Newly diagnosed-but not worried...Am I crazy??
Hello everyone,
First off thank you to all for having this forum it has been very helpful to me looking up information on the diagnosis that I received 3 days after my 44th birthday... (May 15th, 2018)
I know the diagnosis is a horrible thing but for some reason my brain is just not wrapping around the whole "you need and should be scared about this "YOU HAVE BREAST CANCER" but I'm not...is that weird? Is it weird that i am not worried am I not normal by not being worried? I truly feel deep in my soul that everything will be ok the next year or so will be tough and will have some rough patches ahead but I truly believe that everything will ok and I will make it through all of this...
I know there are stages that everyone goes through to cope with different things in their lives and I have certainly been though many trying times but have always come through as a stronger woman in the long run.
Are there other women like me that have felt this way?? Am I only kidding myself and when it does finally hit me I am going to fall in some deep hole I cannot get out of??? So much information has been sent my way in the last few weeks but again I feel truly ok with all of it...I have taken complete control of the reigns and I will continue to drive to the very end of this crud until it is completely gone!
I am hoping that there are others out there like me that have these same feelings and I am not alone..
Thank you to everyone for your insights
Cheryl
Comments
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I was upset when I found out, but deep down I also believed everything would be okay. There are hard days, but overall I do believe it will be fine and that in some ways the diagnosis has been a gift to help me recenter and refocus.
Maybe it’s because I’ve seen my mother recover from two different cancers. And I’ve seen a close friend through the process too.
Best wishes to you
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Everyone responds differently to their diagnosis; there is no one generic response. Some breast cancer patients struggle with surgery; others hate chemo and/or radiation; some find hormonal therapy to be challenging. Meanwhile, some sail right through treatment and then emotionally fall off the cliff later. You never know.
Frankly, I think your response is a healthy response. Early stage breast cancer is highly treatable; it is not a death sentence. You probably will be OK.
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You are not alone. I think it all comes down to your personality. Does this mean you wont have down, weepy moments? No, you likely will at some point. But nothing says they have to last a long time or be constant. I had a nice 30 minute fit just after finding out over the unfairness of it all for my parents who have seen me through 3 other cancers, my DH who has seen me through 2 of those 3 previous cancers & whose mom had some horrific experiences during her BC fight & whose dad succumbed to pancreatic cancer, my younger son who shouldn't have to deal with the stress of having a sick mom (his best friend's grandmothers were both diagnosed a couple months before me and he was really torn up and stressed out over it), my sweet little granddaughter who loves playing with her Mimi and who I want to be around for. One giant fit all by myself in my shower and bathroom. I cried, I screamed at the unfairness, I threw lots of things. Then I turned off the water, dried off, got dressed, cleaned up the mess, pulled my big girl panties up and started planing my next steps. DH keeps saying he knows I'm going to break down and he's there for me...I keep telling him, I'm good and I mean it. Wallowing in emotions does not help me focus on moving forward. It sounds like you might be the same. Hang in there and keep us posted. We're all here for you to offer support and advice if you need/want it.
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Thank you Lula!!
Our lives have been a whirl wind since April this year my hubby and I found out that his uncle who has been battling lung cancer for a long 3 year stint was told he only had a couple of weeks to live then while waiting on that phone call I received a call from family telling me that one of my last uncles was in hospice care due to a short battle with colon cancer and he passed on April 14th so after hearing that I ended up getting sick with walking pneumonia and was down for two weeks then on April 16th we got the call that my hubbies uncle passed with his lung cancer then that following Monday my little man Yoda (Jack Russell terrier) passed suddenly with an aortic antiserum and that was such a hard day he was only 7 (he would have been 8 on May 2nd) and we had hoped that all of the bad news was finally over but oh no not so fast...we received a call on May 4th that my hubbies grandmother passed away as well then i got the news of the cancer diagnosis so it's been just a crazy world for us so far this year so I don't know if it has anything to do with all of that and my brain is just saying well it is what it is now lets just take this one step at a time do what the doctor's tell me to do so that we can move past all of this bad mojo that is going on?? I know that i am a tough lady I always have been and will consider myself to always be but man what a heck of a year it has been already...but again like you I have made the choice/decision to grab the bull by the horns and control this sucker because in the long run i KNOW I WILL BE THE WINNER IN THIS RACE
Yea that's a whirl wind, maybe i should write a book lol
Thanks again for the support I need strong women to keep me in the place I am now!!
xoxo Cheryl~
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Hi I have seen so many tough times in my life that when I received the news of my BC diagnosis it did not shattered my world. I just took it as another thorn in my life .But I have to admit that rest of the struggles were mental and BC is a physical struggle .May be when the treatment starts I am going to break down . But BC gave me a gift. It revealed the emotional side of my husband who was always loving but never sentimental .Now I want to recover for him Luckily my boys handled it well The younger one who is 15 year old told me if it is breast cancer early stage I do not need to worry as BC has the best prognosis. I was amazed by his knowledge and composure. We live in Brisbane He has his grade 12 exam this year. I am happy to see that he did not lose his focus towards studies even after knowing his mothers diagnosis
So let us all count our blessings and do our best to get well soon for our families
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Dhanno~ I completely agree with you!! My hubby is my rock he keeps me grounded! My daughter was upset when I told her but she said you are my mom and are the strongest and bravest woman I know you/we will get through this no matter what
I am so glad your boys did well and good luck to your senior I am sure he will do great on his exams!!
Cheryl~
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thanks Elaine I just know I will be ok....my hubby tells me that when/if i lose my hair we will just be twins (he shaves his head lol)
Always have to keep smiling and laughing as often as humanly possible that will help us get through the worst yet to come....
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Cheryl, welcome. And you are not crazy. Another member started a thread recently on this very topic. I believe it’s been dubbed “The stoics club”. You’re welcome to join us over on that thread too!
https://community.breastcancer.org/forum/62/topics/864125?page=5#post_5215942
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hi Cheryl. I’m 6 years out, started tx in July. Had much the same ‘tude as you. Didn’t fall into a deep hole either. Some do, it’s not gonna be a fun year for you. But doable.
See you’re in hot humid Florida. The best thing I had after my hair fell out was a baseball type cap. So my scalp didn’t sunburn. Most insurance companies will pay for a wig, too hot and itchy to wear.
What part of Fl are you in
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I've seen more and more members coming forward with the same attitude toward diagnosis...concerned but not freaked out. I'm one of them too. I was relieved to finally get answers and into treatment. I will admit that waiting for yearly test results now plays a bit heavily in my mind, but otherwise I pretty much take it in stride. At diagnosis, I was also a single parent of a teenager and couldn't afford to fall apart. Where I do have a noticeable reaction is when I have to go to medical appointments at the hospital. I feel strangely uncomfortable going into the building. The smell and sounds take me back 4.5 years and I can't wait to get out of the building and get on with life. Have to love PSTD lol. On a daily basis I don'tmuch think about it and prefer to move on from the whole debacle. Maybe thats denial, but I really don't feel a life shattering impact. Bodes me well, always a good thing.
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I don’t think you’re weird or crazy. Everyone reacts differently; I was a complete basket case. Intuition and positivity plays a huge role.. if your intuition says that you will beat this, and you go forth with a positive attitude all while listening to your docs (and your intuition) during treatment, you are way ahead of the game. Best wishes.
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Cherylf...
If you are crazy, then I must be too ! My reaction was similar to yours. I just went about my day as if nothing had changed. Then I questioned myself, why was I not freaking out like I should be. Since my dx (Apr25th) it has been so hectic. I have 3 Dr appts this week, and will be starting Radiation June 12th, so day after you start Chemo. I'm trying to stay positive through this whole thing, and looking ahead to the future! I believe this will only make me stronger.. Best of luck to you! 🤗Cyn
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Cheryl,
I, too, never cried nor got too worried...shocked and speachless at first, but I did not fall apart. At each step I just got into the warrior mode and aggressively tried to fix and do whatever it was I needed to do. The only time I got teary is when the surgeon told me until I get my Oncotype DX report, she did not know if I needed chemo or not. If I had to do chemo, I would not be able to take my son to college visits and to his sport showcases this summer. He has worked his whole life for this moment and not being able to take him was my biggest concern. I think down inside I knew what I have is curable and everything was going to be ok. I am blessed and I did not need chemo and I qualified for the accelerated radiation of 16 sessions so I will finish the treatments before our summer plans.
I think you know in your heart, you are going to be fine,
Mimi
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By the time I was diagnosed, I had gotten the panic out of my system.
I did the first part of my worrying after getting the "focal asymmetry" message the day after my routine annual screenin mammo. I'd had decades of normal mammos, so it was a shock to hear something was wrong. I worried even more after the ultrasound came back BIRADS 4b and I was told I'd need a biopsy--but since I was going out of town the very next day (for 2 wks) I didn't have the necessary time to discontinue my baby aspirin and fish oil (which are blood thinners). Those two weeks were the longest of my life--I was in New Orleans & Scranton for a continuing legal ed course and gigs (I'm a musician) and my brain kept running around like a crazed rabbit between having to be in the moment and "80% of biopsies are benign...but the report said 'suspicious for cancer'...what if I have cancer?....I might have cancer...OMG, I have cancer--what's next...lather, rinse, repeat..." In the interim, when we got to Scranton, we found the venue had no record of our booking and I was furious--I could have gone home right after the course was over (instead of spending 2 extra days in NOLA before flying to Philadelphia so my singing partner could pick me up) and had my biopsy a week earlier. When I finally got my diagnosis--the evening of the day after my biopsy--I felt my stomach drop when I heard "invasive ductal...grade 2." But then I felt a sense of relief that a major stressor of uncertainty was behind me. Next morning when I found out its hormone & HER2 status, I felt calmer--now I knew what I was dealing with and immediately went into planning and self-education mode.
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Hi Cherylf: Speaking for myself, I don't think you're crazy or even that unusual. When I got the call from my doctor with the news that I had IDC, aside from a little sinking-of-the-stomach, my overall internal reaction was "Huh...how about that. Finally." (Background - I've had 5 previous biopsies, dating back to 1975. I kind of feel like I've been dodging this bullet for 43 years.) My focus since then has been learning as much as I can about whatever the facts of MY cancer happen to be and going from there. It's step by step. I try not to project or worry in advance.
Oh, there may have been some obscenity-muttering in there somewhere, too. I kind of swear like a sailor.
Friends say I have a great attitude or that I'm "brave" but honestly, I'm just "Dealing With It" if you know what I mean. What's the alternative? I tend to be pragmatic and, with the exception of a few low moments (we all have them), my approach has been learn, deal, do what I have to do, and then get on with whatever else I'm doing. Life goes on. I'm grateful that my daughter and my husband have been similar in attitude with a healthy dose of supporting me.
I have no idea where my cancer story will lead, but all I can do is to stay proactive and work with my medical team and hope that I am around as long as possible. In the meantime, there's stuff to do.
By the way, knowing that I COULD have some really low times, while gathering names of oncologists and surgeons and doing my research, I also gathered the names of and researched a couple of good local licensed counselors. Just in case.
There's no right way to react and no wrong way to react. You be you. I'll be me!
Onward!
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I didn’t freak out either frankly because I was already braced for the DX plus I didn’tvwant to scare my youngest so I kept my emotions in check and my game face on. The only time I cried was when my BS’ office called with the results of my Oncotype test. So much was riding on those test results. Fortunately my score was low so I dodged chemo.
I’m a strong person too so my DH just figured I’ll handle it like I do everything else. He’s supportive but not concerned about me falling apart.
I’ll be 7 years out in August.
Diane
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Today was my first appointment with breast surgeon .He has booked me for lumpectomy . He told me most probably he feels I may need chemo . I got the news of my cancer two weeks back .It gave me sufficient time to grieve and recover .
But best part of my visit were the ladies in the waiting room of breast clinic .None of them looked like they were cancer patients .All were relaxed .Some came with husbands. some with kids and some with friends .Even the chemo patients were so cheerful .
The lady sitting next to me had bilateral mastectomy and the surgeon seem to have done a fantastic job .From outside her breasts looked perfect . I even complimented her .
Breast Cancer diagnosis can be devastating and I feel only family support can help a woman get through this journey .
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Hello Dhano,
Can I ask you if you saw your oncologist before your surgeon?
I was just diagnosed with IDC a couple of days ago, and the first appointment I made was with the Oncologist for tomorrow. Now, I am wondering if I should've done the other way around?
Thank you and good luck to you!
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bobby77056 - I was diagnosed with IDC in April and was in a tizzy about who to see first, how to go about coordinating this...fortunately, my PCP and the patient navigator assigned to me by my screening center where I had my MRI as well as my cousin, a breast cancer survivor, advised me that a meeting with my surgeon was the first step. He/she will help you go from there.
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my mother’s MO advised me to see breast surgeons first, and recommended some
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My pcp sent me to surgeon first, who took my case to tumor board. Then met with MO, and eventually the RO. Surgeon ordered all the tests.
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Hi Booby here is Brisbane we see Breast surgeon after the diagnosis .My breast surgeon saw my ultra sound report and did physical examination and proposed lumpectomy .He did not even refer me for MRI He said not required But he did said I may need chemo as my tumour is more than 2 cm .
My brother is an oncologist in Dallas .He told me that chemo is into account only if tumour is above 5 cm .In the past even 1 cm and bigger received chemo but not anymore. Nodes hormone status Her2 and genomics are most important
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Interesting. I felt that way somewhat at the beginning but I think it may be more due that I didn't have a clue. Not. One. Clue. So you go through a process ... remembering that call which confirms biopsy results...tests....more tests.... breast MRI.... liver MRI. Everyone around me sees me as strong and it increases your patience, take a lot of deep breaths, educate yourself, ask a lot of questions and take your journey. Having a good attitude helps but I still have challenging times. I'm thankful for only a lumpectomy and surgery is done but it continues. Sometimes I just want normal and trying to adjust to a new normal.
There is a lot of support here; reach out because you'll probably need it. This changes a lot so I work every day at being happy, thankful and strong. Matter of fact I need to update the radiation MB team support as was struggling with a Savi decision and what a great group!
Prayers and great hopes for everyone who has to battle breast cancer
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Brisbane,
Well, I go see the oncologist tomorrow, and see what it leads me to. It seems like every surgeon I called didn’t have an appt available until July-August! Being in Houston, TX, where we are supposed to have the best medical help at our fingertips, is unbearable.
Maybe the Oncologist gets me in to see a surgeon faster. I’ll just have to wait and see..
I’ll keep ya’ll posted..
Thank you for the responses!
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bobby, the oncologist that referred me was able to use his contacts to get me in sooner. Hope it works for you
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Hi SpookiesMom
I am in the Tampa area born and raised here
I am an original "Florida Cracker" lol
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Hi MiCyn!
Thanks so much for the boost!
had my first chemo last Thursday 15th and it was truly a long stinking day but went off without a hitch...was a bit worn out after being at the hospital all day and didn't get sickness (yet-I know it is cumulative) but I am truly going to stay on top of all of my meds taking them when i am supposed to and doing my best to stay ahead of the game....positive energies coming your way on the radiation...I am really hoping that there won't be a need for that in my case after all over and done...but we shall see then cross that hump if it comes along just like the rest!!
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Hi Mimi,
I am glad you didn't have to do the chemo and will be able to attend your son's college visits I remember when I did that with my daughter it is about them but us as being parents as well knowing that "YES WE DID IT"
I know they do the hard work in class but we are the rocks behind those great acheviements and congrats to you and your son!
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OMGosh Patsy you hit the nail on the head!!
My motto is this "It is what it is" there is nothing I can do to change what has happened all I/we can do is endure the next year and cross paths, bridges, roads, river rapids and probably some mud holes along the way but what ever let's just do it and figure it out!. I too have an amazing husband of the last 28 years and an equally amazing 27 year old daughter that are my rocks on a daily basis! My hubby will reel me back in when I start to slip a bit and my daughter will let me vent then tell me "Mom I love you" and that makes EVERYTHING better to me
So yea we def think alike crazy how much lol
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Hi Bobby,
I actually seen my PCP and he sent me to the best Oncologist here in my area and I also spoke with my surgeon as well when he put in my chemo port on June 1st. When I seen my Oncologist we both decided together that since I had to do chemo regardless if it was before or after surgery I wanted chemo first because I want this crap "DEAD" no more splitting cells not going to give it a chance to move any further than in the 1 lymph node it is already in...
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