44m just diagnosed

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Avh112
Avh112 Member Posts: 26
edited June 2018 in Just Diagnosed

I am out of town for work and just got the news. Trying to find a flight home to digest the news. I felt a lump months ago and the doctor sent me to get ultra sound. The radiologist told me everything looked fine and it was probably a cyst. I had a strange feeling about it so I had my doctor remove the lump from my nipple. I didn’t know men could get breast cancer so I found this Forum and started reading and got lots of great info. I’m young, no family history and feel healthy so didn’t think this could happened. Today I got the news that the biopsy showed some cancer when he removed the lump. Don’t know much beyond that at this point as I’m trying to schedule an appointment with a specialists. I’m super emotional and distraught so sorry for my crazy questions.

Things that are going through my mind? Did we catch it very early since ultrasound didn’t show anything? Will I be able to live a normal life? Can I continue to work? What will change in my life? What questions should I be asking the doctors? What’s next for me

Comments

  • CarolAnnieLumpLump
    CarolAnnieLumpLump Member Posts: 89
    edited June 2018

    I am so sorry to hear of your diagnosis but am glad you found this site. There are is a lot of great support and information here as you said. Try to stay away from google and look for your information here. All cancer is treatable. keep that in mind as you process what you have learned about your lump. Surely, your doctor will have more information for you and walk you through the next steps. Focus on getting home where you feel more comfortable and can gather your support group to help you get going on the next steps. I am only a few paces ahead of you since I found out about my cancer on Tuesday. I am still waiting for results on the hormone status of mine. The waiting is the worst. Keep us posted on your progress.

  • DATNY
    DATNY Member Posts: 358
    edited June 2018

    Perhaps you could send some of the tissue extracted for a second opinion pathology. The fact that he saw a cyst raises some suspicion.

  • Egads007
    Egads007 Member Posts: 1,603
    edited June 2018

    Hi and welcome Avh, very sorry about the diagnosis. The beginning of the process is such an upheaval. You will feel much better once you get a treatment plan in place, it gives us a sense of control. You're most likely to be first referred to a surgeon, then a medical oncologist and possibly a radiation specialist if radiation is required. Once you get info on your cancer be sure to post... the members here are a wealth of Infoand support. Your questions are anything but crazy, they are pretty much the norm. The changes you'll experience depends on you and how you choose to deal with it all, again we're here to help you through. I for one know that a normal life Is very much possible. MANY members here maintain careers, raise families and carry on with life per usual, and MANY do so during treatment. This community of ours has a very rich cross section of every type of person and situation...you'll find out just how normal life goes on after cancer. This isn't a death sentence, please keep that in mind. This is the most stressful time for you but it will get better when you've had time to process. Reach out here as often as you want. Sending peaceful vibes your way.

  • Avh112
    Avh112 Member Posts: 26
    edited June 2018

    what I know so far is that it was 7mm which is pretty small so I hope that is a good sign. As I mentioned earlier the ultrasound didn’t pick up anything but I know it doesn’t mean there isn’t anything there. My doctor also used the term ER positive which I’m not sure what that means. I trying to get schedule with a specialist to figure out the staging.

    Anyone know how long it takes them to figure out the staging ?

  • Egads007
    Egads007 Member Posts: 1,603
    edited June 2018

    ER positive (ER+ on the threads here) means that your tumor receives signals from estrogen that could promote its growth (feeds off estrogen). Yup, guys have estrogen too. This means you might be a candidate for a anti-hormonal medication after treatment, depending on what percentage of ER+ you are. Usual protocols would have you on these meds anywhere from 5-10 years (daily pill). There can be bothersome side effects however I have noticed that the men here at BCO don't seem to suffer the side effects as the ladies do. Some have none. It's an individual result.

    Staging generally includes an MRI (to determine how far the cancer has gone, and to find any lymph nodes might be involved), a chest xray, abdominal ultrasound, a bone scan and possible further ultrasound if necessary. Your exact stage will not be completely determined until the lump is removed and final pathology is done. This all takes time, so be prepared for a bit of a drawn out process. It's all vital in getting the appropriate treatment that is best for you. I'm hoping it moves quickly for you as it has for some lucky folks here.

    Write all your questions down so that when you meet with your surgeon or medical oncologist you'll be prepared. Sometimes it can be overwhelming so you may want to bring someone along to make sure your questions are answered.

    Edited to add: Here are a few links that may help:


    http://www.breastcancer.org/symptoms/diagnosis/hormone_status

    http://www.breastcancer.org/symptoms/diagnosis/staging

  • Avh112
    Avh112 Member Posts: 26
    edited June 2018

    I got a copy of my pathology report so would love to see if anyone would make sense of it. I don’t see the doctor till next week so it’s gonna drive me nuts all weekend


    Tumor Type: invasive ductal carcinoma

    Margins: less than 1mm to excision

    Size of invasive tumor: .7cm

    Nottingham grade. 2(of3)

    Sbr score. 6/9 points

    Tubules. 3points

    Nuclei. 2points

    Mitosis. 1pojnt


    Prognostic markers

    Estrogen receptor positive 90% 3plus (Allred 8/8)

    Progesterone receptor positive 50% 3 plus

    Ki67. Low 5-10%

    HER2-neu. Negative predominately 0 plus


    Ck7. Positive

    Gcdfp15 positive

    Mammaglobin negative

    P63. Negative

    Ck5/6. Negative

    Ck20. Negative


    If anyone knows how to read this and can somehow figure out any good or bad signs please let me know. I rather have it straight than sugar coated. Thank you in advance

  • beach2beach
    beach2beach Member Posts: 996
    edited June 2018

    I am not a dr or any type of specialist, just a fellow BC person. From the way I read it, I believe you are Stage 1, Grade 2. Hormone positive so in women they typically prescribe Tamoxifen in pre-menopausal women or aromatase inhibitors for post menopausal women after whatever options they choose, lumpectomy, mastectomy. Her2 neg is good also. I am not sure if and what they may prescribe for men. Low KI67 and Mitosis, which is good, means the cells are slow growing. In other words, its early stage. Did you have a biopsy or you had the complete lump removed?

    There are much more knowledgeable posters on here, and hopefully if I am wrong, someone will correct me.

    Sorry you have had to join us here. There are other men here and hopefully they will chime in soon.

  • Avh112
    Avh112 Member Posts: 26
    edited June 2018

    I had the lump removed and they did a biopsy on the lump which is what found the cancer. As I stated earlier the ultrasound didn’t identify anything and the radiologist told me to just come back in 6 months so thankfully I went ahead with the biopsy.

    I’m hoping I am early stage 1. Really hoping I can avoid chemo but I’m sure I’m going to have to go through something.


    The part that concerned me was the grade 2. The tubules coming in at a 3 seems like a bad thing

  • Traveltext
    Traveltext Member Posts: 2,089
    edited June 2018

    Avh112 is in PM conversation with me. He's awaiting more info on his diagnosis and potential treatment.


  • Avh112
    Avh112 Member Posts: 26
    edited June 2018

    anyone know the significance of being ck7 positive and ck20 negative

  • Avh112
    Avh112 Member Posts: 26
    edited June 2018

    had my first appointment with my doctor today. Sent me to get a mammogram which came out clean. Next is MRI on Wednesday. As of now he believes it is luminary A and he framed it as a less aggressive form of BC. He believes it isn’t stage 1 unless something shows up in mri. He said it was my choice between lumpectomy and rads or mesectomy. I think tamoxifen either way.


    At this point not sure what to think. I guess all things considered it was good news but MRI is next hurdle.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited June 2018

    Yes, this is excellent news. I've never met a bc guy who's had a lumpectomy, but this may well be possible for you since the tumor has been removed now. Ask about the margins of the results for the biopsy, since this will help you decide your future treatment.

    Either way, if you just have an op and tamoxifen, you may be very lucky to get away with such light treatment.

    Keep us posted.


  • Avh112
    Avh112 Member Posts: 26
    edited June 2018

    I was surprised that he wasn’t pushing the mastectomy also. It’s early so he still might. Does anyone know someone with male BC that did NOT get a mesectomy? But rather just radiation and termoxifen

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