Triple Negative Liver Mets NED Treatment/Maintenance?

Matt01113
Matt01113 Member Posts: 2
edited May 2018 in Stage IV/Metastatic Breast Cancer ONLY

Hi. I'm looking for thoughts and advice. Anyone with TNBC that went NED? What was your treatment plan after you went NED? How long did it work for? What would you do differently in hindsight?

As background... I had extremely ER+ stage 3 cancer (diagnosed Dec 2016) and went through ACT, mastectomy, radiation, and then was on faslodex/lupron/Ibrance. I was diagnosed with 2 liver mets in January this year, and they were triple negative. So I started GemCarbo and after 6 rounds the mets can no longer be seen on PET. So, I am continuing on GemCarbo until my next PET. My doctor is considering taking me off GemCarbo if my scan is clear. Curious what others have done for "maintenance" of triple negative NED. Thanks in advance!

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  • Moderators
    Moderators Member Posts: 25,912
    edited May 2018

    Hi Matt - Welcome to Breastcancer.org! We are so sorry that you have to be here, but glad to read you're NED, and glad you found this great Community for information and support!

    While you wait for responses from other members here, you might want to post your message in the Triple-Negative Breast Cancer forum too, to reach more women who have had similar experiences than yours.

    Thanks for joining, and we look forward to hearing more from you soon!

    The Mods

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  • Matt01113
    Matt01113 Member Posts: 2
    edited May 2018

    Thank you. Just learning how to navigate this site, which has a wealth of information! I'll post in the forum you suggested.

    Thanks much, Kim


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