Bone mets sisters I could use your thoughts here!

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CIW
CIW Member Posts: 76
edited June 2018 in Just Diagnosed With a Recurrence or Metastasis

How sensitive have your bone mets been to CT scans and X rays? I've had pain consistent with bone mets in my left hip and left lower back since about November. I cannot get an MRI bc I still have my expander. My oncologist thinks it's suspicious because of how persistent and focused the pain has been, but is not overly worried because I finished chemo in Feb. Anyway, just wanted to know all of y’all’s experience with CT scans and bone mets since my CT scan came back clear. The pain has gotten a tad worse in my low back lately and I’m starting to lose some feeling in my leg/foot. The hip pain has just been persistent and constant. Often worse at night or with sitting and certain movements. Thoughts?

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  • illimae
    illimae Member Posts: 5,710
    edited June 2018

    My bone met was seen on my initial staging CT, a biopsy was done to confirm. As far as I know, the CT is very good at identifying them but for additional questions, you may get more responses by posting to the stage IV questions or Bone Mets threads. Good luck 🙂

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  • LoriCA
    LoriCA Member Posts: 923
    edited June 2018

    I have extensive bone mets that weren't spotted on CT or bone scan, it wasn't until we did a PET/CT that they were discovered (which we did to confirm suspected mets on my liver), and my follow-up scans are almost always PET/CT. There is another woman on the forum who also had a clear bone scan and her extensive bone mets were only spotted with a PET scan, so I guess it's not that unusual. I think a PET/CT is an option for you if your doctor will approve it. I know that many doctors think a PET is overkill without a really good reason for doing it (and you might have a hard time getting insurance approval).

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