Long term survivors no longer on hormone therapy

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Sophiemara
Sophiemara Member Posts: 66
edited May 2018 in Stage III Breast Cancer

I was just wondering if there were any long term stage 3ers who stopped hormone therapy at five years and are doing well?

From the boards I've read of quite a few ladies who are doing really well 10+ years out, but who remain on hormone therapy.

Just interested to know if there are any long term survivors no longer on it?

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  • muska
    muska Member Posts: 1,195
    edited April 2018

    Very good question, I wonder if there is anybody on this forum who is stage III and stopped anti-hormonals after five years.

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  • wallan
    wallan Member Posts: 1,275
    edited April 2018

    I stopped hormone therapy at 5 years out and am 14 years NED from stage 3a.

    However, I did get a new primary in the other breast and its been just over a year since I was dx with that.

    So I am back on hormone therapy for one year now.

    wallan

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  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2018

    I'm 9.5 years out, and had to stop AI after 7 years. I just had my annual visit with my medical oncologist yesterday and am still NED.

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  • Meg101
    Meg101 Member Posts: 175
    edited May 2018

    Good thread. Thanks for starting it Sophie. Glad to hear the good news from those who posted above including you Wallan. I hope the new diagnosis in your other breast get blasted away and never shows its ugly face again.

    Does anyone mind if this thread allows Stage 2 ladies as well as Stage 3?

    Meg

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  • AgentMo
    AgentMo Member Posts: 72
    edited May 2018

    I do mind to some extent because stopping HT with positive lymph nodes appears to be a different story than stopping it as a node-negative patient. But I am fine with nose-positive ladies posting here.

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  • pennsygal
    pennsygal Member Posts: 346
    edited May 2018

    Thank you for starting this thread. I am currently two years on AIs, and await the day that will no longer be the case!

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  • Meg101
    Meg101 Member Posts: 175
    edited May 2018

    AgentMo - OK. Got it.

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  • muska
    muska Member Posts: 1,195
    edited May 2018

    I am five years from diagnosis and 4+ years on arimidex. Saw my MO two weeks ago, there is no question about my staying on hormonal therapy in foreseeable future. She said taking a short break might be an option if the side effects get too bothersome to handle

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited May 2018

    I started Femara in July 2012 and will probably take it as long as my MO will allow it. She said if we stop the letrozole--ever--she would recommend startiing Evista,(raloxefine), a selective estrogen receptor modulator. We will see what my bone health looks like in a few years and decide then.

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  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited May 2018

    My oncologist thinks 5 year recommendation applies to early stage survivors only. I had a 16.5 cm tumor and one positive lymph node. I think my risk for recurrence is probably higher at 20 years then at 2. After all, i had a slow growing tumor which eventually grew into a giant tumor. At some point, I developed lymph node involvement. i am 59 years old. I'd like to die in 20 years of something else, not metastatic breast cancer. Maybe I am lucky to have minimal symptoms from letrozole. In May 2010 ( 8 years ago) i found out I had breast cancer. Until there is something better, I hope I can stay on letrozole.

    Elizabeth

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