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  • Imkopy2
    Imkopy2 Member Posts: 265
    edited April 2018

    Nickel- I also had rads (28 rounds) and my skin held up fairly well minimal discoloration and no open wounds. I too had TEs and the radiated breast definitely has shrinkage. I'm going to share my story with you I apologize because it is a bit long. Going into this radiation was always been on the table and my PS knew that I also wanted nip recon. After I did my exchange surgery (getting rid of the TEs is wonderful) i had my post op with my surgeon and wanted him to discuss the next phase nip recon. He refused because i had rads...I saw that we weren't on the same page so I began researching other options because I knew that I could not only get nips but that I could also be revised if I wanted. I finally found a PS who specializes in recon after rads. This type of reconstruction is different if you didn't have rads which my former surgeon didn't specialize in. Don't get me wrong he is a fantastic surgeon but having radiation added a significant variable to my case.

    I would ask your surgeon how he intends to handle the reconstruction of the radiated side? Especially since the skin has shrunk you also have to be careful that you heal properly. Skin that has been radiated can have complications with healing. You may want to ask where the incision will be...is he/she going thru the original scar from mastectomy or will he be going thru the inframmatory fold. Ask about fat grafting and whether or not the stem cells will help improve the integrity of your skin. If he/she says no then they are giving you inaccurate information. So beware.

    Also, ask if there will be a problem with symmetry because of the rads & will both sides have the same size implant?

    I just had my revision surgery yesterday with my new PS he did fat grafting to help out my radiated breast and released my scar tissue. He also improved my symmetry & I now have the same size implant on both sides. Before I had 2 different sizes ( my former surgeon claimed it was because of my radiation). There's a discussion board on implants and radiation...I think it's called 'fat transfer and radiation' (whippetmom set it up) a number of us have been there and done that. Just because you had radiation doesn't mean you have to settle with mediocre results. Special K is also a wonderful resource for radiation and reconstruction. Hope all goes well, if you have questions please let me know.

    Definitely go to that discussion and check it out.

    Best wishes!

    Mic

  • Imkopy2
    Imkopy2 Member Posts: 265
    edited April 2018

    I had my revision exchange surgery yesterday...after my original PS refused to do nip recon on me because I had rads, I decided I needed to part ways and find someone who would. After reading all the posts from all of the wonderful ladies on this site, I knew I had the right to revision & I could find a secondary PS who would help make me whole. Well I found that person, Dr John Kim is the guy...he's in Chicago and while I just had my surgery yesterday I feel like this is it. After surgery he told me that he was able to do everything on my wish list, so I really can't wait to see my new foobs. Since I had rads he was also able to release my scar tissue and I can totally tell he did it, I no longer have the iron bra thing going on the right side. I am including the link if you're near Chicago I would recommend him for sure. He has done extensive research on stem cells, fat grafting and improving the integrity radiated skin. Hope everyone is well...good luck to those ladies with upcoming exchange surgery. Be sure to post so others can learn from your experience as well.

    Hugs to all,

    Michelle

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2018

    mominator- just saw your post - thank you, what a lovely compliment! I am well and hope you are too! I have to say I was dressed up for a Christmas party so not my everyday look! I have no great tips, other than the usual - get enough sleep, eat well, exercise, laugh a lot, and protect your face from the sun. In addition to breast cancer I have had a boatload of skin cancer, the first at 35, so I have mostly avoided the sun (I live in Florida - how's that for irony?) and my Vit D level reflects that, lol! But - I think I may look a little younger because of that. I use argan oil on my skin, and try to stick with cosmetics that rate well on the www.ewg.org site. It's funny - the original of the photo had my 28 year old daughter in it also - so when I look at it I see the contrast between her youth and my senior citizen status, ha!

    lmkopy - yay, yay, yay! So happy for you!

  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited May 2018

    Star, you're doing great, I'm so impressed by you. I can't imagine having an infant at the same time as going through this. I'm glad you have lots of help even though sometimes it can feel crazy.

    Just give your post-partum body some time to normalize with everything going on -- I hear myself in you when you set yourself up to lose 10 lbs. and eat healthfully while also going through rads and getting along with your newborn and I think -- GO EASY ON YOURSELF! This is not easy stuff and from what everyone is telling us, our reconstruction may have twists and turns that we don't expect right now, but we know yours isn't over right now because you have a TE in. TEs are tough stuff because they sit so high and are pretty darn uncomfortable at times. Just remember to be good to yourself, and take care of yourself as best you can without pressuring yourself. You've got an awful lot on your plate.

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    Sweet Pea, thank you so much for the kind and thoughtful words -- as well as the warning. You're right, I should be careful about pushing myself too quickly. If my goals aren't realistic, I'll be even more frustrated. And sometimes I just need a cookie or a slice of cake, and don't want to feel miserable about it. Thank you for the reality check. :D

    I'm two weeks out from surgery (prophylactic MX with TE placement on left and TE to implant on right). Pain isn't terrible, but my left arm is still a bit restricted and tight. I'm still sleeping in a chair, but I don't mind it. I just want this darn drain out! Hopefully it can come out when I go to my PS tomorrow. Just heard my PS is leaving the hospital in a couple months. I'm disappointed to hear that, as I trust him and hoped he would continue my care. Not sure what's next, but I'll speak to him.

  • RoJo
    RoJo Member Posts: 14
    edited May 2018

    I have a question about massage to the implants. I just had my exchange surgery about 10 days ago. Things are healing nicely and no real pain to speak of at this point. I did have radiation to my chest wall on the left, and that side is still a bit tighter. Even after the capsule around the TE was removed. Has anyone been told to massage their implants? I know it is don for augmented patients, but I'm not sure about us. I'll see my PS on Friday and ask him too, but wondering if people find this helps soften things up.

  • Sitti
    Sitti Member Posts: 230
    edited May 2018

    RoJo, I think it depends on what type implants you received. I was told not to massage mine but I know of others who were told to massage theirs at a certain point. Best to check with your PS.

    Edited to say: mine are the textured anatomical implants.

  • Nursepatient35
    Nursepatient35 Member Posts: 166
    edited May 2018

    I need to ask my PS about massage as well but by doing my own research, I found the smooth textured implants need massage. The textured anatomical shaped ones do not get massaged. It all has to do with how the scar tissue is or isn't supposed to adhere to the implant. I'm 1 week out from my implant exchange and I feel pretty achey. I can only compare it to feeling like it's all bruised up or I got punched in the chest. It's nothing awful but wondering how other people felt or how long before they weren't so sore? The PS did have to do some cauterizing and pocket work so they'd sit closer together.

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited May 2018

    Sitti is correct, no messaging anatomical that are textured. I too have the gummy bear anatomical implants. No messaging! The pocket must adhere to the surface of the implant to keep them from rotating. I had pocket work done too on one side and I had minimal pain and soreness. They are more static than regular rounds but I am very happy with mine. I am 3 years post EX. They will get softer, but will never have the movement that the rounds do.

    Robin

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    Had a post op appointment today. The drain on the mx side is out! Woo! One more step toward feeling normal. I also think that the implant side looks pretty good/real/natural, so I’m feeling better andlooking forward to things getting better with each step.

    Still sad my PS is leaving, but I’ll talk to him next week about the game plan for next steps and also find out if he’ll still be practicing nearby.


    Hope everyone is doing well.

  • mariettamom
    mariettamom Member Posts: 3
    edited May 2018

    Hi! I am scheduled to have teardrop implants in my exchange surgery on 5/22. I am nervous about getting them because I am normally very active, and am scared they are going to shift over time. Before my surgeries, I lifted weights 4-5 times per week and played tennis 2-3 times per week. Will either of these activities put me in a spot where round implants would be better?

    Thank you so much in advance, and I hope all of your treatments are going well.


    Edit: Also, continuously get snuggled/tackled by my 5- and 8-year-old kids.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2018

    I initially had smooth round HP Mentor implants and my PS advised me to massage once I was healed. His instruction was to push at the clock hands 12,3,6, and 9. From the bottom, or 6 o'clock position, push firmly upward toward 12 o'clock for a count of 20, then do the reverse from 12 down to 6, and at the 9 and 3 o'clock positions do the same toward the inside and then outside. He advised doing this several times a day. I would check with your respective surgeons on whether, and when, this is advised for you as individual patients. The purpose is to keep the implants soft, and prevent CC from forming, and worked well for me.

  • Scrafgal
    Scrafgal Member Posts: 631
    edited May 2018

    Having my revision tomorrow and heading in for pre-op testing in a few minutes!

  • Shoregirl
    Shoregirl Member Posts: 375
    edited May 2018

    Yay!! Good luck Scrafgal!!

  • Imkopy2
    Imkopy2 Member Posts: 265
    edited May 2018

    hugs Scrafgal...good luck tomorrow and please update us when you can

  • Rocketsmom86
    Rocketsmom86 Member Posts: 1
    edited May 2018

    Hi.

    Newbie here. I'm currently having my tissue expanders filled. I was a teeny B 34 before my bilateral recon. I'm also slender build/5 ft. 8 in. I'd like to be a full C cup, but because I'm athletic my Plastic Surgeon will be placing my implants over my pectoral muscles. Any laides out there who have had this type of surgery? If so how big did you go and were you happy with the cosmetic outcome? I'm only seeing posts from those that went under the muscle. I don't want my implants to look like seperate entities, if you know what I mean. My surgeon did say she will tell me when to stop if things get " out of hand." Lol. Any thoughts or similar situations?

    Thanks!

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    I’m petite , have the pre pectoral implant. TE filled to 350. Implant was 440cc. I’m still getting used to it, and recon is not complete yet, but it doesn’t look like a separate entity

  • MinuteAtATime
    MinuteAtATime Member Posts: 76
    edited May 2018

    Rocketsmom, that's great that your ps is doing implants over pecs b/c you are athletic.:-) I got the traditional method--behind my pectoral muscles and I absolutely hate how every time I wash my hands or do anything athletic with my upper body my pec muscles tighten up and my boobs look weird and small. I wish I had known that what you are doing was an option--I would've asked for it. I am meeting with a new PS next month and hope to get a revision (maybe some fat grafting?) that will help with the way that it looks.

    There is also a whole thread on implant over muscle surgery/method--you might want to check that out. see link below:-)

    https://community.breastcancer.org/forum/44/topics/835911?page=36#idx_1051

  • Lanne2389
    Lanne2389 Member Posts: 229
    edited May 2018

    Rocketsmom86

    Check out Breast Implant Sizing 101. Whippetmom can suggest an implant make, size and shape that would be good for your frame. Read the intro post and send her your info.

    I have prepec TEs and they look pretty good (although uncomfortable). I'm opting for DIEP flap reconstruction instead of permanent implants as I just don't like how things feel inside. I was very lucky that my PS used “leftover" breast tissue (I was busty) from my BMX to pad my upper chest area in lieu of later fat grafting.

    I've added 150cc to my expanders and I think that was (for me) about a 2 cup size increase (I'm 5'11). It did make the expanders (relatively) more comfortable.

    Lanne

  • Imkopy2
    Imkopy2 Member Posts: 265
    edited May 2018

    Minuteatatime- I had revision surgery April 25th with my new PS. I had my first consult with him in December because I had sub pectoral implants and let’s just say I was less than pleased with my results and knew I could get better results with the right surgeon. Not to mention the animation of my left breast drove me crazy. Even though I loosened up the muscle with Pilates type stretching it was still there.I did my research and found a new surgeon who could help me. We discussed having fat grafting and doing my nip recon...I scheduled my surgery (back in December) for April 25th. Two weeks prior to my surgery, my surgeon and I went over out game plan and he recommended swapping out my implants, releasing scar tissue (from rads) and doing fat grafting. This whole procedure was minutes in length and my results are beautiful and the best part is the animation is gone. Granted I have to give my new implants time to settle in and soften up but it’s totally worth it when I look at my results even 2 weeks post op. If you have any questions please PM me.


    Rocketsmom, definitely check in with whippetmom shes the implant whisperer and will guide you in the right direction. Here’s the link just be sure to read her header and give her all of your information.

    Breast Implant Sizing 101



  • XXXGGGYYY
    XXXGGGYYY Member Posts: 33
    edited May 2018

    Rocketsmom86: I’m the same height with slender build, and also 34B, also athletic. I only had one breast removed, so my PS had to match my natural breast. My tiny implant went over the muscle. I continue to run, do pull ups and push ups, and play racket sports. It all worked out well for me, and I hope you have the same good fortune

  • MinuteAtATime
    MinuteAtATime Member Posts: 76
    edited May 2018

    Imkopy2 , thank you so much for that information--it's a relief to hear that it was pretty easy to fix! Glad you are happy with it too. I will talk to my new PS about it. He gets great reviews and a friend loved him, so I will be in good hands I think.

    Thanks.

  • TaRenee
    TaRenee Member Posts: 464
    edited May 2018

    I went for my follow up post exchange after a month and I’m pretty much done seeing him. I have nipple reconstruction in August and tattooing in September (close to BMX anniversary). I am kinda sad to not go back. He has been such a great support and a nice constant since my dx. I’m going to miss him. Is that strange?

  • star2017
    star2017 Member Posts: 827
    edited May 2018

    TaRenee, Not strange at all. Mine is leaving the practice, and I'm so sad!

  • Imkopy2
    Imkopy2 Member Posts: 265
    edited May 2018

    TaRenee it’s not strange one bit...your surgeon used his skills to rebuild what breast cancer took from you...I honestly believe our emotional success in this journey is based on the expertise of our PS. Without them we would never feel whole.

    Michelle

  • Jlove1821
    Jlove1821 Member Posts: 58
    edited May 2018

    hi everyone, I had my exchange surgery yesterday. My right side feel perfect but my left needed interval sutures and so that's uncomfortable. Has anyone else needed sutures inside to lift more? And when did it feel better? Hes also having me wear an underwire bra for 6 weeks for support. Hopefully after 6 weeks ill be comfy. I still feel pretty tight..was hoping for it to feel way better than tissue expanders

  • Nursepatient35
    Nursepatient35 Member Posts: 166
    edited May 2018

    It does feel a little weird to not see your PS on a regular basis anymore doesn't it. I go back for a check-up in a month and then a year. I'm leaning towards no nipple recon or tattoo. I just don't think I care enough about them at this point. Every morning since I've had my exchange surgery which I'm at about 3 1/2 weeks out, I feel discomfort or a little sore. Sleeping on my side is doable but then I feel like it hurts since the implant has been pushed into one side all night. Anyone else have this? During the day I'm pretty comfortable and barely remember they're in there- just at night.

    Jlove1821-i didn't have the interval sutures but I read how easy this surgery was but felt pretty uncomfortable the first couple weeks. It stinks too because you aren't really given as long to recover before going back to work. I hope it gets better for you. Other than night time, I feel like my old self again.

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited May 2018

    Nurse, I didn’t sleep on my side for a year!! You’re still in the baby stage, lots can change. I had internal pocket work and those hurt a little, but he evened me out and they are perfect. I have the gummy anatomical implants so recovery is different than rounds.

    Give it time. I am over 3 years out.

    Robin


  • Nursepatient35
    Nursepatient35 Member Posts: 166
    edited May 2018

    That makes me worried. I also have the gummy anatomical and some pocket work. My PS has never given me much for specific instructions. He always just says to use my common sense. He told me flips can happen but nothing really to prevent it from happening.

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited May 2018

    You can do a lot of things to prevent it. I wore a sports bra/bralettes for a long time. No underwires. I slept in a bra for over a year. I just liked the way it felt. They have to adhere to the muscle formed to a pocket. I have never felt like they would flip. I think you need to not sleep on your side yet. If you need to, ask for specific instructions. You have to be bold. Heck, none of us have ever done this before! I think they forget that.

    Robin


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