Biopsy friday 5/18

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Comments

  • hollywood1968
    hollywood1968 Member Posts: 45
    edited May 2018

    Thanks everyone.

  • nohistory
    nohistory Member Posts: 7
    edited May 2018

    Hollywood, your scenario sounds very much like mine. The radiologist that did my ultrasound told me I had cancer right then. I searched around to see how often they are right or even make this prediction. Most everything I read confirmed that a good radiologist has a pretty good idea of what they are seeing but my radiologist did say there is always a chance she is wrong. Hopefully she will be wrong about you.

    Staylynn, the day I made my appt with the surgeon, they told me they would see me the next week. They called a couple of hours later and said they could fit me in the next day (yesterday). I wouldn't let that freak you out. I think they try to fit us in as soon as possible for peace of mind that we are on a path to recovery and not in a holding pattern anymore.

    I was trying to schedule with multiple surgeons and get different opinions, but that wound up not working out. I like who I met with yesterday and she was recommended to me by several different people. Here is what I know from the consult, the smaller of my 2 lumps is more aggressive, but neither is overly aggressive. They both have hormone positive receptors so I will start on hormone therapy once all this is done. Because I have rather small breasts and 2 lumps, I am facing a full mastectomy. I have really dense breast tissue and it's hard to get a really good look at. I am having an MRI next week to get a better look at the other breast to make sure it is ok and other areas as well. After the MRI, I will meet with a reconstructive surgeon. He and my oncology surgeon will work together during the mastectomy. There are 2 different procedures they can recommend for the reconstruction, but I need to find out about the MRI before I really start thinking which I am a better candidate for.

    I have a son going into eight grade and a daughter that will be a senior in HS next year. I am waiting until their exams are over to tell them. With this being the summer before my daughter's senior year, we had plans to visit colleges and a big family vacation planned. I was really worried none of this would happen. My surgeon said I can take June and do all these things and schedule surgery just as soon as I get back from vacation. This is my ray of light. I really wanted this time with the family and now we can do it. My husband just started a new job last week (new insurance problems in the middle of all of this) and it's hard for him to not be at my appointments. My aunt is able to be with me though and she has had many breast surgeries in the past for various complications. I worry about how the rest of my family will deal with this. My mother is really having a hard time with it. She's never had cancer, doesn't drive, gets very anxious about everything, and can't come to any of my appointments. I have to watch what I say to her.

    I'm joking with my husband about finally having bigger breast because of the reconstruction, but it really freaks me out that I am loosing an entire breast. I haven't quite worked up the never to research the recovery for a mastectomy and reconstructive surgery.

    Cindmd, I feel for you having to tell your adult daughters, especially the one about to give birth. I think when your kids are older and understand more, they may worry more.

    I am praying for all of you!


  • Staylynn
    Staylynn Member Posts: 44
    edited May 2018

    NoHistory, thank you for your insight and keeping us posted on your journey. I have been thinking about you. My son is only 7 so I'm not really sure how to even start talking to him about this but have a large family that is close by and on board to keep him as busy as possible this summer. I have started telling my family and few close friends but want to keep it under wraps since I don't have a plan yet. My mother on the other hand I think wants to put up a billboard. I love my mother, but with her being a breast cancer survivor she is blaming herself and "wanting to get the word out there." WOW mom pump the brakes! I get it I just need time to deal with this before we alert the presses. I will let you know how

  • kmartin3243
    kmartin3243 Member Posts: 108
    edited May 2018

    Staylynn


    We are all thinking about you, and hope that this process will go as smoothly as possible. Please keep us updated. I hope that you have a good appointment with your surgeon.



  • hollywood1968
    hollywood1968 Member Posts: 45
    edited May 2018

    my kids are all grown. 26,25 and 23. I have told them what it could be. They all live very close as does my husbands whole family. We have been married 28 years this July. My husband is driving me to the biopsy appointment as I type. Wish me luck. Praying for you al

  • Staylynn
    Staylynn Member Posts: 44
    edited May 2018

    Hollywood good luck today. Sending positive vibes your way for a painless procedure and quick results. <

  • Cindymb
    Cindymb Member Posts: 206
    edited May 2018

    Hollywood19, praying and thinking of you.

    Cindy

  • hollywood1968
    hollywood1968 Member Posts: 45
    edited May 2018

    And the panic attacks will continue. Could not do biopsy because I was taking xeralto for a clot after a procedure. Dr and ultrasound tech did ultrasound, almost 100% sure it is cancer 6cm mass and can only see 1 lymph node involved. Tuesday biopsy at 8. Referred t o an additional dr who prescribe the drugs. Will have another US and ct and mri next week hopefully get final say on st stage al

  • Staylynn
    Staylynn Member Posts: 44
    edited May 2018

    Hollywood, I will be thinking about you.

    Update: I went to my appt on Thursday and still waiting for "complete" pathology results. They did blood tests: normal labs as I haven't had any done in years, and sent eh genetic testing which will take 2-4 weeks for results. So this far I know I have cancer and it's grade 3 highly aggressive, but no staging, no other information. I'm starting to get frustrated to put it lightly. I did get scheduled for nother appt next week so, Tuesday MRI, Wednesday oncology, and Thursday breast surgeon. I also did have a coverdsation with my 7 yr old after he kept asking if I was ok, I had been trying to shield him from this until I know more of a plan and until was out of school, but he was picking up on more than I thought. I explain what I could at the level that he can undersatand it went better than expected. I am more than grateful Thant I have a large family that can keep I'm occupied also h

  • hollywood1968
    hollywood1968 Member Posts: 45
    edited May 2018

    Staylynn sounds like our week will be very similar. I had an aunt post on my Facebook page how sorry she was to hear about my breast cancer. I immediately deleted it. Who does that? Even though I have told my family I wasn't ready for a public announcement! My kids are aware of whats going on, they have handled it okay. Good luck next week I am thinking of you!


  • Frenchiegal83
    Frenchiegal83 Member Posts: 49
    edited May 2018

    Thinking about all of you. Staylynn hope the appointments go well next week and you get more answers instead of more questions. Nohistory I'm sorry that you're going through this, I know exactly what you mean about having a mother who gets anxious about anything and everything. I tried talking to my mom about it but she immediately stuck her head in the sand and blew off what I was telling her so the less she knows the better b/c it'll just tick me off with her trying to decrease the stress of the situation. Hollywood I'm so sorry they're delaying & you're having panic attacks, I hope you get answers next week! My biopsies are scheduled for the 13th, I read the reports and I'm only concerned about one of them, the others don't look/read as suspicious (at least to me )

    Thinking positive thoughts and hoping for the best (or best case in these situations)

  • Clockhart88
    Clockhart88 Member Posts: 1
    edited May 2018

    So I'm playing the waiting game, too, but not quite as bad as you all. I found a lump in my left breast 2 weeks ago (3 weeks after my annual exam where the doc did not notice anything). I called the OB, another doctor in the practice saw me right away and sent me for a mammogram (my first ever) and an ultrasound. The lump was 1.4 cm in my left breast and they also found two smooth, smaller ones in my right breast. The radiologist was only worried about the larger one because it was irregularly shaped. I went back on Friday to have a biopsy, and I should have the results Tuesday or Weds due to the holiday.

    I'm surprised to hear that some say it's cancer after the mammogram/ultrasound. Is it normal for them to divulge that type of info before the biopsy? Maybe my doc was just more conservative? I'm also wondering what type of info they will give me if what I have is cancer. Should I brush up on my acronyms? I'm not sure what any of it means. They're supposed to call me, and I'm sure it will be while I'm at work...and my husband is out of town this week. Fun times.

    By the way, I just turned 40. My paternal grandmother lost her battle with breast cancer, my father lost his battle with glioblastoma and my grandfather lost his with lung cancer (could've prevented that one). My mother, grandmother and cousin have all had benign tumors removed from their breasts. Not sure what that does to my odds.


  • Lif8ntez1970
    Lif8ntez1970 Member Posts: 5
    edited May 2018

    So I am new here.....had my US on Friday, was told by radiologist that he was sure I had cancer...because of the holiday they will call on tuesday to set up appointment for biopsy. I have to have 4 places and a lymph node biopsied. Can a radiologist tell these things? I kinda feel like he knew what he was talking about...and they spent about 2 hours going over every inch of my breast. I felt like someone knocked the breath out of me....and now I just kinda feel...numb....I pray for everyone here, all this is new to me and I am one scared lady.My anxiety is out the roof. One minute Im ok.....the next minute Im in tears. The waiting and not knowing for sure is gonna be hard.

  • Lea7777
    Lea7777 Member Posts: 274
    edited May 2018

    Lif8ntez1970, so sorry this is how you are spending your long weekend. I had a radiologist tell me he was sure it was cancer too. A different radiologist gave it Birads 5 (90% cancer). Can you get the Birads # from your medical records? You'll know by Tues anyway. Mine was not cancer, just cells that are high risk for cancer. Wishing you the best of luck and peace until you find out.

    Wishing the other posters on this thread a favorable outcome, whether it is the pathology report or successful treatment. Not a fun way to start the summer. I am sorry.


  • nohistory
    nohistory Member Posts: 7
    edited May 2018

    Today I meet with the reconstructive surgeon and on Friday I have my MRI. It seems a little backwards to me, but I'm glad all the doctor's offices are calling me to schedule these appointments and I don't have to worry about who to call when. I'm not sure how much of a difference my MRI will make. I have to have a mastectomy on my left breast and I think the MRI will probably confirm that I will have a double mastectomy. I'm not well endowed and have extremely dense breast tissue. From what I have been reading, it seems the majority of women in my position have a double mastectomy. Will they be able to see anything about the lymph nodes during the MRI? I know they do that die injecting thing during surgery, but I was wondering if they get a feel for it beforehand. I've been told if it's not in my lymph nodes (with a mastectomy), I won't need radiation and chemo isn't in my plan at all at this point.

    My kids are finally out of school and done with finals tomorrow, so we will finally tell them what is going on.

    Sending prayers and hugs to everyone!

  • hollywood1968
    hollywood1968 Member Posts: 45
    edited May 2018

    Had biopsy yesterday, was just going to be node but then she decided to do the tumor also. 5 samples. More nerve wracking than painful, aliittle sore today. I get the results from the doctor today. She said to call her after 4pm today. I have an MRI Friday and an appointment with another doctor who will prescribe the meds. Nervous but think just know will be a relief

  • Staylynn
    Staylynn Member Posts: 44
    edited May 2018

    I am starting to get very frustrated. I was told my appts for this week would be: Tuesday- MRI, Wednesday- Oncologist, Thursday- breast surgeon so we would have a complete plan and picture by the end of this week. I went to my oncology appt today and was told that an Oncotype DX now needed to be done on the biopsy sample which can take up to 5-10 business days. The oncologist informed me that the cancer has grown from 1.1 cm on ultrasound on 5/18 to 2.8 cm on MRI on 5/29. She also mentioned a cyst in my right breast "that they have been following for 2 years" which is news to me. I am so BEYOND frustrated and angry. If the cancer has grown that much why are we waiting so long, and where was I when this "benign looking cyst" was ever discussed before. I have an appt with the surgeon tomoorrow where i have a list of questions, which number 1 is about transferring records for a second opinion. I am I trying to stay calm but easier said than done.

  • Cindymb
    Cindymb Member Posts: 206
    edited May 2018

    Staylynn, I would be upset about that as well. 2 years?? Why would they never mention it before. What is the Oncotype test? I'm so sorry you are going through all of the difficulties. As if the diagnosis alone isn't stressful enough....

    Lif8ntez197, How are you doing?

  • Peacetoallcuzweneedit
    Peacetoallcuzweneedit Member Posts: 233
    edited May 2018

    Hi Ladies.....I know the beginning is soooooo very stressful, fearful, and anxiety ridden....it was a year ago June 1st I had my DMX. A year ago at this time, I was a ball of nerves...could not process too many words at once..was just hanging on....and doing pre-op. Staylynn breathe if you can....between diagnosis and surgery is typically about 6wks. As test results come in, things change and yes ultrasound and MRIs can show different measures. The oncotype is important and it might change some treatment paths - I had calcifications for 2yrs and cysts I was not told about as well. I received a letter that I had dense breast tissue and "all normal see you next year." I should have gotten a copy of the radiology report from my mammogram, and I would have see the Bi-Rads score plus findings. I educate women now, but I did not know it then. I am also in health care but breast health was not my specialty....however after this previous year it has climbed the ladder. BUT what I have come to realize is that I would have been in watch and wait mode for the coming years anyway. My 6cm non-palpable mass appeared within a year on my mammogram. I would say if you are leaning towards getting a second opinion, get one. I did a second, and gosh a fourth and fifth before my hysterectomy. Hang on ladies, I am sending positive thoughts and healing your way!

  • Staylynn
    Staylynn Member Posts: 44
    edited June 2018

    Peacetoallcuzweneedit, thank you so much for sharing your advice and experience. After meeting with the surgeon last week I am trying to have more patience as I know these results will give a better picture. The breast surgeon also made me feel more at ease because she talks to me a human being, not a diagnosis or patient number. I am trying to get to my "normal" schedule as much as possible and enjoy time before this all starts.

  • nohistory
    nohistory Member Posts: 7
    edited June 2018

    I had my MRI Friday. They said they would call with the results on Monday, but they called an hour and a half later and left a message for me to return their call. What they gave me to calm my nerves didn't really kick in until I was home so I missed the call and it was after hours before I realized it. I'm nervous that they called so soon and didn't indicate everything was as expected. I've called the office this morning and am waiting on a return call. Waiting sucks....

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Praying for all of you to have good news. I feel for you. I was in your shoes 3 months ago, and I am a different person today. We get though it and everything will be fine. Take a deep breath.

    Mimi

  • nohistory
    nohistory Member Posts: 7
    edited June 2018

    Biopsy revealed a lump in the other breast. I have another ultrasound with the surgeon next Wed. She will decide if it needs to be biopsied at that time. I thought after breast surgery, we would know right away about radiation and lymph nodes. I just found out from a friend that had surgery on Fri that her results today were on the cusp and the material will be sent away for analysis and she won't know about radiation for another 2 or so weeks. Tick..tick..tick


  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Yes. Everything takes a while and you start over worrying about the results. After the surgery, they send it out to be biopsied and also to Oncotype DX to see the recurrence rate. If it is low (mine was 17 and low) you skip chemo and do radiation. If it is high, you need to do chemo. It is a long process.

  • Staylynn
    Staylynn Member Posts: 44
    edited June 2018

    So update, this week has been a whirlwind of activity. I received a call from my MO on 6/6 stating that the Oncotype test could not be performed as there was not enough sample, so she wanted me to come in for an appt. In the appt we discuss starting chemotherapy prior to surgery, low dose chemo with infusions every 3 weeks for 4 doses. I had my goserelin injected and appointment for chemo to start June 11. I was waiting to have blood work done on 6/7 and get a phone call from my MO that there has been a change to my treatment plan that we will be starting high dose chemo of infusions every 2 weeks x4 doses, then weekly x 12 doses. I now am scheduled for port to be placed 6/11 and 1st chemo 6/14! I'm glad to have a plan, but already allittle overwhelmed. Then surger planned for after.

  • nonomimi5
    nonomimi5 Member Posts: 434
    edited June 2018

    Hi Staylynn,

    That is weird you didn't have enough sample for the Oncotype. Either way, I believe they are taking an aggressive approach because you are Grade 3 and so young. Have confidence in the process and I will be praying for you. Good luck

  • Staylynn
    Staylynn Member Posts: 44
    edited June 2018

    nonomimi5 thank you so much.

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