Starting Chemo May 2018

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  • CoComedy
    CoComedy Member Posts: 38
    edited May 2018

    Hi ladies! I’m finally back from the “chemo fog” of AC #1. My only serious complaint was the nausea! Finally, after calling my Onc TWICE I was prescribed 2 more meds to take at home that helped. My best advice is to start taking meds immediately! Don’t wait for the side effect to appear! Other than that, I had a headache and was extremely tired. The head ache could have been from all the anti nausea drugs too though.

    I had the automatic Neulasta box attached to my belly after chemo on Wednesday. 27 hours later it administered the drug and I pulled it off and threw it away. So excited about this! It didn’t bother me at all to have it attached and saved a trip to the Onc the next day!

    All in all, AC #1 wasn’t as bad as I thought.

    I got the infusion about noon Wednesday. Felt nauseous that evening but better once anti nausea drugs started working. Went to work for a little while Thursday morning. Started feeling rough that afternoon, called Onc and asked If there was more I could do to help with the nausea. Friday was more of the same with nausea getting worse. Called Onc AGAIN and said I was miserable. They prescribed two more anti nausea meds which really helped! Slept most of Friday and Saturday. Started getting appetite back Saturday night and asked hubby to get me fried chicken. I haven’t had fried chicken since 1992!!!! Lol!!! Woke up Sunday morning (today) feeling better. As the day progressed and the more moving around I did, the better I felt!! Tonight, I feel GREAT and ready to tackle AC #2! Good luck all my fellow warriors!


    Hugs!!!

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2018

    I had a dream this morning that I was buzzing my hair because I’d had a dream about buzzing my hair. How meta is that?!? (I think I was thinking, “No it’s too early. That was a stupid reason to do it. I could have waited.”

  • ClareCo
    ClareCo Member Posts: 66
    edited May 2018

    hi everyone-it’s good to see you all. I had my first chemo on Wednesday May 2nd. Got the face and chest flush day two. Also on day two and Seven hours before the nulasta shot I started to get bad muscle pain. Spiked a fever so MO said to head to the ER. They admitted me and kept me 3 nights (could not control the fever) and couldn’t find any infection so they sent me home Sunday. FINALLY when I got home and curled up with some ice packs I fell asleep and the fever broke. Sweated through three sets of pajamas but boy oh boy do I feel better!! It’s been good to read about how all of you are doing! Hopefully I’ll have more positives to report soon. But if anyone is having similar side effects and wants to chat do just let me know. We can get through it together!

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2018

    CoCo--you go girl!! Oy, Clare--glad it sounds like you've turned the bend on this one.

    I posted in some of the older "month" threads--I'm suddenly very curious about timing of SEs (as my summer weekend social calendar fills up). I know it's early for us, but I would love to hear about your good vs. bad days. I called my infusion center this morning to see if I could change my Wed appts to Fri. It seems like most (but not all) women feel pretty good on days 1-2, and start to go down hill around 3-4. I work from home and am fine with feeling crappy on work days. But I want my weekends!!

  • SAW66
    SAW66 Member Posts: 22
    edited May 2018

    Hi everyone,

    My first round of chemo was on 5/3 and I posted what the day was like earlier in this thread. Day 1- woke up nausea, ate crackers- was fine. Face was flushed. Had a headache at night and toke Tylenol pm and went to bed. Day 2(Saturday) Woke up with a headache and was nausea. It was pretty much like that all day. Tired, napped in the afternoon. Sharp pains in the left leg and teeth hurt (?). Walked around a lot to help with the muscle ache. I took Advil and ate crackers and finally took nausea meds at night. The nausea meds took forever to kick in, that is why I haven't taken them. Maybe I need to take them sooner? Day 3 (Sunday)- mild headache and nausea. Again toke Advil and ate crackers and felt pretty good the rest of the day. Was hungry...muscle aches are still there, continued walking. Today ( Mon) I felt fine. So, if I went by this first go around for treatment, my bad days start day 2. I always heard 3-4 days. I'm sure it can change. I think I will stick to either Thur or Fri for treatment so I can have my bad days for the weekend, in case I want to try to work. I just figure life is going to be on hold for awhile and this too shall pass.

    My port has been bothering me, anyone else? Like it just feels strained..I cant really describe it..But I have it for a year, so hopefully soon I will just get used to it.

    I am not getting the AC, just Taxol and herceptin for 12 weeks. So, my symptoms seemed to be milder than some of you. So, for those of you going through the AC, stay strong!!

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2018

    Congratulations on having one behind you, Saw!! I'm thinking I might take some of the anti-nausea meds for a day or two just because why not. Hunger is good! So no. . . um. . . intestinal issues?

    FWIW, I have read on other threads that the convention is to count treatment day as "Day 1". That would make this past weekend Days 3 and 4 for you. Let us know how the next few days go. Inquiring minds want to know!

  • SAW66
    SAW66 Member Posts: 22
    edited May 2018

    Ingerp- thanks for letting me know!

  • wlo002
    wlo002 Member Posts: 46
    edited May 2018

    Hi everyone! I decided I would join in for May starters...makes me feel a little less alone out here. I'm starting neoadjuvant TCHP Wednesday 5/9. I'm anxious to get started and scared as heck at the same time. I've spent the past 2 weeks preparing for every possible side effect...yes, I'm a little OCD when it comes to planning, but it's better than sending my husband on 50 trips to Wal-mart. I was told that the first infusion would be 7 hours (yikes!). Anyway, glad to be here and looking forward to learning from everyone!

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2018

    wlo—welcome! Someone described the emotions surrounding the first infusion as anxious/ready/terrified. I think that sums it up pretty well! We’re right here with you.

  • Engine104
    Engine104 Member Posts: 301
    edited May 2018

    I've read that days 4-6 following a TC infusion are the worst. My wife is on day 4 and she is going through that now. Very bad fatigue and achy. She also was constipated, but some Ducolax has helped that.

    I know this is normal and expected, but any tips to help get through these worst days would be appreciated.

    Thanks everyone.

  • Regicasi
    Regicasi Member Posts: 1
    edited May 2018

    Hello Ladies

    I have been reading for a little while and decided it was time to write. I was diagnosed with DCIS on 1/12/18. I had a bilateral mastectomy with immediate reconstruction on March 19th. That was supposed to be the end of my journey. During surgery the pathology came back that my cancer had spread to my lymph node. It was a very big surprise for everyone most of all my team. We learned that I would need 12 weeks of taxol followed by 4 infusions of A/C over 8 weeks. I had my port placed on 5/2 my birthday and first infusion was 5/4. Day 2 was great. Day 3 i had a cold with a sore throat. Ugh!! Today day 4 the fatigue and joint pain lasted all day. Just went away now 9:00 pm. And now the nausea and hot flashes have started!! I was hoping to go to work tomorrow. I planned my schedule for every Friday infusions. Hopefully day 5,6 and 7 will be easier. Sending Good thoughts to all of you

  • CoComedy
    CoComedy Member Posts: 38
    edited May 2018

    Hi Engine,

    Sorry your wife is going thru the tough days right now. I would call the doc if you think she’s experiencing worsening se’s I’ve only had one treatment so far but called the Onc twice when the nausea kept getting worse and worse. They ended up prescribing two more anti nausea drugs that really helped! Best of luck to you and your wide

  • CoComedy
    CoComedy Member Posts: 38
    edited May 2018

    Ingerp, I’ve had some crazy dreams as well. I had my eyebrows “microbladed” a couple weeks ago. I dreamt last night that my eyebrows finally fell out. I was super excited because I wanted to see what my tattooed brows looked like. When I looked in the mirror my “fake” ones were gone too. I was so sad! Lol!!! Certainly didn’t anticipate this 6 months ago. Haha.


  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2018

    This hair stuff is obviously weighing on our minds, Coco!!

  • DebAL
    DebAL Member Posts: 877
    edited May 2018

    Engine, sorry to hear your wife is feeling bad. Hopefully she is staying hydrated, resting, and able to eat to keep her strength up. What you are describing seems to be normal. In addition to this thread. you may also want to check out the TC thread and see if that helps. I hope she turns the corner soon.

  • Engine104
    Engine104 Member Posts: 301
    edited May 2018

    Thanks CoComedy and DebAL..

    From everything I've read on here, this is normal. Crappy, but normal. No fever, thank goodness. No nausea so far, just very achy and very tired.

    We have a post-op visit tomorrow with the surgeon and then labs next week with Onco.

    This board is such a great help. Thank you all so much. I pray for the best for all of you.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2018

    Hooray!! I got my infusions moved to Friday. First one is now scheduled for 5/18. Fingers crossed my weekends are tolerable over the summer

  • BigPeaches
    BigPeaches Member Posts: 266
    edited May 2018

    Joining you ladies as I start Taxotere, Projeta and Herceptin May 15th. Yipee.

  • Jaybird627
    Jaybird627 Member Posts: 2,144
    edited May 2018

    Welcome BigPeaches!


    I wish I could drink during the day but, alas, I am too responsible.....


    A weepy day, feeling sorry for myself.....


    Cheers!

  • ClareCo
    ClareCo Member Posts: 66
    edited May 2018

    hi everyone. I’m back on my feet and giving going in to work a try. Not trying to be a hero—just felt like I ought to get out and move around a bit. Anyway, sending energy and optimism to all my fellow travelers: be kind to yourselves today

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2018

    Good for you, Clare! I do feel like pushing yourself just a bit to get out and about is a good thing. Wishing you a gently productive day.

  • Wildcolonialgirl
    Wildcolonialgirl Member Posts: 123
    edited May 2018

    Hello everyone, I actually started the March 2018 thread for chemo but have been reading the more recent ones and just wanted to offer a few thoughts from my journey.  I just finished 4 rounds of TC - Taxotere and Cytoxan - last Thursday.  For those on this regime, at least for me it was pretty predictable - and my "bad" days were afternoon/evening of Day 3 and all of Day 4, which became known as my "ick" day.  I noticed that skin rash SEs were worse during Rounds 1 and 2, less on 3 and even milder (so far - I may jinx myself!) for Round 4.  Skin issues were Days 6 to 12 usually.  By Day 10 I was feeling pretty good and the final week before the next round I felt (almost...) back to normal.  Everyone's treatment is different but it does seem that the TC follows a fairly similar pattern for most of us on it.  I found the hydrate, hydrate advice  very helpful, and have over-moisturized all of me, especially nail beds for fingers and toes.  I also had horrible back spasms the first round about a week after - I got the Neulasta shot each time - and so I ended up taking Claritin for 10 days and not the recommended 3, and that really helped.  

    For everyone just starting, the road will seem long, particularly I think when you hit the middle of your treatments - but it will, and does, pass.  It can be frustrating - I have described it as being stuck in a waiting room - but know that there will be an end.  Wishing you all the very best!

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2018

    So sweet of you, WCG. We newbies love to hear stories from the old timers. Your encouragement is very generous and much appreciated.

  • SAW66
    SAW66 Member Posts: 22
    edited May 2018

    wlo002- Welcome- I did the same thing and literally told my husband that I don't want him running at the 24 hr walgreens. Good luck today!

    Engine104- Hopefully things are letting up...sending hugs her way.

    Regicasi- Welcome- Well Happy Birthday to you! I have experienced everything you had so far, except hot flashes. I hope the next few days before your next treatment are "good days".

    BigPeaches- Welcome!!

    ClareCo- Good luck with work today!

    Thank you Wildcolonialgirl for sharing your experience. I am glad we have people to talk to while we are in the waiting room!

    Ingerp- looks like our dx is similar and our regiment will be the same. I will probably stick with Fridays as well. You inquired about my GI- for the past few days I have had loose bowels, not diarrhea or cramping. Now, I have been eating some spicy foods (Mexican), so I think I will start doing the bland diet to see if that helps. I also woke up today with a sore in my mouth and started the baking soda/salt mouth wash. I was brushing my teeth after every meal, but got lax on it. Plus my teeth have become sensitive and ache.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2018

    Saw I don’t even eat Mexican food when I’m healthy! ;-)

  • ClareCo
    ClareCo Member Posts: 66
    edited May 2018

    Thanks for the encouragement Wildcolonialgirl!! Really appreciate your stopping by to cheer us on!

  • Engine104
    Engine104 Member Posts: 301
    edited May 2018

    LOL, IngerP.. My wife is missing her sushi, but she knows that is off the menu for the next few months :)

    Wildcolonia: Thanks so much. That is exactly my wife's experience with TC this first round.

    She seems to be feeling a little better and ate a good dinner last night.

  • buttercup1
    buttercup1 Member Posts: 24
    edited May 2018

    Yeah, the sunburn thing is terrible, but luckily that went away...and it was replaced by a ton of acne all over face/chest! I look like a sqeeky 15 year old with tons of white heads and pimples. And the diarrhea... Every morning at around 2am like clockwork despite imodium. Then there's the nausea after eating. Ugh round 1 has not been kind so far.

  • cccmc2
    cccmc2 Member Posts: 131
    edited May 2018

    thank you! It’s nice to know I’m not alone

  • Ultra1949
    Ultra1949 Member Posts: 14
    edited May 2018

    Hi everyone! Hope things are going as well as can be expected. The SE of bone pain has been relatively bad but better today. Today is Day 8 for me. Have had some bowel issues 😳 but took Immodium and it’s under control. I saw my oncologist this morning and he let me know my counts were down which has me anxious. Don’t want an infection for sure. Anyone else been confronted with this? Stay strong. Stay focused. 💗

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