wow! The MRI from HELL!!!!

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gwydiana
gwydiana Member Posts: 47
edited May 2018 in Waiting for Test Results

What a truly horrific day :( Underwent a 70 minute long MRI with contrast dye shot through my veins. I spent 70 long ass minutes trying to NOT throw up, staying as still as a statue, in a suffocating MRI machine face down with my breasts stuffed into "coils" and the muscles in my back in total spasm. The noise was deafening and terrifying -- the air was so warm it was hard to breathe and I honestly didn't think I was going to live through this "procedure".

If I EVER have to do this again -- I'm taking copious drugs......

If you are scheduled for an MRI, please consider asking your dr for Xanax, Valium or some other type of drug. I cannot believe I survived this without....

Comments

  • Egads007
    Egads007 Member Posts: 1,603
    edited May 2018

    my first mammogram felt suffocating, claustrophobic and uncomfortable too. By the 4th I wanted to bring magazines and coffee in to relieve the boredom. I’m sorry it was such a bad experience for you, know that it gets easier if you do have to have another!

  • Frog-on-the-lilypad
    Frog-on-the-lilypad Member Posts: 190
    edited May 2018

    I am so sorry you had such a bad time. I was so glad that I chose to take sedatives. I had no clue what I was getting into. But I was not feeling very brave and when they suggested sedatives, I did not say no. I thought I will save my bravado for the upcoming fight.

    I remember the last 10 mins vaguely and that was loud. Please, take sedatives before MRIs. I will.


  • gwydiana
    gwydiana Member Posts: 47
    edited May 2018

    there are more MRI's to come? I thought it was one and done :( The place that Kaiser sent me was our local teaching college hospital -- here in San Diego UCSD Medical center is truly the worst of the worst. The nurses were super nice but the facility was in abysmal shape and they told me it would only be between 20 and 30 minutes. It took over twice that long with zero communication from the guy operating the MRI machine. It was just awful.

  • Egads007
    Egads007 Member Posts: 1,603
    edited May 2018

    Gymdiana - this may be your only MRI, I had 4 for various reasons, original during diagnosis, one for liver, another for a shadow that showed on US duringbiopsy, and the final for mri guided biopsy.

  • gwydiana
    gwydiana Member Posts: 47
    edited May 2018

    Egads007,

    I'm so very sorry you've been put through that!!! This disease is unbelievably brutal :(

  • Falconer
    Falconer Member Posts: 1,192
    edited May 2018
    Yup, I'm still having PT thanks to that first 90 minute MRI guided biopsy where I held my arm over my head and was told not to move. When I was finally released my arm was shaking and my neck in a spasm which has yet to release. That was almost two years ago.
  • gwydiana
    gwydiana Member Posts: 47
    edited May 2018

    Falconer, OMG!!!!! I hope they gave you lots of muscle relaxants and good drugs!!!


  • Egads007
    Egads007 Member Posts: 1,603
    edited May 2018

    Gyw, thank you. Honestly I found the hardest thing was waiting and wondering...THAT I found agonizing. I sincerely couldn’t wait to get the chemo, surgery and rads...I wanted it gone, and was grateful that I had all the medical tests etc there to make it happen. Was it pleasant? No, not at all. But I decided to emotionally take the tests/treatments as positively as I could In order to stay sane. We had a discussion on another thread here recently about being stoic, and I related what my mother said to me at the beginning: “you can do this two ways, the easy way or the hard way”. Made sense to me. I’m hoping the rest of your journey comes easier!

    Keep us posted on your progress :)

  • Lula73
    Lula73 Member Posts: 1,824
    edited May 2018

    oh my goodness! No headphones with music to drown out the god-awful noise the machine makes? It was hot?!? The imaging center here gives you the option of headphones with pandora playing through them. The room is absolutely frigid to keep the machine cool as it heats up during the scan. I just close my eyes to deal with any claustrophobia. The dye can cause nausea so anytime you have to have a scan of any type with contrast be sure to ask your dr for a prescription for zofran. I’m so sorry you had such a bad experience. Hoping the results are favorable.

  • Egads007
    Egads007 Member Posts: 1,603
    edited May 2018

    I thought the whooshing sound was like a bicycle pump, and the imaging noises reminded me of something out of the original Star Trek tv show, or a bad sci fi movie

  • gwydiana
    gwydiana Member Posts: 47
    edited May 2018

    Lula73, I have Zofran! I didn't think to take it....nobody told me about the side effects from the contrast dye and I quickly researched it before going to the MRI and didn't see anything about nausea.

    Now we know :(

  • Libber
    Libber Member Posts: 86
    edited May 2018

    Hi. I agree that was definately the worst experience through the whole process. And I took Ativan the first time and Oxy the 2nd time. I had headphones with music but that didn’t drown out the noise. Also had biopsies on both breasts via MRI. Torture. I work in healthcare and get mad about the diagnostic process that can be so torturous at times. Have made it a personal mission to try to change some of the uncomfortable experiences with some limited success.

  • chronicpain
    chronicpain Member Posts: 385
    edited May 2018

    Here is another thread with women reporting MRI problems. I simply could not do it despite trying very hard


    https://community.breastcancer.org/forum/83/topics/703811?page=2#post_5082058

  • Lula73
    Lula73 Member Posts: 1,824
    edited May 2018

    as the dye exerts it's flushing effect it can trigger nausea in some people. Combine that with the room being hot and it's a recipe for disaster. The qucker the dye is pushed can also cause the severity of SEs to worsen. I swear to this day that I had a small heart attack that resulted in a left bundle branch block during a CT scan last year where the dye was pushed super fast in greater quantities than I've ever had. Unbearable heat, nausea, shortness of breath... I've had 100s of scans at this point in my life with & without dye and while it can be uncomfortable at times, I have never once had to even think about calling a halt to the scan. On that CT I literally thought i was going to pass out, die or both. I was raising my handto signal something was horribly wrong when they stopped the infusion and said we were done. The symptoms lessened but I was unsteadybon my feet, dizzy when I sat up, chest felt funny, a little wobbly walking down the hall to exit the building. A month later I have an EKG for pre-op purposes and there it is-the LBB. Of course everyone tells me contrast dye can't/doesn't do that. I beg to differ.

  • gwydiana
    gwydiana Member Posts: 47
    edited May 2018

    Oh Lula, How horrible!!!!!!


    Now I feel like an ass for complaining about my discomfort. It seems that others went through much worse which is incomprehensible to me!

  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2018

    Wow my SIL had this same reaction and she was mad at me for saying it was easy. I wasn't lying to her I wasn't that uncomfortable.

  • Lula73
    Lula73 Member Posts: 1,824
    edited May 2018

    never feel like an ass for complaining about your discomfort! Nausea, heat and claustrophobia are not minor and can trigger panic attack, make you pass out and raise your bp just for starters. I was only trying to let you know with my example that everyone’s response can be different and even your own response can be different scan to scan. And that the literature, docs and techs aren’t always accurate on SEs. Sometimes it just takes the perfect unique conditions to create an unusual set of SEs which usually aren’t part of the study designs they’re all referring to for their information.I sincerely hope any additional scans you have to have are more comfortable and shorter 🙂


  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2018

    Well, I can tell you this after what my SIL experienced, similar to yours, I will never tell anyone the breast and lower body MRI is a piece of cake. I consider myself very lucky with my experiences.


  • gb2115
    gb2115 Member Posts: 1,894
    edited May 2018

    I take Ativan for my MRIs, and they tape the earplugs down so they stay in. I had a really sore sternum (and ribs) after the last one. They also butchered my arm trying to get the iv in. And now they can't figure out how to code it right for the insurance claim. I don't think I want to go back to this particular imaging center...

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited May 2018

    I guess I was lucky, too. The room was a comfortable temperature and they played my favorite music on headphones. Many things make me nauseated but I didn't have any nausea from the MRI contrast.

  • Recap
    Recap Member Posts: 120
    edited May 2018

    My guess is that the amount of contrast put into your vein should be adjusted according to the size of your body-they probably adjust it by pt's weight, but I suspect the length of the journey is also important, if you think of the contrast as a little car chugging along thru your veins.

    I felt nothing from the contrast, but I am 5'11" (long arms) and so the material has to travel farther, and I am guessing the longer the journey the more gets absorbed along the way.

    I would be curious to know at what point the contrast enters the breasts-after the stomach, before the stomach, does it branch out into every vein in your body, enter the brain even? If you have absorbing type food in your stomach, it probably lessens the nausea, but too full of stomach or coated stomach maybe it floats to the top??

    I am curious what each MRI room was like for all of you. I was at a major medical ctr and it was an enormous room with an upper tier control room looking down. Consequently most people here complain about being cold, and I had the added effect of oxygen blowing at my nose.

    I was squeezed like a sausage in my shoulders MRI machine (to the point of difficulty inhaling) which was much smaller than my breast MRI machine.

  • Falconer
    Falconer Member Posts: 1,192
    edited May 2018

    Libber, thanks for your conscious effort toward improving things!!! Sorry so many of you have pain.

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