Reconstruction After Radiation Years Before

VintageGirl224
VintageGirl224 Member Posts: 16
edited April 2019 in Breast Reconstruction

I was diagnosed in 2003 with invasive ductal cancer at the age of 34. I had a lumpectomy followed by chemo and radiation. I'm now 49 and have been diagnosed with ductal in situ in the same breast. I'll be having a bilateral mastectomy with immediate reconstruction. I know the radiation makes the reconstruction more difficult and am wondering how many women have a good outcome with reconstruction after radiation. I meet with the plastic surgeon later this week.

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Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2018

    Hi VintageGirl, and welcome to Breastcancer.org,

    We're so sorry to hear of your recent diagnosis, and of your past history with breast cancer. However, we're really glad you found our incredible community, where you're sure to get great support, information, and advice.

    We're sure someone will be by shortly to weigh in, but in the meantime we wanted to send you a warm welcome. If you need anything at all, please let us know! We look forward to hearing more from you soon!

    --The Mods

  • VintageGirl224
    VintageGirl224 Member Posts: 16
    edited May 2018

    Thanks for the response, Mods. Based on the lack of response, I'm feeling like there aren't many others in a situation similar to mine who've had successful outcomes. Feeling a little overwhelmed with the whole reconstruction process. I guess I'll see what the plastic surgeon says tomorrow and take it from there.

  • seagirl
    seagirl Member Posts: 16
    edited May 2018

    hello vintage girl . I'm sorry that you have been diagnosed again. I do have a similar situation. I was diagnosed with dcis and the plan was mastectomy -left breast- and then implant reconstruction. I had an expander put in during surgery. But they found ILC so the plan changed to chemo and then radiation. Since my treatment ended-2015- I have just had the expander. I haven't been back to a plastic surgeon until this past week. I thought that I was going with implant. But this new surgeon says the DIEP is the best option after radiation. I have done a little research this week and that seems to be the consensus. I am now deciding whether to go ahead with the surgery which is a little more complicated tHan an implant.

  • Lula73
    Lula73 Member Posts: 1,824
    edited May 2018

    Vintagegirl- I’m sorry I missed your original request! I had what they call “full mantle” rads to the chest 30 years before my BC diagnosis and BMX with immediate recon. Here’s what you need to know. It does take time for the skin to recover from rads so from that perspective you’re in a good place. The problem you can run into is that radiated tissue doesn’t always do well with implants as there is nothing for the existing tissue to adhere to/grow into. That’s part of why the textured implants are often recommended as it gives a little bit of s surface for the tissue to adhere to. However some studies are starting to show that the textured implants may have a higher recurrence rate than without. From another angle and frankly the best path for tissue adherence/tissue growth) is a natural tissue reconstruction. They would give you a tummy tuck or butt lift and use that tissue to rebuild your breasts. The trick is finding a plastic microsurgeon who specializes in breast recon. Many women travel for the surgery. I did and I can tell you it was so worth every penny of my copay/deductible and the travel. I looked pretty darn good before all this and I look better now than when I started. Breasts are soft and warm and natural. Thrilled with the results. Would do it again in a heartbeat. Here’s a a link to the center for restorative breast surgery in NOLA that is very informative on the procedures, has a must see video called ‘I wish I’d known’, and photos of before & after. Let me know if you decide to explore this option further

    www.breastcenter.com


  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2018

    I had implants eight years out from radiation. The side that had the original radiation doesn’t look as good as the other side. The skin didn’t stretch as well but to me it’s good enough. With a bra on they look the same. Naked not so great but only hubby sees them anyways

  • Mom-mom
    Mom-mom Member Posts: 44
    edited May 2018

    Vintage: I’m sorry you are going thru this again. I’m a two timer. At age 43, I had lumpectomy and rads in early 2008 for IDC and then at age 52 diagnosed with IDC same side in April 2017. I had UMX with tissue expander, then chemo. And some other stuff going on so I’m just now planning my reconstruction one year later. My PS said to expect 2 fat graftings —one w exchange and one later to help the radiated skin. It’s pretty thin skin! And she uses a lot of alloderm.

    It is doable, but you need a PS experienced w radiated tissue and Fat Grafting. I considered a DIEP, but I have 12 year old twins and am the primary earner for our family, so decided on the uni Implant.

    Keep us posted and check out the fat grafting thread on here. It’s been very helpful to me.

    Peace to you this holiday weekend,







  • VintageGirl224
    VintageGirl224 Member Posts: 16
    edited May 2018
    Thanks, ladies. I've been to two local plastic surgeons now. The first was very negative about the outcome if implants are used, and suggested the Latissimus Dorsi Flap. I'd rather not sacrifice muscle if I absolutely don't have to. I went to the second surgeon who does DEIP, but he said I'm too thin for that procedure and that he feels breast implants are the way to go because despite a higher failure rate due to prior radiation, they still offer less surgery and a good chance for success. The first breast surgeon also indicated she would do a nipple sparing mastectomy. The second breast surgeon said she would not because of possible nipple necrosis. I'm so confused at this point. I'm planning for a bi-lateral mastectomy either way because I don't want to have to deal with this again.
  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2018

    I got 3-d nipple tattoos and they look so real.

  • Sunrisefish
    Sunrisefish Member Posts: 67
    edited May 2018

    Hi VintageGirl,

    I am also a two time survivor. I was initially diagnosed in 2014 - I had a lumpectomy and radiation at that time. I had a recurrence in March of 2017. I had a skin and nipple sparing double mastectomy with direct implants placed over the muscle in May of last year. I had no issues healing. I also have full feeling in both breasts. My radiated nipple does not respond to cold as quickly as her non radiated sister - but she is alive and healthy.

    I did have some rippling on the radiated breast that was fixed with fat grafting from my stomach in November (fat grafting is a pretty easy procedure and I highly recommend it to get some real tissue back). I am one year out and still no problems.

    Radiation definitely makes the decisions more difficult and reconstruction more risky, but with the advances in treatment including Alloderm, fat grafting and state of the art implants, they are getting better at it. I am proof of that.

    Good luck, we are with you!!

  • VintageGirl224
    VintageGirl224 Member Posts: 16
    edited May 2018
    Thank you so much for the replies. It's very reassuring to hear from women who had radiation followed by successful reconstruction, especially with implants since that's what has been recommended to me. My surgeon plans to do under the muscle implants and remove my nipples. I've gone back and forth on whether or not a nipple sparing mastectomy would be safe, but I'm trusting my surgeon that it's best not to keep them. I'm pretty small to begin with so I'm hoping my skin stretches without any problems. Honestly, after all this, I don't think it's too much to ask for more than A cups. LOL I appreciate everyone who has taken the time to respond. Nobody really understands all this like someone who has been through it before does.
  • Druanne
    Druanne Member Posts: 295
    edited June 2018

    I have been reading all of these replies and am feeling better too!! Thank you everyone!!!! I had radiation after a lumpectomy on my left side in 2011 and now have LCIS in situ on my right side. I have a high risk cancer gene mutation called TP53. (just found that out this year) I am having a bilateral mastectomy. I just talked with my PS this morning. He said when I am under he is going to inject a dye to test the blood flow in my radiated breast. He said he may put the implants on top of my pecs because he doesn't want to stress the pectoral that has had radiation. I think I prefer that now after all the reading I have done. So far I am having a nipple and sparing mastectomy. I have been feeling so crazy and overwhelmed about all of this stuff.....finally feeling a little better. Having somewhat of a plan always feels better. :)

  • bennybear
    bennybear Member Posts: 326
    edited June 2018

    glad to find this thread! I see the surgeon tomorrow and we will discuss if I can do reconstruction after Mx. He has told me I can't do implants because of the radiation. I am just worried about the recovery and risk in a DIEP procedure. But not sure I want to or canwait to coordinate with plastic surgeon.

  • VintageGirl224
    VintageGirl224 Member Posts: 16
    edited June 2018

    Am still following this discussion and appreciate the posts. Feeling a little overwhelmed with all of it at the moment. Surgery is Wednesday next week.

  • vlorsong
    vlorsong Member Posts: 36
    edited June 2018

    Hi VintageGirl- My story is similar to yours and am sorry to hear you have to deal with this again. My original DX of DCIS w/microinvasion was in 2006 and was treated with lumpectomy and radiation. I was DX with Stage 1 invasive in Nov. 2017 and had mastectomy and TE in December. I had the implant placed in late March of this year. So far, I am not thrilled with the outcome and I feel that is mostly do to the previous surgery and radiation in 2006. I have no sensation over most of the breast and the implant feels like it is trying to escape my body via the armpit! Needless to say I am questioning if I made the right decision, but have been advised by the plastic surgeon to wait a few more months as I am still healing. Visually it's not to appealing because of the perma-tan from previous radiation and the scars of surgery. Kinda pulled and puckered but the surgeon assures me that can be adjusted with surgery. I personally have had my fill of doctors and procedures. I had breast reduction on the other side and it's fine, but the I'm not keen on the implant. That is just my .02. Ultimately you have to make decision with what you feel you are comfortable with. Previous procedures made a big impact on my outcome. I will be glad to answer any questions you might have. Best of luck to you!

  • VintageGirl224
    VintageGirl224 Member Posts: 16
    edited June 2018

    Thanks, Vlorsong. I'm sorry to hear your implant is not doing well. I hope things improve for you. I've decided if my reconstructed breasts look awful I'm just going to get pretty tattoos to cover up the scars and unevenness once everything is healed. That's my plan C since plan A didn't work out for me in 2003 and who knows how plan B is going to turn out. Hang in there.

  • Lula73
    Lula73 Member Posts: 1,824
    edited June 2018

    bennybear- come join us over on the 2017 & 2018 DIEP threads. You can ask all the questions you want about DIEP and recovery. Plus there are many women who are posting their progress several times a week. Its really not that bad. I went out to lunch and walked 3 blocks back to the condo we rented on Day 3 post BMX w/ immediate DIEP recon, attended a Mardi Gras parade a day or two later, toured some of NOLA, etc. Its a bigger surgery than just TEs and implants for sure, but they are not cutting into any muscle and that makes a huge difference recovery wise.It looks like you haven't had your mx yet? If that is the case, you should be able to do immediate DIEP recon at the time of mx.

  • Zoisite
    Zoisite Member Posts: 27
    edited June 2018

    Hi vintage girlI had DCIS w/ microinvasion left breast with lumpectomy and then radiation back in 2016 then in 2017 DCIS. I had a NS BMX with under pec TE in Jan 2018. I have finished my fills and will have my exchange at the end of this month. Fills were painfull but took ibuprofen before going to doctors and they filled them every other week. And small fills each time. We discussed over pec but PS was worried about only having radiated skin holding the implant. I was not a candidate for DIEP not enough extra tissue. They look pretty good. I am back to working out at the gym no problems. Good luck with everything. Gentle hugs!

  • VintageGirl224
    VintageGirl224 Member Posts: 16
    edited June 2018
    Thanks, Zoisite. Happy to hear all is going well for you with the reconstruction. Tomorrow is the big surgery day for me. Am anxious to get this process started so it will be over.
  • Mom-mom
    Mom-mom Member Posts: 44
    edited June 2018

    Vintage: Sending you lots of positive and peaceful energy for your surgery tomorrow. You got this

    M

  • Zoisite
    Zoisite Member Posts: 27
    edited June 2018

    VintageGirl I will be thinking about you tomorrow and I hope all goes well. Keep us posted we are here for you

  • VintageGirl224
    VintageGirl224 Member Posts: 16
    edited June 2018

    Two days post surgery. Docs said surgery went as expected. Guess that's a good thing. I'm uncomfortable but the pain is under control. Hoping all the tissue heals well. I was expecting not to be able to shower but was told can shower 48 hours post surgery. And they didn't give me any arm exercises to do. Weird how different surgeons have such different protocols. Hate the drains but I'm pretty sure we all do. Trying to be the brave, positive woman everyone seems to think I am. I don't think anyone who hasn't been through this can really understand the magnitude of suckiness. Praying when I see the breast surgeon in two weeks I hear my nodes have come back clear and I don't have to do chemo this time.

  • talongley59
    talongley59 Member Posts: 11
    edited January 2019

    I am facing the same situation.  My radiation was in 1997. Surgeon states they can do nipple sparing.  Plastic surgeon states it will be small for the reconstruction.  Am waiting to be scheduled for surgery.  Would like to hear an update Vintage girl.

  • VintageGirl224
    VintageGirl224 Member Posts: 16
    edited January 2019

    Hi , talongley59. I wish I could tell you it's gone great for me. I had my expanders swapped for implants in September and it was all going well until after Christmas. My radiated side started leaking because I had a tear in my skin. I had to have surgery again on New Year's Eve to try to fix it. I started leaking again a few days later. I saw the surgeon and he said to wear gauze on it and monitor it until my next checkup on the 24th. If this doesn't work, I'm facing the latissimal dorsal flap as my only option which I do not want to have to do and scares me a lot. I wish I'd known the first time I had cancer what I know now. I hope all goes well for you.

  • talongley59
    talongley59 Member Posts: 11
    edited January 2019

    Thank you so much for the update. I hope it heals for you. I too wish they had been honest and told us what would happen in the beginning. I would have had the mastectomy then and not had the radiation. I will be having surgery next month.

  • julz4
    julz4 Member Posts: 2,490
    edited January 2019

    Hello VintageGirl, I just started following you & I hope your doing ok.

    Vlorsong your story starts like mine. May 2012 I had surgery for DCIS with several micro invasion spots. Then 2 years later Dr change & new hospital found a 1.5 invasion spot in my surgery slides. I had lumpectomy & RADS. Then last year I was DX with Thyroid Cancer. My BC has come with BRCA 2 variant Favor Polymorphism. Now since I was diagnosed with cancer again I’m thinking somewhere in my future BC could be lurking. I’m now beginning to seriously think about having a Double mast with DiEP.

  • talongley59
    talongley59 Member Posts: 11
    edited January 2019

    Surgery is scheduled for April 3rd. Followed by hyperbaric oxygen therapy. Sure hop this works!!

  • talongley59
    talongley59 Member Posts: 11
    edited February 2019

    Hi Vintage girl,

    Just checking on how things went with your appointment on the 24th? Hope you healed and thongs went well!!


  • VintageGirl224
    VintageGirl224 Member Posts: 16
    edited February 2019

    Hi, Talongley59.

    Unfortunately, the revision did not work and I developed a large opening in my skin. The doctor removed my implant almost two weeks ago. In about 6 weeks he'll do the lat flap surgery. Having one boob is not fun, but none of it has been. I'm staying positive that it will all go well and know I'll eventually get where I want to be. It's just taking a lot longer than I'd hoped. Thanks for asking.

  • talongley59
    talongley59 Member Posts: 11
    edited February 2019

    I am so sorry to hear this! I will be Keeping you in my thoughts and prayers!!!!

  • talongley59
    talongley59 Member Posts: 11
    edited February 2019

    Please keep us informed. What day is your surgery? Mine is not scheduled until April 3rd. So I believe you will be before me.

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