Questioning myself and my decisions

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Justkeepmoving
Justkeepmoving Member Posts: 106

thank you so much to the board for being here for me to put this all out anonymously - I'm a little overwhelmed sometimes

I was hoping to have a second opinion and that is just getting difficult with my work schedule and I think I'm just shutting down and want to pretend everything is fine.

My surgery is scheduled and there is a delay in getting all of the surgeons organized and together and I'm worried about the delay.

The MRI suggested that there is no lymph node involvement and the biopsy stated that the area biopsied was all DCIS but I didn't have the other areas not biopsied and now I'm worried. And I don't know how fast this is growing but it's high grade and I've had this lump for a while. But it's happening and the day will be here soon and it will all be over. I hope I'm not jumping the gun in an effort to just get this over with - I hope I'm making good decisions.

Sorry for babbling - I'm grateful it's just DCIS as far as we know but I just want this done. I don't even have a stupid question right now. I don't even know what to do. Just put one foot in front of the other. I went to court today and am getting child support now so that is good and a weight off of my shoulders. The dates work out great in terms of childcare. I don't know what I'm freaking out about

Comments

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Justkeepmoving,

    You caught it at an early Stage so you're on top of it. You can cure this no matter what the outcome may be. Good for you to get your private life organized and prepare for what is coming. Good luck and be strong. We are here for you.

  • kaywrite
    kaywrite Member Posts: 219
    edited June 2018

    justkeepmoving - welcome to this forum, it is most certainly a safe place for you to unload. I've done it plenty of times myself. I was diagnosed with DCIS in December last year, got the great news (sarcasm) while on Christmas holiday, and returned home to what felt like a runaway train of decision-making that I felt completely unprepared for. Two surgeries and 21 radiation treatments later, I can breathe. It was a rough, bewildering time. What you are feeling is normal.

    Some things I wish I'd known in advance: every oncology department has a social worker. The social worker wants to help you find support, both volunteer (peer partner) and professional (counselor, therapist). Find your social worker and let him/her help you. I did not know about mine until very late in my journey, and I feel so much better with her support now. Surround yourself with people who are emotionally positive - gently set aside negative or over-worriers in your life: they mean well, but you should not spend your time convincing people you will be ok. Let people help - it makes them feel good, too.

    nonomimi is right - if you're going to be diagnosed, DCIS is good bad news. You have caught the cancer before it becomes invasive. That is something positive to hold on to.

    You might want to check out the May surgery group here, it includes both lumpectomy and mastectomy:

    https://community.breastcancer.org/forum/91/topics...


    I know it's June, but everyone sticks together and there is some great info there. And sisterhood. Introduce yourself. I think you'll feel surrounded by compassionate people very quickly. When it's time for radiation - if that's in the equation for you - there is a forum for that, too!

    Good luck and keep in touch.


    Kay

  • LAstar
    LAstar Member Posts: 1,574
    edited June 2018

    Waiting is the worst! It's hard not to worry. Shutting down is your body's way of telling you to take a break from it all. If you can, get some exercise and get outside to clear your head and feel strong in your body. Spending time with my daughter was my best medicine -- she helped take my mind off things and also remind me why I was prepared to do what it takes to deal with this. You get to feel all the feels, regardless of the stage and prognosis. There is a lot of relief when the surgery is done and the cancer is OUT. Right now everything is in what-if world. After the surgery, you have information. Be kind and patient with yourself. Have the big cry and make space for the big laugh. It will be a rollercoaster for a while, but life is pretty sweet on the other side of this. This is when your stage makes a difference -- I think it's a little easier to move on afterward because our prognosis is so good. I'm over 6 years out from diagnosis and I'm back to good ol' normal life full of busy-ness and productivity and thankfulness. Best wishes!

  • Justkeepmoving
    Justkeepmoving Member Posts: 106
    edited June 2018

    thank you everyone

    I'm accepting that this is happening. Some things I read say DCIS is not cancer and most likely won't turn into anything --- But then I remind myself that mine was described as high grade and there is a sizable lump and there are other spots. Ok - I'm having this done. Why do I feel like whining and complaining so much? It could be SO MUCH worse. I'm going to do this and get over it and move o

  • GAMomma
    GAMomma Member Posts: 197
    edited June 2018

    Justkeepmoving... justthinkabouthealing....

    I will be honest it took about a year for the magnitude of reality to hit me. I was misdiagnosed,or mistreated? I dunno,they screwed up my biopsy..lol I too had DCIS grade 3, with the highest grade of everything. Due to 1 of the masses,3 total, lymph node involvement was unknown. It was December 31st,my husband's bday,the same day we found out our 2 yr old cat also had cancer,my sister was in a car wreck-900 miles away.. I kept my cancer a secret for almost a week. I could ruin my husband bday,change my kids grief(I have 5-yes I have lost my mind,and my boobs 😉). I pondered nightly how my life would play out. I denied my sadness,the stress,the facts. I.HAD.CANCER.

    Damn it sucked. I breastfed all my kids,for what? Healthy kids and cancer... Screw you statics and mother nature,you can all bite me. Now I have this satisfying middle finger towards all of them,but in 2017,I was numb.

    It went from a second Mammo to no breasts in a matter of 2 months. I really was in a state of shock. Of course then I didn't know. I was getting thru each day,just to get thru the next. I didn't realize how naked cancer made you feel. I felt bare all the time. I do not mean the amount of people who actually see you naked. I have never been.modest,especially after given birth 5 times. But it was a bare bones to my core naked. It was...lonely. my kids and husband tried to be there but it's not that easy. It's a mental lonely. Maybe because my body was changed.. maybe because I went from helpful to helpless. I was the healer,not the one who needed help. Transforming into that change was hard,still is.

    In the small book of a post my point is what you are feeling now is all part of the diagnosis,the treatment,and the healing and recovery. They all have a part and a time. Accept it,live in it and let it all progress. It will not last forever. In the meanwhile,hang out here,scream,cry,type any question you have. After surgery the only advice I have is.. pillows,pain meds,stool softeners and comfy jammies.

  • GAMomma
    GAMomma Member Posts: 197
    edited June 2018

    Yes it could be worse,you could be a man,you could be a millionaire,you could be..undiagnosed. that is where could be is.. why do you want to whine so much? It's called trying to convince yourself that this is real,this is happening and this IS your current situation,this is how you are surviving. It's okay to whine. It's also okay to be pissed. Frig you all those shower breast exams,screw you all those health shakes,skipped desserts,yoga classes,non drinking parties.. even if you didn't or did do those cancer don't care. Everything in your life is preparing you for the next session. This may not be to prepare you.. maybe this is a lesson in communication, a lesson for your family to see how valuable you are. It's not punishment, although ,trust me,it's feels like it. Please vent here, it is safe. Free of judgement, full of love and support.

  • Justkeepmoving
    Justkeepmoving Member Posts: 106
    edited June 2018

    yes!! Yes! It's that! I'm trying to convince myself that this isn't happening. And things could be worse but things could have also just gone along without all of this crap. Life isn't fair - but I really do feel like I've hit the lottery in having such a great prognosis (fingers crossed).

    I have such supportive friends and my boyfriend has been amazingly supportive (I couldn't have asked for a better man). I'm trying so hard to not whine or complain but he listens and calmly supports me with what I decided to do -- pointing out the logic and how everything is going to be ok.

    I'm getting there....

    Thank you so much for your replies. It hit a nerve - you get it. And I'm going to be ok

  • GAMomma
    GAMomma Member Posts: 197
    edited June 2018

    I will be honest,I give better advice for others then myself. I am so the type of person who takes problems. I am.. nothing is a problem,I'm fine,I'm grateful for my minimal diagnosis,surgery only,things could be worse...

    But, it is ok to not be okay. It's okay to cry every time you re read pathology reports. It's okay to ask why me? Why not the mean girl from High School? Sadness,anger,more sadness are all expected and ok to have. Nobody gets a super girl cape if you survive cancer without tears.

    I fought so many emotions to avoid feeling..anything... it hit me in November as anxiety. I had a constant sit stomach,no sleeping.

    Allow yourself to feel. It will help you healing. CANCER is more mental then physical. Hugs!!

  • janky
    janky Member Posts: 500
    edited June 2018

    Sisters - what a fantastic forum this is - thank you!! Cancer, no matter what stage, is a B---h! (rhymes with witch ;) ) yet we manage to carry on and focus on life's important moments. Yes we need to scream, whine and wonder why/how, all of which help convince us that this is indeed real. These forums are an amazing place for support, advice and information, hugs and healing everyone!!

  • Puzzlewoman
    Puzzlewoman Member Posts: 171
    edited June 2018

    I am still having these thoughts - am I doing everything right? It’s so frustrating! Sending you happy thoughts.

  • Mc16
    Mc16 Member Posts: 10
    edited June 2018

    Wow you are all writing the thoughts I can’t quite put together! DCIS large and grade 3, dmx.

    The only thing I can add is I’ve always thought this would take a year to find some lasting balance. This is what I cling to!


    Hugs to everyone

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