Starting Radiation May 2018

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  • Puzzlewoman
    Puzzlewoman Member Posts: 171
    edited May 2018

    Star2017 - they said it was depending on my scans and where they ended up putting the markings. Since it ended up not mattering, I won’t have to hold my breath. They told me it can help avoid getting radiation on healthy tissue, especially your heart

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    puzzlewoman, I’m glad that means there’s one else thing for you to worry about!

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    Gosh guys, today was no fun. Yesterday the techs reminded me to moisturize the back as well as the larger area around the breast, so I was very generous with the aquaphor. Well, I think between that and my shower, I lost a key mark. I wasn't really paying attention I guess. Today was the one day I really needed to be done on time, and instead the whole thing took an hour because I had to be rescanned. I was so stressed about getting out of there in time that at least I didn't focus too much on the anxiety around treatment.

  • Simbobby
    Simbobby Member Posts: 140
    edited May 2018

    Had my final simulation and adjustment done today. Took about 40 minutes as they will add a metal mesh material to the rads every other day.

    They said it will make the skin more red but they need to radiate "closer to the skin"

    I go live tomorrow with the first of thirty treatments. So glad to get started.




  • JosieO
    JosieO Member Posts: 314
    edited May 2018

    Hey Star,

    Not your fault-don’t be hard on yourself. I don’t use Aquaphor but everything I ever read about says that is greasy, so one could see where a mark might come off. At least they caught it and could re-mark it.

    I know that the technicians and the radiation oncologists talk back and forth a lot, so if this is indeed a key marking they might be able to re-coat it with something more likely to hang on.

    Fortunately I only have the tatoos, so no chance of them coming off. But some are on the side and near the back of my torso, so if they were not permanent I might not see if they came off or not.

    No stressing - as my pcp likes to say - “they can fix it”.


  • Puzzlewoman
    Puzzlewoman Member Posts: 171
    edited May 2018

    Star2017 - so sorry that you had to go through that!

    I just got my marks yesterday and don’t start until June 4. I had no idea how hard it would be to remember I have these. I keep thinking something is scratching me and I need to get rid of it, lol!

  • Puzzlewoman
    Puzzlewoman Member Posts: 171
    edited May 2018

    Simbobby - best wishes for tomorrow

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    Today went smoothly. It was just yesterday that things went haywire. Even the re-scans today were quick. So now I have some new markings, plus three tattoos. They've removed some old markings.

    There's no treatment Monday due to Memorial Day. I'm not sure how that effects my end date, but I'll ask the doctor when I meet with her tomorrow.

    I had been cautioned not to shave under the arm, but it's beginning to bother me. The nurse says that if it's not pink yet, it's probably okay to do so gently. I've also been told not to use regular deoderant, but Tom's of Maine is fine. How are the rest of you handling the aesthetic aspects of this whole ordeal?

  • ctula
    ctula Member Posts: 6
    edited May 2018

    Hi Ladies,

    I'm so glad I just found this thread. I had my first treatment today and it went better than expected. Did anyone feeling a burning sensation during treatment? The nurse said its not normal and we will watch it.

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    Ctula, I didn’t, but I feel like my brain was on overdrive and I was suspicious of every weird sensation

  • ctula
    ctula Member Posts: 6
    edited May 2018

    Star2017,

    I know what you mean. I did a trial yesterday which helped to know how things would go today. I'm hoping tomorrow will be better.

  • DearLife
    DearLife Member Posts: 1,183
    edited May 2018

    Dear Ladies of May

    Tomorrow is my last treatment of 16 total. I am a bit pink and have lots of little red spots on my breast, but they don't itch or hurt. Apparently they are irritated hair follicles and they will heal.

    I used a water based cream (Aveeno) as per their recommendation and it worked for me so far. Around the house, I wear my husband's cotton t-shirt and no bra. I have a cortisone cream if I develop problems in the next couple of weeks.

    Overall, I got through better than I expected. I can't say I felt fatigue, although I do like my short afternoon nap. I was able to exercise every day, either a brisk walk or 30 minutes on the elliptical machine. I know this isn't possible for everyone especially if you are recovering from chemo. But I feel exercise clears out bad things and stimulates healing of the good cells. It is also a great emotional tonic.

    The most scary part for me was the breath hold, afraid that I would sneeze or run out of air. But when I read that the Guiness record for holding your breath is 24 minutes (!!), I realized I can do this.

    I made cookies for the techs and I hope I don't dissolve in tears tomorrow. They have been so kind (as well as precise) and their friendly welcome meant a lot to me.

    I wish each of you good luck and the very best results! 👍♥️ 🌸

  • JosieO
    JosieO Member Posts: 314
    edited May 2018

    DearLife,

    YEA !!! Congrats on successfully completing your treatments (especially the breath holds) and moving on to continued good health. Best wishes

  • Dodgerick
    Dodgerick Member Posts: 72
    edited May 2018

    I had my treatment #22 today and just slight pinkness!!! I’m a redhead and was really nervous about burning....so far so good! Three more treatments and i’m DONE!!! Thank you Jesus

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    Dearlife and Dodgerick! Congrats on almost being done!


    Simbobby, how did it go?


    Finished the first week (6 weeks total)! So far nothing more than the occasional twinge or itch or sensitive spot. My skin is not pink or anything yet. No treatment this Monday for Memorial Day, so I think I'll finish 7/2 rather than 6/29.

  • Pumpkin68
    Pumpkin68 Member Posts: 22
    edited May 2018

    day 12!! Pink, hot and extra tan nipples!! 4 more then we end with 6 additional boosts .. fatigue has set in!! Ready for this to be over!!!

  • Simbobby
    Simbobby Member Posts: 140
    edited May 2018

    well I have two of thirty down. So far, uneventful. Let's hope it stays this way.

    Glad to have Monday off. Everyone have a nice weekend

  • JosieO
    JosieO Member Posts: 314
    edited May 2018

    Hi Star,

    I’m a day behind reading these posts.

    I’ve been told the same thing about shaving that underarm. Fortunately I had read about not shaving in an earlier post, so I shaved just before my treatment started. So far it doesn’t appear that the underarm hair is growing that fast. Nothing red or irritated

    Same admonition to me re deodorant. I do use Tom’s, but it doesn’t feel as “dry” me as I am used to with other deodorant (which were probably antiperspirants), but I also read to try a light pat of cornstarch afterward. Will save that for upcoming hot days.

    Until it’s really time for sleeveless tops, just hope it doesn’t become an issue. (Although for Madonna and other celebrities, an unshaven armpit is “in” - ha)

    Hang in there.

  • JosieO
    JosieO Member Posts: 314
    edited May 2018

    pumpkin, these are going quickly for you! Glad the end is in sight

  • JosieO
    JosieO Member Posts: 314
    edited May 2018

    Star,

    In case no one has shared with you yet, your location will just add the missed Memorial Day (and any others) to the end of your schedule. I assume it’s because one is calculated to get a certain amount of radiation, so they don’t cut it short even if things appear fine.

    You’re doing well-it will fly by. I’m going to finish about a week earlier-have to look at my calendar to be sure of the exact date. I usually draw through the past week on my paper calendar every Friday (YEA

  • JosieO
    JosieO Member Posts: 314
    edited May 2018

    Simbobby,

    Before you know it, you will have the routine down pat. It’s become so automatic for me it is not upsetting or stressful. Just get ‘er done..

    You got this!


  • AlohAnn
    AlohAnn Member Posts: 4
    edited May 2018

    Hello All. I'm not exactly sure how I found this forum but from what I've been reading it's an informative one. Learning lots.

    A bit about me... while being diagnosed with Degenerative Disk Disease in January my GP decided it was the perfect time to catch up on all the tests I had let lag for 3.5 years. The mammogram started it all. Having had a dual biopsy 10 years ago ( the painful one) and all was fine I wasn't worried about the one they now wanted to do (the much less painful one). Positive.... You know how it goes from there. Things moved fast...Surgery in March and Radiation began four days ago. (Had to wait 6 weeks to start the radiation so took a preplanned cruise in between. Great place to get over the shock.)

    I met with the HO last week and the RO on the same day. Two days later we did the CT scan which determined the angles//azimuths they would shoot. Being deep, next to the chest wall, they are also radiating a bit of left lung and a few ribs. I was to begin the 20 sessions (15 full breast, 5 tumor directed boosts) this past Monday but the machine broke - we began this past Tuesday so today was my 4th session.

    Day one surprised me with having to take X-rays preceeding the session. Day two included having to see the RO. Both events will happen weekly. Adds a little more time to the sessions. Day 3 was quite fast and easy. Today took them quite a bit longer to get me aligned with my tiny jailhouse tattoos. No idea why. End result.. this week is over.

    All has been easy, quick and efficient. I have read the April postings and all those in this forum. The most surprising thing for me so far is the discussion regarding the lotions. No one in my wonderful team of doctors has mentioned a word about lotions. All is good so far, maybe a touch of swelling, so I really haven't given it much thought.... until now. Has everyone been forewarned for the need of lotions but me? Hummmm....

    Thank you if you made it this far. That's probably the most I've talked to anyone about it. Interesting. I look forward to getting to know you.

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    alohann, I’m urprised you haven’t been instructed about lotions. I’m doing a combo of aloe and aquaphor. Those are a couple of the options recommended by my doctor

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    thanks, Josie. That's what they said.


  • Moderators
    Moderators Member Posts: 25,912
    edited May 2018

    Hi AlohAnn and welcome to our community,

    This page may also be helpful to you. Star2017 gave also great suggestions!

    Skin Care Tips During Radiation

  • lckaff
    lckaff Member Posts: 6
    edited May 2018

    Dear All:

    Thank you all so much for sharing your experiences, everytime I freak out about something I come here, and you tell me that its all good....I can´t tell you how much that means. I am doing this here in Berlin, Germany, and while I am doing this in a foreign language, so sometimes the questions I ask are misunderstood...all the doctors and nurses try as hard as possible, but it is still tough. I have some questions for all of you...my RO insisted before we started that I shouldn´t do ANY exercise, especially swimming. But I see that this is not the same recommendation you are all getting in the States. I also seem to be getting really fatigued, but not many of you seem to be having this. (Perhaps the fatigued ones aren´t logging on ?)

    I am on day 20 of 33, and seem to have some redness under the arm area, but nothing excessive, using a linament cream the RO recommended. And I love Lanolin, I have used it for everything since I breastfed my son 16 years ago, but I saw that it isn¨t recommended for this, does anyone know why?


    Any insights you all have would be appreciated.

  • Olesya
    Olesya Member Posts: 114
    edited May 2018

    hello ladies:0)

    Radiation is going well: 13 out of 20 is done. Still no major side effects. Pinkness of the skin comes and goes. So far I have only used homeopathic calendula cream twice and gel straight from aloe plant once. I've decided that starting radiation on Tuesday or Wednesday, and also to have long weekend in a mix is a good thing, because this way you get an extra weekend to let your skin to heal.

    I'm starting to feel tired. Still not sure if it's due to radiation or the fact that I need to drive 1,5 hour to the hospital every day to get it done.

    lckaff - my RO said that anything that creates some kind of film on a skin is not recommended, as it creates a barrier and interferes with treatment. also, no to any supplements that contain antioxidants. About exercise: i was told no to swimming due to chlorine irritating the skin and risk of infection to the site. Other than that - exercise is good in moderation(go for a walk kind of thing).

    Hope you all doing well.

  • lckaff
    lckaff Member Posts: 6
    edited May 2018

    Thank you, Oleysa, for the info, that clears some things up...

  • nat_blue
    nat_blue Member Posts: 30
    edited May 2018

    I started and finished radiation this month: partial breast intensity modulated radiotherapy prior to surgery. The treatment schedule was similar to the brachytherapy with 2 treatments a day 6 hours apart for 5 days. I had a weekend between, so seven days to complete therapy. The imaging was a hassle; small spaces aren't my favorite so the MRI's cause a bit of dread, and I still have one to go. Overall a good treatment experience with minimal to no side effects. I've had a very slight tightness over the biopsy area and if I squint really hard I can see a color change. This is part of a trial, but I'd give it a thumbs up if anyone has it offered to them. I'll try to remember to post again in 5 weeks after surgery, as the surgery will now be in a radiated area which might add to the challenges.

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2018

    Welcome, nat_blue, and thanks for joining and posting! We look forward to hearing more from you soon! Good luck with surgery!

    The Mods

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