Treatment after DCIS, BMX, HER2+, ER & PR +

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Tiger720
Tiger720 Member Posts: 1

I was told by two doctors my cases is not typical text book case. DCIS in left breast, BMX, HER2+, PR & ER+ & TE. Microinvasive carcinoma .55mm. Tumor=1mm and 26 microinvasive 01 to.55mm. One doctor says possible chemo and the other states rads along with tamoxifen. So frustrating...

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  • Moderators
    Moderators Member Posts: 25,912
    edited April 2018

    Tiger720, we're sorry you find your self in this situation, but wanted so say welcome! We hope some of our Community members come along to post soon with some insight and advice.

    As you can read in the article How to Read Hormone Receptor Test Results from our main site, "hormonal therapy (such as tamoxifen) may help to slow or stop the growth of hormone-receptor-positive breast cancers by lowering your body's estrogen levels or blocking the effects of estrogen. These medications also may reduce the risk that the cancer will come back."

    If your cell sample tests positive, it's not unusual that your doctor will prescribe some form of hormonal therapy at some point in your treatment plan. Follow this links for more information on Treatments for Hormone-Receptor-Positive Breast Cancer and to know more on Treatment for DCIS.

    We know it's a decision you have to discuss with your medical team, but information always helps get a better perspective on all this!

    Please come back to let us know how you're doing!

    The Mods

  • exercise_guru
    exercise_guru Member Posts: 716
    edited May 2018

    So sorry to hear your situation. May I ask around what age you are?

    So if I understand correctly you had a dbl bmx and they confirmed that the one breast has micro her2+ cancer and the other had DCIS that had not turned into IDC? Was the microinvasion in the nodes?

    I had a very tiny tumor that was her2+ but upon surgery it was larger than originally thought but regardless I had TCH chemo. Herecptin is a miracle drug and her2 is worth considering chemo regardless of how small the tumor is because even tiny her2 can come back later. Rads is not often recommended after bmx because there isn't much breast tissue left.

    Definitely I would want herceptin and tamoxifen.



  • mjl432
    mjl432 Member Posts: 10
    edited August 2018

    Hello all. Not sure if anyone is still active on this thread, but I may be in this position (then again, maybe not). No one seems to be able to figure out what I have, partly because, luckily, the invasive cancer within a larger piece of DCIS was small (2-3 mm out of a 2 cm mass). Had BMX as I have ATM mutation and SLNB (four nodes), and they said that there was a micrometastasis of .25 mm in one of the lymph nodes. Given the amount of tissue they have to work with, they are having trouble figuring out what kind of invasive cancer is there (at first they thought invasive papillary carcinoma), whether it is HER2+, and what my Oncotype DX score would be. So I am a week out from surgery and likely won't know much more for a few more weeks since pathology hasn't got a lot to work with but is going to try to do a FISH test. Was told the likely recommendation would be Tamoxifen and possibly Herceptin, and started looking at HER2+ info today after not having done so before and now totally freaked out. Would love to hear how other people's experiences have been, what Herceptin is like, etc...

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2018

    I’d suggest looking up Beatmon. She had a similar situation. Also if it were me I’d be getting as many good opinions on the pathology as I could. Take care. I hope you get some answers soon.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2018

    I was going to suggest you PM Beatmon, but now that I think of it she is ER-, PR-, Her2 pos and did not have the luxury of hormonal therapy. She knows a bunch about Her2 pos, though. (Hi Beatmon 😘)

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