Mirena IUD?

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  • Tresjoli2
    Tresjoli2 Member Posts: 868
    edited November 2015

    I do not have Mirena in, but when I could no longer take the pill, I went to see my OB about whether it made sense. He told me forget it...no way. The reason is that I have to take tamoxifen, which can cause uterine cancer. One sign of cancer is irregular bleeding. But a Mirena can also cause irregular bleeding. He told me he didn't want to be doing unnecessary biopsies and putting me through worry just because he couldn't tell if irregular bleeding was from the Mirena or because something else was going on in my uTerus. HTH

  • tanyarocks30
    tanyarocks30 Member Posts: 68
    edited January 2016

    I got a mirena iud 2 years ago or so. diagnosed with atypical hyperplasica/high dcis risk in November. I have strong family history as well as so my risk was already high. with all my previous health issues etc not ONE of my doctors has mentioned my iud being an issue. and I have many lol. will I ask again, of course.

    my obgyn is away for a week, left voicemail for surgical oncologist and I have a family doc appointment this Friday. it should be interesting to see what the 3 answers are. I can't go on the pill b/c of my age and heart issues. I went with mirena b/c menstrual flow was crazy (towels, change 20 mins) and my rheumatoid arthritis flares crazy. so, if I can't have my iud anymore what flipping options do I have????

    I am not having a good day lol

  • Frill
    Frill Member Posts: 311
    edited August 2016

    reviving this thread to see if this is still happening. After I had LCIS DX, I got switched to Mirena IUD. Then got ER+/PR+ LC. I've answered the question 100 times that I have a Mirena IUD. No one has blinked an eye and I'm at a major cancer research hospital now. What is going on? I've had this thing in more than a year and contacted my gyn onc yesterday about a different problem connected to it - I think.

    One more thing to put in the worry sack, I guess

  • Rayna_666
    Rayna_666 Member Posts: 24
    edited November 2016

    I was on Ortho Cyclen from age 15 up until I was diagnosed with triple negative idc in April 2016. I know in most cases a woman goes into early menopause on the chemo I had, but I wanted to be sure I wouldn't get pregnant. My oncologist recommended Mirena. I love it. No issues at all. I know my oncologist ran it by the board and everyone said it was fine. I go to a major University Hospital as well.

  • Natashamummyofboys
    Natashamummyofboys Member Posts: 10
    edited December 2016

    i know this was posted yonks ago but i just came across it while googling if the mirena can cause swollen lymph nodes,i found some people have had swollen nodes and the mirena but none (yet) to my extent,i have about 20odd palpable nodes from groin,axillary and neck to which made me go in panic mode as i had a abnormal smear to which iv just had treatment for and 4weeks ago my axillary ones decided make an appearence too then 3weeks after that a lump in my Lbreast (which is not a LN) im waiting off a call from breast surgion tomoz to hopefully have it removed as he done a blind biopsy but results was not enough cells. It will be interesting to know now iv had my coil removed (due to having a lletz) to see if my nodes go away and hopefully the coil has caused a b9 lump in breast too. Im glad iv had it removed even of good results,i dont want to risk anything. This was my 2nd coil,first one was a dream,this time how ever none stop bleeding/spotting,headaches,sore breasts.i agree with a lot of ladies if the hormones stay down there then how come we suffer with these side affects no where near?!

    Good luck and health to you al

  • Knitpig
    Knitpig Member Posts: 42
    edited May 2017

    My son was born at the end of 2014 and I had Mirena installed in January of 2015. I was diagnosed in January of 2017 with a 4+cm mass of DCIS and IDC

    The first oncologist I saw told me I could leave it in. I had it removed because I believe it was at least partially responsible for the tumor I had removed. I"m not usually big on anecdotal evidence but it does seem suspicious that so many younger women are being diagnosed with cancer after having this device.



  • Lovemy3kids
    Lovemy3kids Member Posts: 16
    edited June 2018

    my ob/gyn told me that there was no scientific evidence that the mirena caused my BC however my Oncologist said to get it removed (I only had it for 4 weeks it was my “new” one after my 5year one expired) I kept it in the entire time I went through chemo. As soon as chemo was over I had it removed.

    Since I was ER+ and PR + and HER2 + I wanted to eliminate anything that might have fed my cancer. The mirena has progesterone so I wanted it out.


    I am now 3 weeks on tamoxifen. I was 41 when diagnosed I just turned 42 and also have young kids

  • TwinkleCat
    TwinkleCat Member Posts: 85
    edited July 2018

    I know this is a way old thread -- maybe we should start a fresh one? Anyway... I ran across this one searching for "Mirena" -- I was just diagnosed yesterday, and was wondering whether I will need to have my Mirena removed. We are still awaiting pathology on the receptors -- but if my tumor is PR+, I can't imagine they'd want to leave the Mirena in? I am 41, and I love my Mirena -- this is my third one. I'm one of the few that have continued to get my periods with Mirena -- but they are very very light. I took about a 3-year break between my 1st and 2nd Mirena -- decided after the break that I was done having heavy periods!

  • Lula73
    Lula73 Member Posts: 1,824
    edited July 2018

    PR+ and synthetic systemic progesterone don’t mix. The amount of progesterine mirena emits is very low and vastly stays local in the uterus (Mom-systemic). The latest studies state mirena is good to keep in if you’re going to do tamoxifen therapy as mirena helps reduce the amount of uterine lining thickening and seems to have a protective effect when it comes to uterine cancer developing which is one of the risks of being on tamoxifen. My GYN said mine had to go, but my MO firmly stated that it stays due to this reason.


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