PTSD - anyone had this diagnosis during or after cancer?

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  • wallan
    wallan Member Posts: 1,275
    edited May 2017

    Thanks Micmel:

    It is somehow comforting to know that I am not alone in how I am feeling. Even though I wish we all were not feeling this way.

    My anxiety seems to be better the last few days for some reason. Thank God. But my digestion is in a mess and this is my body telling me I am upset or nervous even though I think I feel calm. My anxiety is worse some days. I must be thinking something or am triggered by something when it is bad - most of the time I don't know specifically what the thinking or the trigger is.

    I am going to my doctor today for anti-anxiety meds even though I really do not want these drugs. I have read on here they can help though.

    I know I need to learn to live in the "now" and I am - bit by bit. I realize cancer changes you. I guess I thought it would change me in a different way, like I would be more saintly or wise or something. LOL. I am more anxious now. And, I do feel differently emotionally. I am not so bothered by petty, insignificant things anymore so people do not push my buttons as much and I am more myself than I have ever been. I just don't care what others think of me. If I want to sing out loud while I run down the street I will. LOL. If I want to run out to the store without combing my hair, I will. If I want to say what is on my mind, I do. I just don't care. And, I am forgiving of grudges I have held. They are petty in my mind now and who cares about them anymore. Everyone is doing the best they can. And this is genuine and a change I did not will on my own.

    If only I was not so friggin anxious about body pains and doctor appts and my surgery on Wednesday. I was not like this before cancer. And I resent it.

    Thanks for listening. I hope your scans go well.

    wallan.

  • katiegrey
    katiegrey Member Posts: 79
    edited May 2017

    Brutersmom - yes! After trying every AI and even Tamoxifen, I had horrible side effects on everything. I went home from work every day and covered my legs in heating pads for the rest of the night. I woke every morning at around 4 a.m. in so much pain, and crying, that my boyfriend had to massage my legs until I was able to get up and walk. My boyfriend was essentially raising my 2 kids. I talked with my oncologist in January and officially stopped taking the meds the first week in January. She said "let's call it a 6-month vacation" from the drugs. But within 2 weeks, I felt, physically, like my old self. Of course, the thought of not taking ANYTHING to counter the estrogen in my body still haunts me, so I'm approaching it a different way. I joined a gym and have started weight training to convert fat to muscle (fat produces estrogen, while muscle attacks cancer cells). I've also lost about 20 pounds. I've cut refined sugar out of my diet, and cut back on anything with processed white flour, although I can't turn down an occasional plate of spaghetti! I'm taking supplements like Turmeric, Vitamin D and others. I'm taking my son on a mother-son vacation to Kauai, where I want to teach him to surf and scuba dive (things I love), just in case my bc returns and I'm not here someday. My next oncology appointment is in July, and I'm hoping to convince her to let me stay off the drugs (my decision, but I want her support).

    I have to say that not taking the meds has not relieved me of anxiety. I still take Xanax twice a day for anxiety attacks. It's been three years and I thought my mind would be in a more positive place by now, but it's just not. I'm trying my best not to let myself be haunted by it, but it's hard. And it just sucks.

    suems - I'm so sorry you are in this situation and my prayers are with you. Just so you know, a lot of psychologists/psychiatrists will diagnose people with an "adjustment disorder" because it's a "milder" diagnosis that could apply to adjusting to any type of change in your life. They do this, I think, to keep your mental health records as "clean" as possible. PTSD is a major disorder that will follow you in a database for the rest of your life. Even though you weren't officially diagnosed with it, your counselor may still be treating you for it. You should ask at your next appointment for more clarification. Again, I'm so sorry.

    Hugs and love to all of you.

  • Brutersmom
    Brutersmom Member Posts: 563
    edited May 2017

    Katiegrey, You have been though a lot. You need time to recover and time to recover from the Als. I think being on Als delays emotional recovery. I hope thing continue to get better.

  • Micmel
    Micmel Member Posts: 9,450
    edited May 2017

    Katie~Please don't be too hard on yourself! I've had one of the hardest days knowing that Friday I have to scan after six months. I am a wreck. My blood pressure is elevated and I can honestly say I may just lose my mind tonight! I think cancer may be one of the cruelest things anyone can experience, and I realize there are other awful sickness and disease,that is specifically why I say one of. It's just mean and the fear and terror that comes along with it, is just un bearable, no wonder people loose weight and cannot eat. This will make anyone feel defeated with everything you attempt because mentally and emotionally it's draining and it never ends. never. It's something that never leaves you,never get to take a Mind break, and no one else understands unless they have gone through it and truly know the feelings associated with the waving of emotions that consume. I was seconds from a mental combustion earlier and if it wasn't for a dear friend who came to pick me up today and took me out with her on some errands I don't know what I would have done. Nothing has gone right since this awful diagnosis and I don't even know who I am anymore, I have a very low threshold for things going wrong or any additional stress in my life it drives you mad. The treatments, the questions of progression we cannot control. The fatigue, the heat flashes, the joint aches and pains that are most certainly cancer. Other things were. I've just had enough. And I realize. I have no choice if I have had enough or not. That's just not an option anymore. For me, for some of us. It's pathetic how at the mention of three words. Sends you into a wormhole you just can't get out of. I really hate you cancer. Keeping all close in prayer. ~M~

  • gkbuser
    gkbuser Member Posts: 348
    edited June 2018

    katie, how are you doing now? I feel like I cruised through surgery and radiation only to crash and burn a year and a half later! I am also on zoladex and tend to blame that. MD doesnt agree but can I ask if things got better when you went off the shots?

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