Chemo Port-O-Caths: Did you get one? What was is like?

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  • mdevroy
    mdevroy Member Posts: 16
    edited April 2018

    Had my port put in today. Surgery was not bad. But it's hurting a little know. Hope it's good by Monday so I can go to work.

  • buttercup1
    buttercup1 Member Posts: 24
    edited April 2018

    Thanks for your reply Mdevroy, I hope it heals up quickly and stops hurting you!

    Did they give you a recovery timeframe for work, such as "you can return to work in 1 day" or something like that, or is it just whenever you feel like it? Also, when are they going to start using it? I get mine placed on next Monday, and they want to start using it on Thursday for chemo.


  • EncoreKennel
    EncoreKennel Member Posts: 13
    edited April 2018

    I was a bit worried before getting my port too... the thought of having something foreign inside me... and for an extended period of time. I had the Bard Power Port placed Tuesday under general anesthesia. It really wasn't bad and I didn't need any pain medicine when I woke up but I was starving so my husband and I had dinner out before going home. I was definately sore the first couple of days, but showered the next day and even went shopping and to lunch with my daughter. Went quickly hack to my normal routine. I think you will be pleasantly surprised. Good luck!

  • mdevroy
    mdevroy Member Posts: 16
    edited April 2018

    I go Thursday for my third treatment. So they will use it then. Some people go back to work the next day.

  • ksusan
    ksusan Member Posts: 4,505
    edited April 2018

    I had a guest instructor cover my afternoon class after getting the port, but I was in my morning class the next day.

  • PhoenixCruiser
    PhoenixCruiser Member Posts: 118
    edited April 2018

    I'm so glad I got a port. I also hate blood draws and with the port I only felt some pain twice and that was because she didn't hit my port.

    I was completely knocked out for the placement and for that I am grateful. I was back to work the next day however I work for home and that helped. I did however bruise badly and that bruising didn't fully go away for about 8 weeks, looked bad but didn't hurt.

  • Lanne2389
    Lanne2389 Member Posts: 229
    edited April 2018

    Had my port put in under general anesthesia. No problems with it except I always felt pressure from the tube at my neck. But glad I had it. I had surgery after chemo so had them remove the port then, otherwise it would have been in the Dr's office under a local. That thought gave me the heebie geebies.

    The only time I've thrown up during any of my cancer treatments or drugs was on the ride home after the port was placed. (Sorry hon, I should have passed on the post op chocolate pudding) Also, I give my BMX scars a 9 and my port scar a -2.

    Lanne

  • stephaniebc
    stephaniebc Member Posts: 53
    edited April 2018

    about the port placement: i read that some of you were unhappy about your scar being too visible, so i wanted to post a picture of my incision, which was made at the edge of the armpit, so that it completely disappears in the fold. maybe american doctors should try this? my placement was done in paris, and the new york radiologist who removed my port initially did NOT want to use the same incision for removal (she said it looked "terribly uncomfortable"), but i insisted, as i didn't want yet another scar, and so she relented. it healed very well, like the first time.

    as for the port, it was located just under the triangle of my strap top, always hidden by bras and bathing suits.

    the french health care system has many flaws but they do care about your appearance :)

    image

    image

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited April 2018

    Interesting! But wasn't it uncomfortable during infusion?

  • KCMC
    KCMC Member Posts: 208
    edited April 2018

    I guess I am the odd one out. I am HER2 positive and have no port. I have very good veins. I had 6 rounds of TCHP starting last July and Herceptin and Perjeta till beginning of August this year. I drink more than 64 ounces of water a day. Blood draws are never a problem for me. The three days leading up to infusion I make sure I eat something salty, Chinese food or cans of Soup. I wouldn't recommend going my route but it is working for me. I just couldn't put something foreign in my body and have it there for a couple of years.

  • Lanne2389
    Lanne2389 Member Posts: 229
    edited April 2018

    Hi StephanieBC

    Thanks for posting these pics! Do you mind if I show my PS and MO?

    Was the tube going towards your heart still threaded through the artery at the base of your neck?

    It does seem rediculous to be meticulous abt the mastectomy scars and not try very hard on the port scars!!

    Lanne

  • buttercup1
    buttercup1 Member Posts: 24
    edited April 2018

    Wow, Stephaniebc, that's a very well thought out scar placement! Thanks for sharing. I will mention it to my surgeon, but I have a feeling I'll be doing whatever he is used to doing. On that note, are there any good scar cream recommendations out there?


  • stephaniebc
    stephaniebc Member Posts: 53
    edited April 2018

    lanne: yes of course you can show the pictures to your surgeon, and yes the catheter was burrowing its way to the jugular vein, or the subclavian vein (i don't remember which one) at the base of the neck.

    infusions were very comfortable.


  • PhoenixCruiser
    PhoenixCruiser Member Posts: 118
    edited April 2018

    Infusions were comfortable for me too, I felt nothing and was able to move around without problems.

  • Jaybird627
    Jaybird627 Member Posts: 2,144
    edited April 2018

    Okay, this is my 2nd BC so my 2nd chemo. Had port 1st time for 4 a/c , 4 taxol. Had 4 a/c and 2 taxol as the taxol was not tolerated at all so my onc let me quit. The port surgery collapsed my lung which was super painful. The port itself was painful and stuck out near my collar bone, very visible, very ugly, but it was recommended. This go-round unless my onc changes the course it's to be 6 taxane-type chemo (?) , 6 rounds every 3 weeks. I think my veins can handle that but can they? Where do they find the veins? In the crook of the elbow, or hand/wrist or where? I do have small veins but I don't want a port! Waiting on path report.

  • Debsmisto
    Debsmisto Member Posts: 171
    edited April 2018

    Question, does anyone have discomfort /pain in their neck? My port is on my left and I have those symptions on the left side of my neck radiating around to the front and it seems a little swollen.

  • buttercup1
    buttercup1 Member Posts: 24
    edited April 2018

    Just had my surgery today! Got the Bard power port. It's only been 3 hours since I came home from the hospital, so I know it's still fresh, but man my entire shoulder and arm hurts! My neck also hurts a tiny bit. I'm really hoping the pain goes away, because it feels like I dislocated my arm or pulled all of my muscles in my left arm, shoulder, and chest.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited May 2018

    Probably from the position you were in. Should be gone soon.

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2018

    Debsmisto, yes, I had that the whole time I had the port.

  • Billb464
    Billb464 Member Posts: 62
    edited May 2018

    jaybird, I did not get a port when I had my chemo, I had 3 on each side. They went in at my wrist, mid way and just above

  • pingpong1953
    pingpong1953 Member Posts: 362
    edited May 2018

    If I'm not mistaken, one of the reasons for having a port or a PICC line is not so much that it's easier if you have small veins, they also protect the veins from the chemicals. You may start out with good veins but then have them damaged during your treatment. Have you considered a PICC line? It's easy to put in and quite comfortable. The only hassle is having to keep it clean and dry. I used Press and Seal plastic wrap to cover mine up when I took a shower and it worked really well. Also, it was easy to remove at the end of my chemo. Just a thought.

  • Debsmisto
    Debsmisto Member Posts: 171
    edited May 2018

    This is what taxotere and carboplatin can do to your veins, I had 2 treatments without a port them had to get one because of what it did to my veins it burned like a burn from touching the oven burnersimage

    image

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2018
  • buttercup1
    buttercup1 Member Posts: 24
    edited May 2018

    That looks painful! I'm hoping mine works. They tried to draw blood twice today from it and they had alot of trouble. The blood kept coming out bubbly, and with attempts reulted in hemolyzed blood. They said I'd need a longer needle, so I hope that solves it!


    Update: I'm in the 1" needle club! A longer needle worked perfectly yesterday during my first treatment. The port does make it easier to manuever yourself in the chemo treatment room, which is good because I was getting infusions for about 8 hours, and I felt more free to knit, write, play on phone, eat, ect. With the port rather than an IV. Everything has it's risks though, and im seeing everyone has their own unique reactions to them. Best of luck to everyone!!!


  • Meg101
    Meg101 Member Posts: 175
    edited May 2018

    I didn't have a port during chemo (Taxotere and Adriamysin). My veins were fine; no bruises, bleeding or damage of any type. BTW, I'm 71 years old with thin white skin and I bruise easily so go figure. I've read horror stories about ports causing infections, permanent scarring, and even Sepsis. When my brother had cancer, they used a PICC Line which didn't cause any problems. Be careful with ports.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2018

    PICC lines are much more likely to get infected or be a source of sepsis due to the fact that there is an entrance through the skin (covered with a bandage) the whole time they're in place. You cannot get the site wet, either. And the dressing must be changed in a sterile manner weekly.

    A port is completely covered by your skin. The risk for infection is only during the access for treatment or blood draws - and that is done using sterile technique. It also doesn't preclude you from normal bathing or swimming.


  • Eleanor_W
    Eleanor_W Member Posts: 8
    edited May 2018

    imageimageThanks for this discussion! It helped me ask better questions during my port education consult.

    in case these photos are helpful to others, this is the size difference between the Bard Power Port Slim 6 French (6F) & the Bard Power Port 8 French (8F). The 6f is made of titanium (& is the shiny, smaller port) & the 8f is the larger plastic port. (They switch sides between the photos)

    There is an even smaller port (4F), but the nurse educator kept emphasizing that she's seen a lot of issues with that one becoming easily clotted. She did not recommend it, really pushed the 8f as far less likely to clot, but said the 6f would probably be fine as well &, as you can see, it was noticeably smaller

    **i will say though that if you are doing Herceptin alone, it is possible to do that without a port, if your veins & you are up for it. I've just finished a year of it with few problems & I've known others who have done systemic chemo without the port as well, but they were willing to risk the possible vein damage. No one way fits everyone. Good luck, all!

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2018

    Those are very cool photos! Looking at them, I can tell that I got the larger one with the smaller and more round "dots" on top. It's pretty obvious since I'm a smallish person. It sticks out quite a bit. I wasn't given any option.

    However - it has worked like a charm. Never any problems with access, blood draws, flushes, or infusions. It's served me well. And I'm not ready to part with mine yet!


  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited May 2018

    Such a pretty color. My port was white and plastic. Mine worked well, but I developed a clot so I had it removed soon after finishing Herceptin. I would take a picture of it, but it has dried blood on it so it's too gross to post.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited May 2018

    my port is much smaller and flatter. Is a flesh tone. Still have it in don’t want it out. My “insurance “ lol.

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