Does ultrasound show ibc?

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Byoung
Byoung Member Posts: 8
edited May 2018 in Waiting for Test Results

had ultrasound for the 4 the time.

Swollen lymph node 1.8 cm that has been there for 6 weeks.

First itching, shooting, swollen red breast happened four months ago. Now getting pain in shoulder blade.

Swollen collourbone lymph and chest lymph doc said that has nothing to do with ibc.

Blood tests came back normal with a slightly raised esr.

I have melasama covering both breasts as well.

Won't do punch biopsy or mammogram as I'm feeding A baby.

3 rounds of medications for apparent mastius but no infection on bloods or ultrasound.

I'm frustrated as I feel I'm being shrugged off as breast feeding. But breastfeeding dosnt cause one boob to double in size in a matter of hours.

Would an ultrasound 4 months later show anything at all or would bloods pick it up if it was in my lymph nodes.

Please help.


Comments

  • Bounce
    Bounce Member Posts: 574
    edited May 2018

    "Won't do punch biopsy or mammogram as I'm feeding A baby."

    Have you been advised to do a punch biopsy?

    I am sure your baby would prefer to grow up with you bottle feeding rather than you delaying getting a proper diagnosis.


  • Byoung
    Byoung Member Posts: 8
    edited May 2018

    Sorry i should have elaborated. Doctors wont do a punch because of bubbs. As i right this i have tears in my eyes. My nipple literally retracted in my other breast tonight. I have massive lumps im my neck that were not there last week. Omg how can the health system let me down so bad. This is the 4 th month i have been asking for help.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited May 2018

    Byoung...are your tests ordered by pcp or gym...or oncology or surgeon. I don’t know much about IBC, but if you feel that you are not getting the right care may be it is time to move on.

    I’m sure the IBC ladies will pop in with advice.


  • EveryTime
    EveryTime Member Posts: 18
    edited May 2018

    Are you seeing the same doctor for everything and what kind of doctor? It sounds like you need to pursue another avenue for help with this. Can you?

  • Byoung
    Byoung Member Posts: 8
    edited May 2018

    so I ended up in hospital this morning. Strangest thing happened last night woke up in a pool of sweat and felt patches of lymph nodes. Swelling all through my arms and neck behind my ears. It was like little grains of rice but hundreds of them. Well doc took blood. Came back everything fine except neutrophils were high. I have huge swollen glands from my thyroid and 4 new hard nodules out the top of my throat. I almost have no neck. He also told me that they wont do anything for me. I feel helpless. I know in my heart I have ibc. I had everything the intense shooting pains the fungal looking rash that's still there and spreading up my chest shoulders and since last night my neck. I have lymph nodes that have fixed to the back of my neck really hard. All my coulorbone lymph is still swollen been like that for 8 weeks now. Lumps are in my right armpit now to not round lumps but more like firm flat tissue. I feel like screming at some one for help. No one Is listening. My mum is trying to reasure me by looking up a million other things. She thinks I have scardiosis, a fungal infection, a brain disease and the last one was stress and my mind is doing this. I honestly go to bed everynight look at my babies I know now its taken so long to get a diagnoses that when I do it will be bad. I have the most intense shoulder pain. I've already accepted it. I have lumps all through my chest. Because I'm breast feeding my boobs are suppose to be swollen indented and one red. This rash is like I burning from the inside out its itchy and then burns like hell. I'm so dissapointed. I think you will have to get used to me. At this point I don't think I even want a diagnosis I think it will be that bad. I don't want to be given a time on my life when I have babies to grow up and I want to be there and hold them when they are sick. I'm so sorry if I'm offending anyone who has a definaye diagnosis. But the timeline like mine is like so many others except I don't get an early diagnosis even though I have literally cried and begged and had doctors yell at me. I wish I could find one other thing that mimics ibc. These bloods have confirmed it for me. I had clear bloods 1 week ago. And I litteraly felt this thing invading my body last night almost could feel it running up my chest and neck. I know for sure in myself I have it. I've cried, even started organising my kids for me not going I have even gave up breast feeding because my daughter loves Me so much and smiles and kicks her legs when ever I am near. I've looked and researched this thing with every article written and I have to say it won't be nice for me. I know I probably sound crazy and a massive Debbie downer. In the beginning I would have been early I was inspired that I might beat this thing to and be able to go into Ned but i have been let down by the medical system here in Australia. I won't go on anymore I'll pretty much have to be gone by the time someone helps me. I'm a breastfeeding 25 year old. Makes sense I guess

  • Byoung
    Byoung Member Posts: 8
    edited May 2018

    im sorry again I just need to vent my husband is sick of me touching he's lymph nodes and feeling he's skin. I probably sound crazy to ypus all to but this seems to be my only outlet

  • EveryTime
    EveryTime Member Posts: 18
    edited May 2018

    I am so sorry you are going through this, it sounds frightening. You say you are in Australia. I do not know your situation regarding health care; however, if it is at all possible, you should try to be seen at a large medical center, IMO affiliated with a medical school. If your mother is reading about conditions, perhaps she can research places you could be seen for an evaluation and even contact some medical departments re: obtaining an appointment, even if you have to travel. Again, I don't know your health care situation, and I am not a doctor, but it sounds like some of your concerns could be better addressed.

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