What did you tell your children?

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Justkeepmoving
Justkeepmoving Member Posts: 106

Greetings Ladies :)

This forum is helping me organize my thoughts and I appreciate the feedback.

My diagnosis is DCIS intermediate to high grade ER negative. I have a large area affected plus 2 other areas are lighting up on my MRI. I've decided on bilateral mastectomy (one breast appears healthy on all scans but I've decided to revive both breasts).

I have 2 children: a 13 yo girl and 11 yo boy. I'm divorced from their father but he lives in the same town and he sees them a couple of times a week (but the children live with me).

I haven't told many people about my dx and am unsure what to tell my children. I don't want them to worry about me or have any uncertainty. My prognosis (as you all know) is excellent. This is a small bump in the road. But I think I want to avoid the C word. It sounds too dramatic and too scary. But I also don't want it coming back to them from an outside source. I was planning on saying I have some "bad cells" and am deciding to have this surgery in order to prevent any illness. Ugh - even that sounds bad and scary. I don't want them thinking I can ever get sick. Maybe if I say to prevent any other problems?

Suggestions?



Comments

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited June 2018

    I would maybe just describe it as some areas that could maybe be a problem one day so this is to prevent that. And then let them ask questions. At their ages - they're bound to have a few. It's important to be honest so they don't worry that something is being hidden from them.

    My youngest was 11 when I had my surgery. She was pretty distraught since I had originally planned a lumpectomy. Emphasizing that I would be pretty much the same after reconstruction helped a lot.


  • Moderators
    Moderators Member Posts: 25,912
    edited June 2018

    Hi Justkeepmoving,

    Welcome to the forums!

    We know it can be really difficult to talk to your children about your diagnosis.

    Our main site has compiled a list of helpful ways to approach this that you may find helpful:

    Talking to teens and older children

    We hope this helps!

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited June 2018

    justkeepmoving, I think most thirteen year old girls are more knowledgeable than that and would think you are not being honest with that explanation for a mastectomy. I understand you are trying to protect her, but risk her thinking things are worse than they are by not just being straight forward.

  • VegGal
    VegGal Member Posts: 507
    edited June 2018

    I agree with just telling it like it is. When I was 9, my gram went into the hospital for "bleeding." I figured it out myself that she had uterine cancer. My gram and my mom were very matter of fact about all the treatment and it was much more fascinating to me than scary. I remember going to radiation with her, and giggling about the giant red "target" painted on her bum, and how it stained the toilet seat. When it was all said and done, grandma lived another 30 years and passed from something other than cancer.

    It's far better to just keep things honest and simple with everyone. Good luck with your treatment!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2018

    Children are very, very perceptive and sensitive to what is going on in their households, even if they don't express it. If you try to whitewash things too much, they sense it and their own imaginations will fill in the details, often incorrectly, causing more worry which comes out in all sorts of ways (behavioral, emotional etc.). Your children can handle the truth if presented in an age appropriate manner and with the optimism that your situation seems to warrant. I believe that the American Cancer Society has information on speaking to children about cancer. Children will worry much more if they sense things are being kept from them. Best wishes.

  • ReadyAbout
    ReadyAbout Member Posts: 211
    edited June 2018

    I think it’s better to be straightforward about your diagnosis and upbeat about your prognosis. My own kids, 16 and 19, sensed something was wrong and started texting each other like crazy, fearing the worst. I finally talked to them about my diagnosis and how fortunate I was to. At h it early. Once they learned I wouldn't have chemo, they were fine. I teach 5th and 6th grade and my headmaster sent an email to the parents telling them about my diagnosis. Thekids took it in stride and were very supportive and sweet when I had to miss the last two weeks of school for mastectomy.

  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited June 2018

    I agree that honestly is the best policy. Sadly, I did not take my own advice, and my children ask me to this day why I didn't tell them the truth. It eats me up inside. Here I am preaching to them to always tell the truth, and yet I lied to them.

    I was in such a state of shock and agony/dispair that I told them I was suffering from migraines and that is why I had to keep going back to the doctors. What a fool I was. After my bmx, when I was in recovery with drains coming out of me and not doing my normal household duties, my son (age 11) caught on and asked me point blank to tell him the truth. He knew it had nothing to do with a migraine.

    They are not fools. They know. Your kids are old enough to know and handle the truth. Just say that there is something inside of you that needs to be removed and then possibly treated.


    Best of luck to you.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2018

    rRobin,

    Your post was right on. Beside being a mother and a grandmother, I'm also an elementary school teacher and I've seen kids in all kinds of situations with families who handled what their children knew in different ways. Although still having the normal fears and concerns, kids whose parents were honest usually fared better.

  • Egads007
    Egads007 Member Posts: 1,603
    edited June 2018

    Agree completely with the others...straightforward is the best path. The hardest thing I’ve ever had to do, bar none, was telling my 17 yr old son. I simply said ‘I have breast cancer’....and patiently answered all his many questions while emphasizing not to be afraid of asking me anything. I could see in his eyes he was desperately wanting to ask if I was going to die. He did. I told him that I wasn’t planning on doing anything but fight the cancer with all I had, and that while there were no guarantees, he could depend on my stubborn determination to come through alive. That seemed to satisfy him. I met with his school guidance councillor and asked that his teachers be informed so they could keep a watchful eye on any fallout behaviour he might experience...they were wonderfully receptive. Through treatment I noticed an anxious depression starting in him so we went to therapy...which was a life saver for us both. Today at almost 22, he’s happy, healthy and said after my last diagnostic mammo “if I were cancer I’d be afraid if you too!”. The whole experience brought an already close mom-son relationship even closer and stronger...even if he is a smartass...wonder where he got that from? ;) There is no easy way to tell kids, but imho they will appreciate the truth. In my experience they know so much more than we think they do and to cover up may cause more stress in the end. Much luck in this and many supportive hugs!
  • Justkeepmoving
    Justkeepmoving Member Posts: 106
    edited June 2018

    thank you everyone :)

    I spoke with my daughter yesterday - leaving out the word cancer but she asked outright and I told her yes but that this is very treatable and I will be fine. My son didn't understand very much and I left it simply as I'm having an operation. I will keep discussing more as the day approaches trying to keep the focus on the positives (as there are many).

    Now getting childcare (and dog care) into place. Choosing surgeons. Choosing procedures. It's a lot on top of work, cooking, sports, etc.... Overwhelming at times. A lot of time spent just thinking. It's all happening so fast. Slowly I'm accepting the changes that will happen to my body and realizing I will be ok and change is part of life.

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