Keto Diet

JustG22
JustG22 Member Posts: 33

Has anyone been recommended the keto diet?  I've been doing a lot of research and all signs point to it being preferable for cancer patients.

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Comments

  • Lolis197138
    Lolis197138 Member Posts: 512
    edited February 2018

    Hi,

    no diet recommendations from any of my doctors. I haven't asked them but my MO said that exercise is very important for bc patients. something that I need to start doing.

    Lola

  • janky
    janky Member Posts: 500
    edited February 2018

    Ha! Ha! That is what both my MO and RO told me - exercise is sooo very important and more so for bc patients :( I started using a 'dreadmill' (treadmill) and go on it daily for 30 minutes give or take, usually 2 x 15 minutes while watching a tv show...I will never be an exercise buff, but will do my best to keep at it.

  • bevin
    bevin Member Posts: 1,902
    edited February 2018

    a dear friend of mine followed it on advice of her doctor after a hospital stay.. she has lost 60lbs, is now off all her HB medication and her cholesterol meds. She is doing amazing and loves eating that way. You reallly need to eat fat and its a total mind adjustment she said. But for her very easy to follow. So for breakfaay she has coffee with butter in it, eggs and veggies, lunch is often small portion of chicken or fish w lots of veggies and some olive oil on them, or a salad w blue cheese dressing. Dinner similar. Small portion of protein , fat and veggies

    She sent me a bunch of links but you can easily Google the plan too.


  • JustG22
    JustG22 Member Posts: 33
    edited February 2018

    I am slacking on exercise as well. A few days of rain, cold weather and flu season has really thrown off my schedule.

  • Celebrate_Life
    Celebrate_Life Member Posts: 103
    edited May 2018

    Regarding the keto diet, has anyone read this article? I am thinking of trying it. I want to look for studies too.

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC42154...!po=86.4583

  • Egads007
    Egads007 Member Posts: 1,603
    edited May 2018

    I went Paleo/Primal 3 years ago. It’s somewhat close to Keto in eating, but not as restrictive so people are more likely to stick to it. It’s more a lifestyle which includes exercise as key along with the food. I couldn’t lose an ounce of the ton of weight I gained during treatment! Fast forward and I’m 56 lbs lighter, replaced 18 lbs of fat with muscle, and delve into the male dominated weights area of the gym. My blood labs according to my doc have gone from looking like Bart Simpson’s report card to ‘perfect’ (doctor’s word). Energy through the roof, tamoxifen SEs gone, acid reflux gone, ulcerative colitis gone! Rarely hungry! It’s not a diet! Yay!

    I cannot recommend Paleo/Primal enough! Try it (or Keto) for 7 days...betcha’ you see a surprise on the scale....I lost 7 lbs the first week and a steady 2-5 lbs per week thereafter.

    Too bad it didn’t do anything for wrinkles, skin does look better though. ;

  • Celebrate_Life
    Celebrate_Life Member Posts: 103
    edited May 2018

    Egads007, Thanks for your input and experience. I will check with my research oncologist and see what he says, then give it a whirl.

    Therese

  • Husband11
    Husband11 Member Posts: 2,264
    edited May 2018
  • Egads007
    Egads007 Member Posts: 1,603
    edited May 2018

    Celebrate - Don't be surprised if your RO goes against it. A lot of docs don't trust it and assume we're eating 10 tons of red meat every day, all deep fried or bbq'd. My BS, PCP and NP are in support of it, especially since the turn around in my blood levels and weight loss. My gastro doc also concurs. My MO however said "don't be going on a crazy diet!". Even after I explained that I had cut all white sugar, wheat/grains/legumes (inflammatories & high carb), processed food and very low dairy consumption, upping my veggie intake (tons of fiber) and eating red meat (usually braised) 1-2 times a week at most, lots of chicken fish, she still balked. Then I went on to explain that it wasn't a diet, it was a lifestyle that includes a consistent cardio/weight training regime, mind body & soul stuff as well as the food, she still didn't agree. More and more we are starting to see that the science is backing these low carb eating regimes. Just a couple of years ago it finally came out that eating cholesterol doesn't increase your levels, and now we're hearing that sugar/glucose is the culprit for a lot of medical issues, cancer included. I do think it is good that you are checking with your doctor first, always a wise move, I just thought I'd warn you of the possibility that he/she may steer you clear of it....and maybe for good reason in your case. You'd have the weigh the odds and do what is best for you in the end. I would think trying it for a week or two wouldn't hurt and that your RO may agree to a short test period. Much luck with it, let us know what happens!

    Husband - Thanks for posting the article...great info & good to know.

  • Laurie09
    Laurie09 Member Posts: 313
    edited May 2018

    I'm starting a clinical trial with the keto diet, that is assuming I can stomach it. Just finished my first week of Xeloda and made me plus my smell is so sensitive now so between the 2, I'm having trouble tolerating a lot of foods...

  • Egads007
    Egads007 Member Posts: 1,603
    edited May 2018

    Laurie - I’m sorry to hear you’re dealing with nausea, that just stinks! If you manage to go Keto I’m hoping it gives you as much relief as it did for my tummy. I had reflux something awful, but no longer. Hope you feel better soon and wishing the best for you

  • Celebrate_Life
    Celebrate_Life Member Posts: 103
    edited May 2018

    Egads007, Thanks for the heads up. I am not too worried about the docs. I have learned it is my life, and I know my body best. I also know what I am currently doing is not working and nothing will change unless you change something. Something new, something different. Like you said, I can try it for a couple of weeks and see what happens. I will keep you posted.

    Therese

  • Yaelle
    Yaelle Member Posts: 53
    edited May 2018

    Hello Ladies,

    Thank you Celebrate_life and Husband11 for the articles. I submitted them to my MO and will discuss them with her on monday.

    My GP (who is also dealing with homeopathy) already suggested me several times to go on this diet. Since nothing worked so far and Xeloda is even doing worse than Ibrance/Fulvestrant, I decided to start last tuesday (last day of my Xeloda round). As a sugar-addict I must admit the first days weren't easy. But now, I'm passed the sugar cravings and have more energy than previously.

    I even found biscuits I could bake without flour/sugar ... and love them.

    Hope the MO will agree, to let me continue on this track.

    Should you have tips or recipes, I'd be glad to read them.


  • BellaTassie15
    BellaTassie15 Member Posts: 106
    edited May 2018

    This really interests me, I've read so much about it! I've been low carb for 2 years but started on keto. I started mainly to lose weight and avoid type 2 diabetes, but recently have learnt so much more about its use in cancer. I've never followed macro percentages, just counted carbs and (higher)protein because I go to gym regularly. I’ve never eaten anywhere near the high amount of fat recommended.

    Anyway I’ve finally restarted keto this week. I’m obese and desperate to lose weight, especially since I know it is so bad for breast cancer. But this time I’m following the recommended macro percentages to loose weight. I’ve spent hours this week organising all the recipes I’ve printed over the last 2 years and put all keto into one folder. I’ve just started recording these recipes on Chronometer, previously I used an Australian app recommended by the dietician, but this has heaps more information on it and is actually easier to use. I’ve inputted most of the keto recipes now so tracking should be easy. And it links with my Fitbit, which is really helpful.

    I also do intermittent fasting/restricted feeding most days. I’m feeling more positive and in control now that I have plenty of recipes at my fingertips, and have already worked out most of what I will be eating tomorrow by inputting it into the app, so I can try a few different things to ensure I meet my targets. I will have to supplement more as I simply will be unable to eat some of the healthy carbs like the Greek yoghurt and berries I used to have daily. Actually the only fruit I’ll be able to eat with any regularity is avocado! The dessert I made tonight (to meet my fat target) had 50 grams of berries for 4 serves, which is a far cry from the punnet 125g I used to eat daily! But it was the Only fruit I ate because fructose is supposed to be the most unhealthy form of sugar.

    How are other people on keto monitoring ur intake? I told my Medical Oncologist last week that I was going back on keto, she was not concerned and just commented that I needed to lose about 6kg to meet the BMI required by the plastic surgeon for the DIEP flap next year (BMI28-30). I told her I wanted to lose a lot more than that and would just put it back on as the 12 months neared if I decided to proceed with reconstruction.


  • JFL
    JFL Member Posts: 1,947
    edited May 2018

    I had always felt a keto diet would be a positive thing to "starve" the cancer. However, about 6 months ago, I read an article that indicated that the byproducts/chemicals in one's body created in the ketogenesis process actually cause cancer cells to grow. After that, I have no desire to try it. On top of being extremely difficult to adhere to, it may actually make the cancer worse.

  • Wanderingneedle
    Wanderingneedle Member Posts: 222
    edited May 2018

    JFL, do you have information or a link to this article. I would be interested as I am on the Keto diet and have not had adverse side effects but I’m always willing to learn more.

    Libb

  • Heidihill
    Heidihill Member Posts: 5,476
    edited May 2018

    I have read this, too, about ketones feeding cancer and the major proponent is Dr. Lisanti

    https://www.tandfonline.com/doi/full/10.4161/cc.9.17.12731

    Whether this is true or not....who knows, but it makes sense that cancer will find a way to get energy if you deprive it of, say, glucose from carbs.

    I think (and I am no expert) if a ketogenic diet helps you lose weight  for upcoming surgery it could be worth trying and then switching out of it every once in a while just to confuse cancer.

  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited May 2018

    HeidiHill,

    Thanks for the article. It's fascinating. Here's the TL:DR:

    "Similarly, acute fasting in rodent animal models is also sufficient to dramatically increase tumor growth.22Goodstein ML, Richtsmeier WJ, Sauer LA. The effect of an acute fast on human head and neck carcinoma xenograft. Growth effects on an 'isolated tumor vascular pedicle' in the nude rat. Arch Otolaryngol Head Neck Surg 1993; 119:897 - 902[Crossref], [PubMed], [Web of Science ®], [Google Scholar]Both of these experimental conditions (diabetes and fasting/starvation) are known to be highly ketogenic and, thus, are consistent with our current hypothesis that ketone production fuels tumor growth. Finally, given our current findings that ketones increase tumor growth, cancer patients and their dieticians may want to re-consider the use of a "ketogenic diet" as a form of anti-cancer therapy."

    Wow.

    For now, I'm keeping to a diet that regulates blood sugar, and is low in animal protein.

    Again, wow.

    I'm dying to know what Z thinks. I know she's been mighty busy, but she is a great compendium of knowledge.


  • JFL
    JFL Member Posts: 1,947
    edited May 2018

    Wanderingneedle, the article I found (but could not relocate) was similar to the two posted by Heidihill and Blainejennifer. It might have actually been the same one from Heidihill. Thank you for posting those!

    For a weak breast cancer, perhaps starving it of sugar/carbs would be enough. However, my cancer is so aggressive, resourceful and strong willed, it functions on the “when one door closes, another opens” theory and always finds a way to sustain itself. Cancer cells are good at finding workarounds around low sugar (low oxygen, low estrogen and low so on and so forth) environments. I have no confidence anymore that starving it of sugar/carbs would shut it down for long, if at all. It has created a cushy, highly vascular setup for itself in my liver’s micro environment and has many options on the menu from my blood supply to keep it well fed.
  • Husband11
    Husband11 Member Posts: 2,264
    edited May 2018

    Not sure if the data from rodent models, applies to humans. If we had good data on humans, it would certainly trump any rodent model studies. Perhaps this is the closest we have yet to a clinical trial in humans:

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC47269...

    H

    This is a trial that is not yet recruiting, but is for breast cancer patients:

    https://clinicaltrials.gov/ct2/show/NCT02744079


  • NO1-2NV
    NO1-2NV Member Posts: 95
    edited May 2018

    Another resource you might want to look at are the studies that are being done at USC in the " Longevity Institute" and the Program on Longevity and Cancer at IFOM (Molecular Oncology FIRC Institute) in Milan all being conducted by Dr. Valter Longo. He and his fellow researchers have developed something called a "fasting mimicking diet".


  • EvaGor
    EvaGor Member Posts: 41
    edited May 2018

    I've recently started the keto diet but for weight loss purposes, not to fight cancer. I need to shed at least 20 lbs and ever since I've started the anti-hormonal therapy it's been VERY difficult losing weight, especially since 2 surgeries and radiation in a relatively short time put me into a state of severe fatigue and I've managed to put more fat on my butt than I'd like. Since I feel like a million bucks now and doing well on Kisqali, I'll also try to start some exercise along with the diet.

    I started with a 1 day bone broth fast and moved on to a low calorie (1200 cal) keto daily regimen: 20 g carbs, 65 g protein, 100 g fat. Getting enough fat is difficult. Yesterday I drank a shot of olive oil before bed just to keep up with the numbers.

  • Celebrate_Life
    Celebrate_Life Member Posts: 103
    edited May 2018

    EvaGor, that is one of my biggest concerns. For so many years I ate a low fat menu and how do I get enough fat during the day, besides ""fat bombs"... I have to change my thought process of fat.

    My idea and next plan is a mostly vegetarian keto diet. Work in progress.

    Therese

  • EvaGor
    EvaGor Member Posts: 41
    edited May 2018

    Celebrate_Life avocados have a lot of fat and are vegetarian as well! The only problem with avocados is that it's kind of hard to eat more than 1/2 without feeling nauseated.

  • newtothis9143
    newtothis9143 Member Posts: 2
    edited May 2018

    Prior to my diagnosis I had been following a ketogenic diet (under medical supervision) for weght loss....I had good sucess in weight loss, but wasn't always 100% "on program". Since my diagnosis I have been COMPLETELY faithful to the ketogenic program....it makes sense to me!

  • EvaGor
    EvaGor Member Posts: 41
    edited May 2018

    I'm not sure it will help with cancer, too many conflicting studies. But it's great for weight loss, I'm really having a hard time getting the 1200 calories, I feel full all the time! After I lose all the fat I want I'll move on to a low carb diet, with about 50-60 carbs a day. probably not enough to keep me in ketosis, but enough to keep me slim and not have cravings.

  • Yaelle
    Yaelle Member Posts: 53
    edited May 2018

    I was recommanded Keto diet by my MD, although the onc. is not truely convinced of it, she is OK for me to follow it. So, I started during my last week "off" Xeloda and must say that after a few hard days (headache) I know feel much better. I even have more energy than before and I'm no longer craving for sweets and chocolates.

    Even if there's no evidence of the effect on cancer, I feel it cannot harm and potentially could help. There are so many evidences for all treatments I've been given so far : hormonal therapies, targetted therapies and chemo's ... nevertheless none of them helped so far and mets are growing fast. So, why not trying ?


    @EvaGor,

    I mix my avocado with the juice of a fresh lemon and add coriander, parsley or chervil. By adding some salt/pepper, I get a delicious creamy texture, which doesn't make me nauseous.



  • Egads007
    Egads007 Member Posts: 1,603
    edited May 2018

    Eva - I average 60-80 carbs a day and still lose weight. 100 approx on workout days. I think ketosis shouldn’t be a constant state, everything in balance in my mind. The carb crave only hits me if I have an occasional paleo treat that includes a bit of honey. As for fighting cancer, I think any lifestyle that holds a healthy body weight improves odds, so IMHO low carb/real food living does indeed arm us for battle. Glad to see it’s working well for you

  • EvaGor
    EvaGor Member Posts: 41
    edited May 2018

    Egads007 agreed. My own MO told me that being overweight is not helping my ER+ cancer. So even if the keto diet doesn't "cure" me at least it'll stay healthier and better equipped for my battle.

    Yaelle I tried every possible way to eat avocado and alas, it always makes me feel a bit nauseated. I manage that with eating only half of an avocado, and saving the other half for later. This way I get 1 whole avocado daily.

  • BellaTassie15
    BellaTassie15 Member Posts: 106
    edited May 2018

    I know that being obese has its own risk factors, and with my huge belly I worry about being ER positive. I'm on tamoxifen which blocks oestrogen, but don't know enough about it, ie if any gets through. I would love to lose 20 kilograms, but think I might do it in stages. Perhaps 5kg then back to low carb for a while, then keto again for the next 5kg. I am able to have DIEPreconin May next year and the PS said not to lose too much weight as my BMI needs to be between 28 and 30. But I may not proceed with it so would like to reach the "healthy" BMI range in the meantime. I've been unable to loseweigh T the usual calorie restricted way since menopause, and keto does work for me. But I do find it very restrictive and very difficult to make the macros. I have thought about drinking olive oil to meet the fat level but have been too chicken to date! Lol

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