Shooting pains, redness and over it!

This is long and I'm sorry To anyone who is currently diagnosed and going through so much but I really need help from people who might actually listen!

I am 25 year old female, breastfeeding a 4 month old. Please don't jump to here is another breastfeeding mother. I can assure you I feel it in my hard that I definitely have inflammatory breast cancer.

So it started out 3 weeks post pp. Me and my partner got down to business long story short we wernt quite prepared and as I almost ruptured during pregnancy with my daughter the surgeon specifically told me do not get pregnant you will more than likely rupture. So I panicked and took a morning after pill 1500mg of levongesterol. That's when it all began.

I will give you a bit of info that may be relevant or may not be. I believe people on this site will know more than doctors.

So I had my period at the young age of 9.

I am 5ft 11 and always have been tall.

I was put on and off birth control for my moods in my teenage years.

I gave birth to my first baby boy at 18 and he was born premature at 26 weeks. (Doing beautiful) express & breastfed for 4 months.

Fast forward 7 years I fall pregnant with my daughter. Was put on hormones prevent another premature labour. Progestogen.

My milk came in very engored 2 weeks pp everything settled down boobs were fine than my husband came along and messed up the show.

So after I took this pill I developed a 50 cent piece sized red ring pimple rash. Had intense itching like a itch that couldn't be scratched for 2 weeks I itched like mad also had the sharp shooting stabbing pains deep in breast.

Then my left boob went swollen and red not engorerd hard but a tender swollen if that makes sence.

Went to doctor 1 week later. Said I had mastitis and ordered ultrasound. Ultrasound she day before medication came back fine, but took the medication anyway.

Went back to doctor 10 days later with no change, asked if ring rash had anything to do with it she says oo yes that's ring worm, mind you there was no distinct ring just a pimple circle of pimples. Use antifungal cream.OK

Antifungal didn't help, boobs still engorged left one very bigger than other and red on one boob and a tiny bit on the other.

Went to hospital one night couldn't sleep so swollen. Told it's eurethmeus, tender and hot no pallable lymph nodes.mastitis.

Went back to doctor prescribed penacillian didn't work. Boob still angry red.

Skip forward another week and I'm on holidays with my hubby and I can feel lumps in my chest, tied cabbage leaves and hot and cold and that night woke up at 3 am my boobs just went like swollen they were no longer firm they were saggy swollen water filled boobs not like the kind you get with milk but different. I can't explain it but it scared me a lot. Then the skin changed I developed this light brown overcast like a velevet rash with red dots on my belly chest and neck and what looks to be extreme stretched skin. Left boob is still red and right boob still has the red patch.

Went to hospital on way home. Was so freaked out just didnt know what was going on. Oh you have cellulitus? But my ultrasound was fine and cellutius hurts? My left boob has actually gone numb. I Can pinch it and not feel a thing. Well yes I'm not sure just keep expressing and keep ice packs. Well the shooting pain stopped and the itching stopped when the breast swelled with fluid if that makes sence.

Back home now. Go back to go bloods get ran and nothing comes back. Lymphnodes in chest but not over one cm.

Googled my symptoms and long behold ibc.

Omg I found out what's wrong then I started reading the statistics and that put me into over drive.

Book in for breast specialist and go see him. Yes boob is red one is warmer but that looks like normal skin to me. Mind you my hair follicles are huge and my boob is red and swollen. I ask about ibc and he said I'm to young. He sent me off for an ultrasound. Came back fine and he will see me in a month. Here is a prescription for mastitis well if the ultrasound says I don't have mastitis why are you prescribing me anti biotics. He looks at me well you can take them if you get pain.

Go home. Read more on ibc. Go to my doctor the next day beg for a biopsy request or MRI I'll pay for it. He laughs in my face that I don't have a lump and my breasts are not ulcered. He gives me a cream to clear my brown dusty looking rash. Go home put on the cream. Shooting pains again holy crap boob back into over drive.

Go back to doctor he tells me that if I ask him one more time for a biopsy he will take my daughter away because I'm crazy. I tried to show him pictures of breast like mine and he said he didn't get he's degree from google. Prescribed me anti depresents.

So I go home try and pull my sh&$ together for my kids. Well that didn't last long I packed up and drove to my sisters a 9 hour hike. Saw a doctor up there. He ordered bloods and nothing. Agreed with me about ibc and sent me to breast specialist 2 weeks later.

Breast specialist also said I'm to young. Told me mastitis. I said for crying out loud 2 blood tests 2 ultrasounds I don't have an infection. He will see me in two weeks I go back. No lymphatic invasion in the under arm no pallible lump. He was happy. Okay so I let it go. Just forget it. No one is listening maybe I am crazy.

Well now fast forward 1 month and the pain comes and goes throughout the day and night. I have pain in my back left shpuldblade that is unbearable. Feels like I have pulled a muscle. And the shooting pains are relentless.

Somebody please weigh in. My chest nodes are so much bigger and I also have this weird grainy sand rice like patches under my arms and my boobs have massive big cysts? In them and lumps that have just come out of no where. Yes I am due for my period it did come back last month with all the stress so I'm 1 week off that. But that has never caused my boobs to look stretched like massive lines and red at the same time. Plus this shoulder pain and the intense burning stabbing I get. Also these changes are strange.

Should I let it go or go see someone else. I really am exhausted sick of being laughed at. And I don't know if I am actually crazy. Its been 3 months now since first itching happened. Would this sound like an ibc timeline. At this point of time I'm not even worried anymore I just want answers. I have literally so over being told its just pregnancy breast changes. When I know what they are. Can someone please tell me weather to drop it or to push once more. I feel defeated.

Also what is skin thickening as I'm being told I don't have the classic skin thickening.

And is peel d orange stretched hair follicles or does it have to be very raised or bumpy.

Thank you for your time

Again I'm so sorry for the rant.