Chemo Port-O-Caths: Did you get one? What was is like?

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2018

    Yes, the Bard Power Ports are famous for their purple color. I have the small one and am thin, but since it was placed in the little hollow where my shoulder meets my upper chest, it doesn't stick out and is not visible when i'm dressed.

    Meg101,

    Most people have no issues with their ports. I myself had the rarest of complications, a collapsed lung, but realize that while possible, it's highly unlikely. I would still recommend a port. PICC lines are less commonly used in the US due to the fact that they are "open" and involve restrictions on getting wet. You do see them for shorter term use, i.e. antibiotics that must be given intravenously for a few weeks.

    Once you have healed from the port installation, for most people a short easy process, the port is care free. Do some folks have problems? Of course, but they are in the minority (and I was one of them!). Let's not forget that Power Ports also allow for blood draws and nuclear injections if you get PET scans.

  • djoyp
    djoyp Member Posts: 1
    edited May 2018

    I have been done with chemo over 3 years and I still have my port.

    I love it. I am a hard stick so the port saves a lot of anxiety.

    Usually I hardly feel it being accessed or removed. MUCH easier than arm veins that roll, etc.

  • Lanne2389
    Lanne2389 Member Posts: 229
    edited May 2018

    djoyp - is there any maintenance? do you have to get it flushed periodically?

    Lanne

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2018

    djoyp, thanks for sharing your experience with us all here.

    Lanne, you may want to read this article from the Mayo Clinic on port care: https://www.mskcc.org/cancer-care/patient-education/your-implanted-port

  • moth
    moth Member Posts: 4,800
    edited May 2018

    I didn't get a port. All AC is done and 3/12 taxol are done & I've been fine with just having an iv.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2018

    Lanne,

    I'm not djoyp, but I can answer your question. Yes, you do need to get your port flushed about every 4-6 weeks, if you are not using it for tx. It takes less than 15 minutes.

  • Lanne2389
    Lanne2389 Member Posts: 229
    edited May 2018

    exbrnxgrl

    Thanks! I had my port removed at my BMX and was surprised when asked if I wanted to keep it in. I’ve seen several posters have kept their ports so I wondered about maintenance. I skipped one week of chemo (but still went in for the hydrating fluids) and the nurse mentioned they would have wanted to flush the port anyway.

    A few ppl have mentioned having some problems with their port working. I always had to be at least 45 degrees reclined, head turned left (head position when it was put in) and use a long needle, or mine wouldn’t work. It got to be a game with my husband to see whether the nurses would believe me, but it added a little levity to the day.

    Also, my nurses (whom I adored) didn’t mention the numbing cream until the LAST treatment. I think they all assumed someone else had. I didn’t find the poke painful so no big deal. But I was very glad to have the cream (which I bought just for this purpose) when I had to get the shot of dye in my boob before surgery.The thought of that still gives me the willies.

    Lanne


  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2018

    I have a Bard Power Port. It only needs to be flushed every 90 days. That's probably partly why I haven't had it removed yet.

    * Edited to add that the full name is Implantable Port Groshong Catheter.


  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2018

    Love those little purple ports! The reason that I have kept mine is that I am stage IV. I am not currently on any IV tx, but I probably will be at some time in the future.

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