Is it just pain or something more??

Hello to all who reads this!

This is my first time to post on this website. I was diagnosed in 2015 on my very 1st mammogram at the age of 41. At the time of my mammogram the radiologist only saw the cancer on the left side in the chest wall. I was told they did not find anything on my right side. I then had a needle core biopsy to confirm there suspicions. Later on I received a call letting me know that it was BC with a high grade. My next step was sentinel lymph node removal (left side) five removed all clear. I made the decision to go with a bilateral mastectomy with nipple sparing and reconstruction. I went with my intuitive feelings that I needed to remove both breasts. I'm glad I did because pathology called to let me know that cancer was also found on the right side and that it was a high grade. I did test positive for estrogen and progesterone and BRCA 2.

Recently I had CT scans for pain that I've been experiencing. PAIN in my lower back, chest L/R also the lower right side of my abdomen. I also want to mention that I will have swelling as well on that side. Here are my concerns... My oncologist calls me back with results while he is driving on the highway and the conversation is going in and out so I have to repeat myself. He tells me they didn't find anything. I said "nothing"?? He then says well the radiologist saw thickening on the left side but think that's probably old stuff.. NO JOKE! I said what about my lower back? I even proceeded to tell him that even my husband can feel a knot. He tells me I could seek pain management and see my general practitioner. My husband is a driver for a gas company and he met a new customer that recently lost her husband to cancer. My husband tells the lady about me. She then asks who I was seeing so my husband tells her. She tells him that her husband also was seeing the same oncologist and that he never saw anything on the scans and they kept telling him something is wrong. I decided to go and get my scans/report. It says in the report that there is thickening on the left side probably due to radiation but I never had any radiation. I also noticed on my scan disk there was no lumbar scan that we discussed. I feel very frustrated! I've gone through several surgeries prior before being diagnosed. I have an appointment to see my OBGYN for my annual check up in July so I'm going to tell her what my concerns are with my oncologist. My OBGYN has also gone through BC hopefully she can direct me to someone else. I no longer feel comfortable in staying with him. I also just started having pain in my left shoulder always the same spot. I feel like I'm too young to be falling apart.. I sometimes feel that I should just except the pain "IF" I knew that it was ONLY pain and nothing else.. My husband and I have 2 sets of twins and YES you read that correctly lol.. 14 months apart! Two 11 year olds and two 12 year olds. I want to make sure I'm around for a long time! I feel like PAIN controls my life right now. Would love to hear feed back on others that are feeling this way..