cardio. I am sending you well wishes as well as your bestie . I am on the phone with my bestie now and cannot dare tell her now. Thank you😗
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Sabrina,
Movie sounds great. I got though this binge watching medical dramas. I never liked them, but i've seen them all and now I go to hospitals and talk to doctors with ease and a sense of humor. During my surgery, I told my anethesialogist not to fall asleep (Grey's Anatomy) and made sure my MO was giving me the shortest radiation therapy (16) and not over treating me for the money (Residents). BC is serious stuff, but modern medicine has many ways to cure it. So don't worry. You will be fine. Good luck and praying for a B9.
Mimi
PS. I have yet to find a hottie doctor in the oncology department.
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If you're living with a cancer halo over your head, read the book, "Breast" by Dr. Kristi Funk. It is a great book about everything you need to know about BC and how to live to fight it. It just came out and has the most updated research and information. I have the audio book and l listen to it every night until I fall asleep.
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Nonomimi, I thank you for your humor and kind words. I realize you just had a radiation tx, upbeat and funny as ever! So many women here are going about the daily lives, you all are amazing💪🤗Yep, it is serious stuff, and I am afraid of just how serious things can get! Thank you for sharing your resources😘, big hugs and well wishes!!❤💪
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Hello everyone, I hope you all doing well as you can be. This weekend, I googled🤓, but I know it is wrong to do that. So, I went to work out with my boyfriend, I swear, he has really been trying to keep my mind sane, thank you.
I understand why they dont want us worrying or playing name it and claim it. For years, I always collected my reports because my hx is that thick due to dense breasts. I looked at 4 reports 2010, 2014, and this year coupled with last year. I saw how my biopsied complex cysts became resolved cysts, and hypoechoic nodules became simple cysts later on. Since 2002, the cysts have increased and I cry because I am conscious of food intake, drink tons of water and take my vitamin supp. Why are they ganging up on me? Why do they disappear? How do complex cysts shrink away? Hypoechoic nodules shrink away...all this I am looking at in my records. 19growths between both breasts. Left breast has the biggest ones which explains why that breast is so much larger😢. Years ago, I told my Grandma (deceased )I want to take off these breasts, they are going to kill me....now look at me😢 I am an angry, sad, scared, sickened woman who realizes that this is not personal. But, the fact that women are suffering with these horrific issues is hard to stomach. I am so sorry for all the troubles women are facing and being forced to be strong for something else in their already demanding life!!! No true answers for relief, just try to stay strong. Get through it as best you can. Over the years, I navigated through topics here and love the warmth, comfort, unity and resourceful info. Just what I always needed in life❤
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Sabrina,
I don't know much about cysts, but until your biopsy report comes back, you should not be worried. You are wasting precious time. Please go back to watching a movie. Everything is going to be fine. We are strong. We get through it. One day at a time. Be grateful. Celebrate today. I binge watched 12 seasons of Grey's Anatomy in the last 3 months and saw people with horrific injuries and gigantic tumors that it made me feel like my problems were nothing. Keep yourself entertained. Stress is bad.
Mimi
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Thank you Nonomimi,
You sound like my better half. It is true, but literally impossible to be unbothered by these prospects. I love hearing from you because you sound as if you make the most of everything. I have a side in that, definite trait I need to kick in right now.
Not a big Tv watcher, but IDchannel is on tv for me all day. Hard to get out of bed but I am working on it🤗❤ Thank you so much.
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I feel for you-I still want mine off, and my biopsy was benign. Benign only means what they removed was benign at that time. What perturbs me the most is the money aspect of what they will/won't do.
Mom had breast cancer age 50 and is now a very healthy 88 who exercises every day. I hope you have the benign result, but if you don't, you deserve to get what you want done.
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Hello, Recap, I am so glad you did receive a B9 report. But I do understand you wanting to take the prophylactic route. It is all scary and ominous once you begin on such a journey. Being positive is so difficult, but a must. I cry almost every day waiting om results.
You will find the best route for you, and I hope you get all the support you need. I am here if you need to talk❤❤❤❤
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keep an open mind and get second opinions. Depending on the results, lumpectomy + radiation has the same recurrence rate as mastectomy.
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I am praying for you!
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Nonomimi, I love your attitude and how well you make lemonade out of everything. I hope you are doing well and in good spirits...So funny, I am always the one to look for the brighter side of things. So much to the point when folks say I need to get me head out the clouds! Lol! I want to tell you, there is a kind woman at the Womans Breast clinic who does scheduling and insurance. She was reminding me my next appt date. Also, She secretly told me my right breast biopsy was okay, it was benign. 😢😢😢😢😢😢❤ I am so extremely elated about that, but the left one report is not out yet. Biopsy for that was last Thursday and my appt for Breast clinic is June 21. I am still consumed with this , happy and then sad, crying and then quiet. I CAN feel my lumps more now...Tuesday I was feeling the left one and swear I popped a couple cyst on edges of lump. I know , disgusting...but the lumps are sliding up and down my outer breast. 8 lumps in that breast😢. I am not a wimp, I am strong but after 15years of these events, my heart has become very heavy over last few years. I realize the totality of the possibilities years ago and I am sick of it. But, I love writing to you and all the awesome people here. Thank you for your kindness. Sorry for rambling 😯
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Hi ladies,
Next week is my one year anniversary of my bilateral prophylactic mastectomy. My mother had breast cancer twice. After multiple biopsies and the anxiety of it all I made an aggressive decision to lessen the risk. My one year anniversary puts me back under the knife as I have a 3 week old large "complex mass" on the chest wall. Nothing is ever a for sure thing. I made a decision a long time ago to not worry or stress just accept what comes my way and deal. I pray for the ladies in these great groups and I'm a believer that I did lessen my risks. But who knows maybe I'm one in a billion! 🤗
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Sabrina,
Congratulations on your right breast! I will be praying for your left breast. Whatever happens, there is a cure for it. You will be at a better and more peaceful place. Just hang in there. We are here for you.
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Nonomimi, Hello, how are you? Thank you for responding back, I understand that I am not done yet and honestly, I am still unsettled. Need those warm wishes and sending some right back your way. I am learning this can clearly be a lifelong thing with very little control over. Though unsettled, I still have told no one of this, except for you all here who know all too well why.
My appt is Thursday and I cannot lie, I have really wanted to go to the Breast Clinic and ask to speak to someone to tell me my results. Honestly, back in 2014, in same boat as now, they did call me to tell me the biopsies was benign. The left breast was done last Thursday, 2 lumps, one is really big, they move all over, attached to my breast tissue. Feel lots of lumpiness on lateral side of left breast. They feel like grapes on a grape vine Nonomimi😢😢😢. Both sides of my breasts are pms stinging now, and more vascular. Why the hell am I so scared and consumed by this? Because I dont like this kind of unknown. Big hugs🤗🤗🤗🤗
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Sorry to hear of this mass Mydogjaxon, 🤗, what you did was proactive and totally understood here. I am hoping your mass is dealt with, heaven knows you already made what had to be one of the toughest decisions in your life.😯
I will never understand why these things, growths, lumps, tumors have come as they have for us. I resent it, 😐am scared and consumed with it. But, I will tell you what the Breast clinic women told me, we should realize we are STRONGER than we thought because we do address these issues. She told me some patients never respond to follow ups, letters or annual mammos😢. I am proud of all of us for checking on our selves and seeking help.
Sorry your mom was affected twice by this, my mom had a mastectomy on one breast. This is an awful thing, but Nonomimi just wrote me and reminds me no matter what it is , it is curable❤Sending you big hugs❤❤❤❤❤❤❤
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Sabrina - I read this on a Everydayhealth.com
Harmless breast lumps can be solid and unmovable like a dried bean, or there can be a moveable lump in your breast, soft and fluid-filled, rolling between your fingers like a grape. It can be a pea-sized lump, smaller than a pea, or even several inches across, although this larger size is rare.While the sizes of breast cancer lumps vary from case to case depending on the stage of the disease, what typically differentiates a benign breast lump from a cancerous breast lump is movement. That is, a fluid-filled lump that rolls between the fingers is less likely to be cancer than a hard lump in your breast that is rooted.
Hope your's is B9.
https://www.everydayhealth.com/womens-health/when-to-worry-about-breast-lumps.aspx
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Hi Nonomimi,
Thank you so much for this posting. Very thoughtful of you. I have been seeing those posts for over a decade. Why? Because I suffer yearly with waiting for results of abnormal breast exams. I appreciate you so much, but please know, I feel I have seen them all...very informative, thorough and at times a lil rest for the mind.
My new lump came fast and has not went away, since biopsy, it does feel different though and yes very moveable, firm ...still scary. Feels like a giant firm grape. Pay my crazy self no mind, I am feeling a lil more better, the Birad5 never helped me. And since I found the lump in the right breast was okay, now I wonder which is worse.... complex cyst or hypoechoic nodule? Are they the same?
See the craziness??
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