waiting...worrying...waiting...worrying

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kangcongrl
kangcongrl Member Posts: 13
edited July 2018 in Not Diagnosed But Worried

I like to think I'm the kind of person that doesn't worry to much about things beyond my control... my mother has always had a lot of health issues and I always repeat" don't worry, don't put the added stress on yourself"  and here I am waiting and worrying.

on 5/29/18 I went for a  3D mammogram screening and received the call back, they scheduled me for the next day to come in, but my doctors office was closed and they could not get the referral letter and rescheduled me for 6/7, so I impatiently waited the weekend and now I only have one more day to go, but it is driving me nuts.

44 year female   my report reads that I have heterogeneously dense breast 

under findings: the left cc view there is a rounded asymmetry with associated architectural distortion in the posterior left breast. it is suspected that this corresponds to an area of asymmetry at approximately the 3 o'clock position. recommend spot compression tomographic images and ultrasound is necessary. no other suspicious mass or microcalcification are identified in either breast.

I'm a little nervous because I have a pretty good sized indentation (about the size of a half dollar now) that appears when I raise or move my arm in a forward motion. I didn't mention the indent to my new doc or mammo tech because I was told by family doc once it looked like it could be cellulite, so I figured since I'm older and have a couple pounds on me since then that that is the reason why it looks bigger because I am... but now I'm starting to think the indent has something to do with this architectural distortion... am I just reading to much google... should I be a little nervous...am I crazy.... arrrr. I guess I need reassurance, I know the chances of BC are slim so why these emotions? Anyway, I guess I just needed to tell someone

thanks for letting me share.


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  • djmammo
    djmammo Member Posts: 2,939
    edited June 2018

    kangcongrl

    Does the indentation correspond in location to the finding on the mammogram?

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  • Lea7777
    Lea7777 Member Posts: 274
    edited June 2018

    , I know the chances of BC are slim so why these emotions? Your emotions are typical of what we all have gone through. Just human nature.

    Anyway, I guess I just needed to tell someone One of the purposes of this place. Whatever your particular situation at the moment, there are others who can offer info or hope.

    Best wishes and the odds are with you.

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  • kangcongrl
    kangcongrl Member Posts: 13
    edited June 2018

    yes it does

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  • kangcongrl
    kangcongrl Member Posts: 13
    edited June 2018

    yes it does, the indentation is left of the nipple of the left breast only.

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  • kangcongrl
    kangcongrl Member Posts: 13
    edited June 2018

    just got out from follow up, now more waiting... never been a patient person so this is a learning experience for sure! Being scheduled for a biopsy so happy that they are doing what needs to be done.

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  • Georgia1
    Georgia1 Member Posts: 1,321
    edited June 2018

    Hi there. Yep, the waiting is definitely the most annoying part! It's an emergency to us but not to the doctors since breast cancer, which you may not even have, is generally slow growing. It can take a week or more to get your biopsy results so try to keep busy with other things in the meantime.

    Your emotions are totally normal and I hope you'll come back to check in with us.

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  • kangcongrl
    kangcongrl Member Posts: 13
    edited June 2018

    thanks lea7777 and georgia1... had a pretty good emotional break down yesterday but now I'm back on track and to my normal routine, which is good and keeping me off dr.google and focused on my work...

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  • KWilli
    KWilli Member Posts: 114
    edited June 2018

    I’m in the same boat kangcongrl. Waiting. Worrying.

    I found a lump on my right breast while in the shower. I had a mammogram and ultrasound done Friday and my results are that deep within the right breast at 12 o’clock there is Ann irregular hypoechoic solid mass, at least 4.1 x 1.7 cm. There are multiple pleomorphic type calcifications. Findings are highly suspicious for breast neoplasm. BI-RADS 5.

    I have a biopsy on the 14th (a whole week)! Freaking out while trying to “stay positive”....

    Trying to stay busy. My kids, 8 and 11, make it easier.

    When is your biopsy scheduled? Keep us posted!

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  • kangcongrl
    kangcongrl Member Posts: 13
    edited June 2018

    KWilli I wish I knew the right words to say... i have spent the last few days feeling down but realized this morning that all this worrying is doing more harm than good, so I really enjoyed having my mind back and focused on other things today!

    Sorry to hear your playing the waiting game also, those young ones at home will definitely help keep your mind off the wait.

    Won't be scheduled until Monday because the person in charge of that is on vacation....hopefully they can get me in sometime next week.

    Hoping for the best...For both of us!...for all of us!!

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  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Good luck next week. Keeping my fingers cross.

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  • KWilli
    KWilli Member Posts: 114
    edited June 2018

    the weekend is here! Woohoo! Lots of things to occupy my mind; painting our room, gardening, to name a few.

    I bought a sunflower yesterday. It’s beautiful and vibrant. I am hopeful and I wish everyone a peaceful state of mind as we wait.

    Thank you for your thoughts; I keep all of you in mine. XO

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  • hopedreams
    hopedreams Member Posts: 85
    edited June 2018

    HI LADIES IN WAITING ..I ALSO AM RIGHT NOW.. HAD SURGICAL BIOPSY ON MY" GOOD BREAST" A FEW DAYS AGO.. HAD 3 SUSPICIOUS AREAS. NOW WAITING FOR THE PATH REPORT..BOOB IS STILL SORE..BUT I EXPECTED THAT. IS NORMAL.. I CANT FOCUS ON DOING ANYTHING AT ALL.. EXCEPT I KEEP RESEARCHING..BUT MY GUT IS TELLING ME IT'S DCIS AGAIN . WAS FOUND ON MY YRLY MAMMO & U/SOUND. YES I AM HALF NUTS NOW.. I SHOULD HAVE RESULTS SOME TIME THIS COMING WEEK..GOOD LUCK TO ALL OF U.. HUGS HOPE *** THEN I KNOW ALL THAT WILL FOLLOW IF IT IS CANCER.& YES..I WANT A MASTECTOMY WITH AN IMPLANT..LIKE I DID IN THE PAST. I CAN NOT DO RADS DUE TO SKIN ISSUES..

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  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Hopedreams,

    I am so sorry to hear you are going though this again. I hope it is nothing. Prayers for you.

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  • KWilli
    KWilli Member Posts: 114
    edited June 2018

    Hopedreams, I’m sorry to hear that you’re going through everything again. It stinks. Waiting is definitely the WORST! Sending lots of positive thoughts and hope your way. Keep us posted.

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  • kangcongrl
    kangcongrl Member Posts: 13
    edited June 2018

    Made it through the weekend!!! I am a potter and had a festival this weekend that kept me busy and my mind focused. Kwilli, sounds like you had a lot of activities planned too, hope you got that room painted!

    Hopedreams my heart goes out to you. Prayers... keep us posted

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  • KWilli
    KWilli Member Posts: 114
    edited June 2018

    kangcongrl, have you heard anything about when your appointment is?

    Pottery seems like it would be soothing; getting your hands into something gooey and earthy! Love it; maybe I need a new hobby!

    Hopedreams, how are you holding up?


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  • kangcongrl
    kangcongrl Member Posts: 13
    edited June 2018

    It has taken what seems like forever for the docs to get paperwork to the right people, but finally this morning I got a date, the 21st...Sucks, but waited this long so what is another 9 days!  I get a little emotional the more I have to wait, but I truly feel that everything is going to be normal... I don't have that horrible feeling that something is wrong... so i'm continuing with my normal routine with a couple extra glasses of wine thrown in there until the 21st!

    KWilli, just a couple more days for you! how are you doing?

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  • KWilli
    KWilli Member Posts: 114
    edited June 2018

    The 21st seems like a long way off; I hope it goes quickly for you.

    The closer I get, the more nervous I am getting. I have that sinking feeling, the “knowing”. It’s 5% I’m hoping for. It’s more like I’m just going to find out what kind and what stage....


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  • Shellshell69
    Shellshell69 Member Posts: 44
    edited June 2018

    kwill please have some hope....if this helps I did the same in fact today I was feeling the same way...I just knew it is cancer and am waiting for the call to find out how bad and what test is next but I also have that part of me that is saying I do not have cancer and I am gonna be OK ...I think its a rollercoaster and jerky jerky one at that.I had found out I had my lump on may 9th and just had my biopsy yesterday over a month of waiting....

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  • KWilli
    KWilli Member Posts: 114
    edited June 2018

    shellshell69; I truly hope you receive b9 results. Waiting sucks for all of us. Thank you for your support, it's awesome. Fingers crossed for you!

    Today I am spending my time outside on a farm with my son and his Grade1/2 class. It's going to amazing! Waiting is less painful when you have the company of a bunch of 6 & 7 year olds!


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  • Shellshell69
    Shellshell69 Member Posts: 44
    edited June 2018

    Kwill I have a 7 year old son his last day of school was last week... He is my world and I look at him and appreciate him even more since all this started ....he for sure keeps me busy and that's a good thing as of lately have fun today!!

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  • DTR808
    DTR808 Member Posts: 34
    edited June 2018

    hi everyone - on medical leave (bmx 6 wks ago) and have lots of time in my hands so just perusing the boards and saw the thread here.

    I know that waiting is so very hard, but pls try to stay positive! There’s no good that comes from worrying yourself sick over things that are out of your control. Just know that even if your results come back positive, breast cancer is very treatable and in most cases, is caught early so keep that in mind. In most cases though, biopsies come back negative...so I’m hoping and praying for that for all of you!

    Go out there and enjoy today! :)

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  • kangcongrl
    kangcongrl Member Posts: 13
    edited June 2018

    Got appointment yesterday for my biopsy with the radiologist who did diagnostic mammography and US... he seemed pretty adamant he should be one to perform biopsy, but this morning my doc office called me and said that they highly advise that I go to the breast center and that my doc knows I already made appt with radiologist but wanted to tell me again to go to breast center... so this call has put a little more fear into me.

    I called breast center and am going tomorrow to get a second opinion I guess, figured I would keep my biopsy appt but getting another set of eyes on it cant hurt.

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  • KWilli
    KWilli Member Posts: 114
    edited June 2018

    Kangcongrl, it’s so frustrating when the professionals give you cryptic messages. I think you’re smart to do both; it’s going to give you extra peace of mind. Til then, get to throwing some clay!

    DTR808, thank you for your wise words. I was talking to a friend today who used the phrase “don’t borrow trouble”. I like it.

    The farm was fun! Lots of wee baby animals.

    shellshell69, squeeze that little boy! Keep us posted on your results.

    Hopedreams; have you heard anything yet??

    XO


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  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    second opinion is good and maybe the breast center can do the biopsy sooner. I met with couple of surgeons and went with the one my obgyn told me to go with

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  • DTR808
    DTR808 Member Posts: 34
    edited June 2018

    kwilli - love that -“don’t borrow trouble”. :)

    Am hoping all goes well with your biopsy tomorrow. I remember all too well how nerve racking my biopsy daywas as well as the days I had to wait for my results. Hang in there, stay calm and think positive!

    Sending you all that are waiting warm wishes and good vibes.

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  • kangcongrl
    kangcongrl Member Posts: 13
    edited June 2018

    Kwilli, how did biopsy go?

    I had a horrible day... went to breast surgeon and he confirmed that things aren't looking so good and I had the right to feel worried, he said I should have stereotactic biopsy and that he could do it tomorrow. I was feeling nervous but happy that he could get to it right away... but then 45 minutes later they called and come to find out they are not in network with my insurance...REALLY

    What a roller coaster, now I'm debating on going through this again with another doc that is actually in network or just let the radiologist do it. Arrrrrrr

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  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Go with a doctor in network. He/she will know other doctors in the network and you will need a team of doctors if something happens. You have enough to worry and you don't need the additional financial burden.

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  • KWilli
    KWilli Member Posts: 114
    edited June 2018

    Kangcongrl; I’m sorry to hear your frustrations with doctor issues. I’m in Canada and unfamiliar with your health care system but I think nonomimi5 has given you some good guidance.

    Biopsy was alright; they took 6-7 samples as the first few weren’t great. I have “extremely dense breast tissue”. The doc said it’s more than likely that I’m going to need surgery. There was only one very borderline lymph node, in really deep; he said he didn’t feel it wasn’t important enough to go after it. I read a post by DJMammo about lymph nodes (cortical thickness measurements) and the ultrasound report. I’m going to review mine to make sure I have the information.

    My next appointment is with a surgeon, to review biopsy results and next steps. Guess I am part of the club no one really wants to be in :(

    Thank you for your support everyone.

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  • nrioffe
    nrioffe Member Posts: 12
    edited June 2018

    I was recently diagnosed so I understand the emotional Rollercoaster.

    Thankfully where I live i had 3 core biopsies performed within a day and results given to me within 24 hours. I had mammo guided, CT guided and ultrasound guided core biopsies. I had stage 1 and DCIS all on left breast.


    Definitely get the right biopsy and hopefully you get answers soon! Playing the waiting game is no fun!









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