Cough, chest pain, hard time breathing.....

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  • vampeyes
    vampeyes Member Posts: 1,227
    edited May 2018

    Cpeachymom,

    Thank you. Thankfully my oncologist will be away next week so I will see the palliative oncologist. I also see my Radiology Oncologist on the 31st.

    My oncologist needs a new CT so they can change what the contract oncologist stated. If it's not a clot what did he see then? So frustrating.

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  • Leydi
    Leydi Member Posts: 146
    edited May 2018

    Vampeyes - Did you have your follow-up CT scan? I'm still not sure what the original scan couldn't be read by another radiologist if your MO had doubts about the results. I'm hoping you will have solid answers to your issues soon and a plan for treatment.

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  • vampeyes
    vampeyes Member Posts: 1,227
    edited May 2018

    Hi Leydi, I had the scan on Thursday, won't know the results till Wednesday. My guess on why he ordered another is because the hospitals radiologist couldn't change the diagnosis of the contract radiologist. Now they will have a scan they can put there diagnosis on, seeing as the two of them didn't think it was a clot that will likely be what they tell me on Wednesday. So frustrating to deal with this MO.

    Happy Mothers Day tomorrow!!!

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  • vampeyes
    vampeyes Member Posts: 1,227
    edited May 2018

    Update - My MO said it's not a clot, stop the blood thinners. Spots on spine are arthritis. So I am left confused and still frustrated with this. They couldn't answer why the first was according to them a "false positive". My plan is to go to the hospital tomorrow and get a copy of all my medical records, take them to my appointment with my RO.

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  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2018

    Wow! What a rollercoaster ride for you! It's hard to know what to think, right?

    So did the repeat imaging show no clot? Arthritis in your spine would be welcome news over possible mets. Does that require other imaging?

    I sometimes wonder who to trust on reading all of these tests. My default is always to get more opinions - from outside if possible.


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  • vampeyes
    vampeyes Member Posts: 1,227
    edited May 2018

    I am so with you NotveryBrave, I just don't know if I trust them. Did they say it's arthritis because they say my cancer was not aggressive or can you actually tell it's arthritis. From what I have read on the Canadian Cancer site it's difficult to tell the difference between spinal mets and arthritis. No more tests and no follow up appointment with MO - although I had not planned on returning to him anyway.

    They didn't give me a copy of the Radiology report on the second CT, so hopefully I will have that tomorrow. The doctor filling in was just relaying what my MO had told him. He couldn't answer any of my questions.

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  • ksusan
    ksusan Member Posts: 4,505
    edited May 2018

    Craziness, but I hope it was the generalist who misinterpreted!

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  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2018

    Yeah - I'm not planning to go back to my MO, either. Just too many times with a lack of communication and my concerns about follow up. I also always feel like I'm kind of an inconvenience for him.

    Which reminds me that I need to get going on finding a new one!


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  • vampeyes
    vampeyes Member Posts: 1,227
    edited June 2018

    Soooo I think I finally know what caused my breathing issue......ASPARTAME! I have been changing my diet, eliminating diet pop was one thing I removed. No breathing issues, then yesterday I heard a piece of gum and within 10 minutes those breathing problems returned. Sure enough one of the ingredients aspartame. A friend stunt me this kink:

    https://www.livestrong.com/article/421125-side-effects-of-allergies-from-aspartame/

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  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited June 2018

    Wow. Never even thought of that! Come to think of it, my sister is allergic to aspartame. It gives her heart palpitations and chest pain.

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  • Johned9
    Johned9 Member Posts: 10
    edited August 2018

    IAM not giving medical advice your medical teams does that report this to your Dr now I went through that and it was fluid buildup in lungs because of the tumor was still there I had to have it drained off then they placed a portal catheal tube in lung to drained fluid it was better than going to hospital every WK to have it done and now IAM on oxgen hope this helps you

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