Anybody with ocular migraines during chemo??need your help

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NoteRed
NoteRed Member Posts: 86
edited June 2018 in Chemotherapy - Before, During, and After

I had these from 2010 and come and go. I had one during my chemo last friday and one today again during chemo. Onc doesn't seem concerned... did anyone had these????? Anxiety level u

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited May 2018

    checked my brain, went in Botox for migraines. Works like magic...and gets rid of forehead wrinkles too. It is very expensive without insurance but around 300 with, but I meet my deductible and out of pocket each first treatment of H and P. Good luck

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  • Tresjoli2
    Tresjoli2 Member Posts: 868
    edited May 2018

    NoteRed I had them. Very bad. Went to the eye doctor in a panic. When chemo ended they went away completely. Hugs!

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  • NoteRed
    NoteRed Member Posts: 86
    edited May 2018

    beatmom, I ve checked my brain several times since 2010 i had my first one. Last time was before my surgery last February- so thats why my onc didn't suggest a ct scan. Although I will do one with other tests when I finish chemo. The botox maybe a solution but is it for ocular migraines too?

    tresjoli2 thank you you give me hope- I was full of anxiety since they started again... (last time was in 2015

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  • mobscene207
    mobscene207 Member Posts: 44
    edited June 2018

    I have had ocular migraines for years - four or five times a year. I've had two of my 12 weekly Taxol/Herceptin treatments and each time, got an ocular migraine 3-4 days after. At least they are something I am used to dealing with, so they don't freak me out (I am much more disturbed by the stuff that I' not used to, like the nosebleeds that started this weekend!). I can see where they would be really disturbing if you had never had one before!


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