FEMARA

Options
1322323325327328352

Comments

  • moodyblues
    moodyblues Member Posts: 470
    edited May 2018

    Clynnejohn5.  I am on Letrozole and that hasn't happened to me.

  • Nancy618
    Nancy618 Member Posts: 374
    edited June 2018

    Clynnejohn5, I had the shin pain in Arimidex. On Femara, I'm having more muscle discomfort than bone. Sharp, aching pains in my thighs and buttocks and stiff shoulders.


  • Tkane10
    Tkane10 Member Posts: 22
    edited June 2018

    I have been on femara for almost a month now. The foot pain is off the charts. Anyone have any suggestions that helped with this? My joint pain isbearable once I started taking liquid coll

  • Clynnejohn505
    Clynnejohn505 Member Posts: 22
    edited June 2018

    Thank you for the replies. My shin pain comes and goes but the joint pain seems to be worse with the constant rain here on the east coast. I’m refilling my femara tomorrow and hoping the side effects lessen as I’m on it longer.

    Tkane10 I get foot pain too. Like something has crushed my foot. Hot baths and/or heating pad helps me.

  • gkbuser
    gkbuser Member Posts: 348
    edited June 2018

    This might be a dumb question but here I go. Does anybody know do cancer cells have like a life cycle? I mean, if there happened to be a few rogue cells in our body and we deny them the estrogen they need to grow then will they eventually die out? Or do they just hang out and wait for us to go off our anti estrogen meds and then start growing again?

  • Clynnejohn505
    Clynnejohn505 Member Posts: 22
    edited June 2018

    gkbuser that’s a good question. My understanding is that the frequency of my chemotherapy (every 3 weeks) was based upon breaking the cell cycle. Higher stage means I was more likely to have micro metastasis (undetectable by today’s testing). However, there can still be breast cells that can be activated by estrogen. If it happened once it can happen again.So the anti-hormonal meds block the cell receptor sites of breast cancer cells that estrogen binds to keeps it from happening again. Hope that makes sense!

  • Nancy618
    Nancy618 Member Posts: 374
    edited June 2018

    For my aches and pains, I make a 1% dilution of hemp seed essential oil and Copaiba in unscented lotion. I had some CBD oil that I tried sublingually that made me hyper, so I added half a dropper in the lotion too. Helps to get rid of the pain overnight for me.

  • Nancy618
    Nancy618 Member Posts: 374
    edited June 2018

    For my aches and pains, I make a 1% dilution of hemp seed essential oil and Copaiba in unscented lotion. I had some CBD oil that I tried sublingually that made me hyper, so I added half a dropper in the lotion too. Helps to get rid of the pain overnight for me.

  • gkbuser
    gkbuser Member Posts: 348
    edited June 2018

    nancy, I see that you have been on several aromatase inhibitors. Was it side effects? What is cocalba lotion? You just rub it on your back or what?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2018

    I'm 5 months in with letrozole, and my joint pain has been mostly hands, knees, and feet. What really works for me is a hot bath with Epsom salts, then rubbing a CBD balm onto the sore joints right after the bath. I am also taking a joint support supplement that is a blend of turmeric and glucosamine chondroitin.

  • Nancy618
    Nancy618 Member Posts: 374
    edited June 2018

    I changed AIs because of side effects, yes. My MO led me to believe that there would be one that wouldn't have any or at least fewer than the others. I've had side effects with all of them. Giving Femara a try again.

    Copaiba is an essential oil. I use it with hemp essential oil diluted in unscented lotion. NEVER use essential oils without diluting. No more than 5%. Before using any essential oils, check out some reputable websites to learn more about them. I recommend Edens Garden oils. Lots of info on their site. And they promote safe usage, unlike some other popular EO companies



  • Nancy618
    Nancy618 Member Posts: 374
    edited June 2018

    Kiki what brand of CBD balm do you use? I add some to my lotion and it does work.

    I take turmeric capsules. Seems to be helping.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2018

    Nancy, I use "Plus" brand. The balm I like is PlusCBDoil Balm, 100 mg.

    I started using the balm and taking the supplement at the same time, a couple months ago. Maybe I could experiment and see if one or the other alone helps, but I feel so much better, I'd rather not mess with success!



  • Nancy618
    Nancy618 Member Posts: 374
    edited June 2018

    Kiki I can't use the liquid that I bought. It was a stimulant for me and I wasn't sleeping. Using the lotion I made from it in my legs and hips before bed helps me sleep better than I've slept in a very long time.




  • adymaria
    adymaria Member Posts: 37
    edited June 2018

    This past Friday, my onc's nurse said I should start taking Famara. However my first ovarian suppression shot (zoladex) is not until this afternoon. I keep reading online and also on femaras website that femara should not be taken before complete ovarian suppression. I also remember my onc telling me the same thing at a consultation and her handwritten notes say famara 1 month after zoladex. Which would make sense because I read that zoladex does not start working for 3 weeks. It's bothering me why she would change her mind and give to me before ovarian suppression when that is advised against. I've read on several reputable sites that taking it before ovarian suppression will cause the ovaries to make more estrogen. Off topic but I was never told to get a dental clearance before my first chemo. Ive learned that this is highly recommended. Both of these things make me wonder if precautions are being taken to ensure that I have the highest chance for a successful treatment. It's bothers me and makes me wonder if I'm just a number. What do you all think? Thanks

  • moodyblues
    moodyblues Member Posts: 470
    edited June 2018

    Adykort, I would call the office and double check because sometimes they do miss things.  Be sure to be very detailed in your question because it seems to me that sometimes when they take a message, they only get part of the information that you give.  Just sayin"

  • HoneyBeaw
    HoneyBeaw Member Posts: 212
    edited June 2018

    The joint Pain I can manage. Its the weight gain that is getting me. It seems no matter what I do I keep gaining weight and have only been taking it about 15 mts, by the time I hit 5yrs I will not make it through the door . No exercise or diet control seems to help. I also notice stomach bloat much more now then ever before . Does anyone here have the same issues with weight and bloat

  • Leydi
    Leydi Member Posts: 146
    edited June 2018

    Honeybeaw- Weight gain is a serious concern for me too. I am currently "maintaining" by intermittent fasting - 23 hour fasts four to five days a week. Simply stated, I eat one meal a day most days.

    This is quite a change from my time in chemo when I had to eat five times a day to keep from losing too much weight and the doctor kept sending the nutritionist to talk to me.

  • dtad
    dtad Member Posts: 2,323
    edited June 2018

    Hi everyone...seems like so many have an issue with weight gain and exercising while on aromatase inhibitors. It just seems contradictory to me since weight loss and regular exercise has been shown to lower recurrence rates by 40 percent. Obviously doing both would be the most beneficial but seems like very few can maintain that. We need better treatment options!

  • Nancy618
    Nancy618 Member Posts: 374
    edited June 2018

    This is off topic but I don't know where to pose the question.

    I had a partial mastectomy and radiation. Between the two, I have only half a breast. 😀

    I have been wearing sports bras since the surgery, but they are no longer comfortable and they ride up on the smaller side.

    Anyone have a recommendation for a comfortable bra and what I do for the non filled cup?

  • Lula73
    Lula73 Member Posts: 1,824
    edited June 2018

    Hanes makes a stretchy short cami style bra that’s very comfy. And since it’s stretchy it conforms to your unique shape. It literally looks like a cutoff camisole. I got it at Belks.

  • 2FUN
    2FUN Member Posts: 956
    edited June 2018

    look at www.curediva.com.


    They had some nice stuff. When I just had a lumpectomy I went to a local masectomy boutique and they fit me with a bra with a pocket.

    Soma intimates in the mall does masectomy bra fitting too.

    I'm not a big Walmart person, but they had a lot of bras like Lula mentioned. Also, jcpenny has some similar things.

    I ended up with a MX and implant, so im.sorry I can't help!


    I think there is a bra topic on this board. Im.sure u will find info there

  • ItsStillMe
    ItsStillMe Member Posts: 61
    edited June 2018

    Check with your insurance company. Mine covers prosthetics and brasbut I have to go to a specific provider.

  • Clynnejohn505
    Clynnejohn505 Member Posts: 22
    edited June 2018

    I had a lumpectomy too and radiation. I was told the affected breast would get smaller. Well no. I ended up with lymphedema in my breast! So it’s bigger! Anyway my Physical therapist gave me this website for what’s called a swell spot to compress my breast. I’m getting 2 to try and even myself out. Maybe it will even you out too and help your bras stay put! Might be cheaper to try this before getting all new bras. Here’s the website:


    http://www.lymphedemaproducts.com/products/breast-swell-spot.html

  • Novmoon
    Novmoon Member Posts: 77
    edited June 2018

    HELP. My pharmacy (Kroger) tells me they are unable to supply me with Teva and substituted Breckinridge instead. I asked if I could at least have Accord, but unable to refill my script with that either. I checked with CVS and Publix and same story. Is there a Teva shortage or somewhere else I should check.

    Teva is tolerable for me and had worse SE with Accord with hot flashes, joint pain and insomnia. Start the breckinridge tomorrow unless I can find the Teva.

    Thanks!!!

  • Taco1946
    Taco1946 Member Posts: 645
    edited June 2018

    There was discussion several months ago that Teva was going to quit manufacturing arimedex but I hadn't heard that they were doing the same thing with femara although it sort of makes sense if they are going to quit manufacturing one AI, they might quit on another. I got my generic Accord refiled from Walgreens about a month ago. You might try there. Some people have been able to get an insurance override for the original medication rather than the generic with the help of their MO. I'm certainly convinced that the manufacturer can make a difference. I was paying a fortune in co-pays for a seizure medication that my neurologist absolutely wouldn't write for generic. He was able to switch me to something else several years ago and doesn't worry about the fillers at all.

    I've managed to lose the 5 lbs. I gained from the steroids but can't seem to get much more off although I have upped my exercising/walking. Just today primary put me on metformin because I was borderline diabetic (my father had insulin dependent type 2 diabetes so we have watched it pretty carefully). I had read on one thread (don't remember which one) and my primary confirmed that many have less joint pain with the metformin (and I do hope I will lose a few more pounds). Honeybeau, have you talked to MO? Mine said to call her before my 6 month check if I was either losing or gaining a lot.

  • Lula73
    Lula73 Member Posts: 1,824
    edited June 2018

    If you've not tried the Breckinridge brand before, you may consider just purchasing a week's worth of it to see if you develop different/worse SEs. This could be a blessing in disguise...

  • Nancy618
    Nancy618 Member Posts: 374
    edited June 2018

    Thanks for the suggestions for bras. I do think something longer like a half cami would work.

    I am getting Accord letrozole. I remember that that brand caused more SEs when I was taking Arimidex. But so far, the SEs on Letrozole this time aren't as bad. Or else I have figured out what to do to lessen them.

  • gkbuser
    gkbuser Member Posts: 348
    edited June 2018

    novmoon, if it makes you feel any better my Pharmacy was recently bought out by another company. I had been on the Accord brand of letrozole up until that point. With the new Pharmacy buy out they are going to start using Breckenridge. I was a little concerned but had a lot of side effects on the Accord. So, the pharacist agreed to fill it with 30 days of the Breckenridge to see how I did. I've been doing much better on the Breckenridge so far. So, I agree maybe a blessing in disguise.

Categories