New Member - Biopsy Tomorrow Morning, Trying to Be Calm
Hi, ladies. I'm yet another new member facing a biopsy and losing her mind over it. I'm sure that happens frequently!
I'm 38 with a history of fibrocystic breast issues. First lump was found three years ago and was diagnosed as one of several simple cysts.
A few months ago, I thought I felt something different in my right breast but was so uncertain that I decided to check it again after my next period. I actually forgot about it. A few months later, I was trying to remember where it was. I don't think I ever found the same “spot" but I did feel something new at about 3 o'clock in the same breast so I called my GYN. She couldn't feel anything (I can only easily feel it while reclining rather than flat) so sent me for a mammo and u/s, which wasdone on the 23rd.
I was expecting just more cysts, however, when the radiologist came back with the tech, I knew something was up. He did a live scan. He mentioned to the tech a spot that he couldn't see very well. He asked her if appeared slightly darker and said it kept disappearing. He mentioned that it almost looked like scar tissue or normal tissue variation.
Finally, he said he doesn't really think it's anything to worry about but didn't feel comfortable sending me on my way without being able to say with 100% certainty that it's nothing. He told me he expects a benign results but wants a biopsy. It's scheduled for 8am tomorrow morning (the 27th).
That all sounds like great odds when it's someone else but it's my body and I'm terrified. There is apparently a simple appearing cyst at 3 o'clock which was noted on my previous u/s, so I may be feeling that. The area of concern is near it, if I'm understanding correctly. His report described an ill-defined, irregular, slightly hypoechoic area of concern measuring 4x6x2mm, no vascularity, possibly normal tissue variation. BI-RADSscore of 4A. Irregular and ill-defined sounds not awesome to me but I'm not a radiologist.
I probably won't know the results until the 1st or 2nd. Until then, I'm trying to be optimistic but I'm feel very stressed. I had an ovary removed several years ago due to a fast growing benign tumor and that wait was also awful but somehow less so, considering my doctor telling me that my mass looked nothing like any malignant ovarian mass she had seen and that she was almost certain it was benign.
I keep wondering if, even if the results are benign, I will worry for the rest of my life that they're missing things on my mammos due to my extremely dense tissue. Boobs just aren't worth the trouble unless there's need for breastfeeding, in my opinion! Ugh.
Thanks for listening. Anything you'd like to share is welcome.
Comments
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AprilMay, I am so sorry to find you here, but it is a good place to be. With your history, odds are it isn't anything. If they do find something, you are finding it early. Good for you to be on top of it. I know it causes alot of worry. I remember being there. The biopsy is one event that will be quickly over. One step at a time. Hoping that they find nothing. Feel free to come back at anything with concerns. Hugs.
GypsyJo
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Thank you, Gypsy. I am positively going out of mind, if I’m to be honest. I keep hearing “irregular and ill-defined” and it’s really freaking me out since I did exactly what you aren’t supposed to do and looked up what that means. I’m super smart like that. -.-
I know there is a good chance that this is just the radiologist wanting to be certain and that it should be fine but... well, I’m sure you know the drill. Because if it isn’t, how do you even begin to cope? I don’t know.
I’ll add that I am severely emotophobic (terrified of vomiting), so the mere idea of having cancer treatments is completely overwhelming. Cart before the horse, I know, but it adds significantly to the worry about a potential positive biopsy result.
I plan to be drugged into a stupor tomorrow but then I won’t remember what questions to ask or the answers given. Such as why he expects a begnign result. I like to understand things. Perhaps I should write them down and ask them the jot down the answers?
I must sound crazy. That’s ok, though. I’m sure most do in similar circumstances.
April
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It seems VERY positive that the radiologist is really leaning towards benign. I would just hang on to that. Please keep yourself distracted! Sending you good thoughts!
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I probably should have put everything here in my original post. My apologies! Pasted from other post:
So, biopsy is done. It seemed to go fine. It didn't hurt other than the nurse compressing afterward, although I'm getting sore now despite taking Tylenol. I actually thought he was still numbing it until I heard the vacuum.
I'm feeling less optimistic than I was yesterday. After my ultrasound, he said he didn't really think it was anything but couldn't say with 100% certainty. Today, he said he thinks it's most likely benign but that it could be cancer or precancerous changes, hence the desire for a biopsy. He told me that if I was his wife, he wouldn't feel comfortable sending me away without a biopsy. He also said that he can't say at this point if I have a mass. I asked him to explain what he was seeing while he was locating the lump. He did, and said that the tech initially thought it was nothing but then wasn't sure because, from one angle, you can see an irregular area without well circumscribed margins but from another, it completely disappears and looks like normal tissue. He said he didn't notice anything on my mammo in that area and if I hadn't found a lump, they never would have looked there on u/s. I think he's concerned that my dense tissues could be obscuring something. That scares me. What I saw looked much like the malignancy images online, however, I realize I'm not a trained professional. The nurse who was with me (very sweet woman, by the way) said that if she were in my shoes, she would trust that it's most likely benign and that she's never known him to be wrong. That should help but it doesn't because "most likely" leavestoo much room for the alternative.
Has anyone here had a similar experience? I wish I knew how likely this is to be benign other than the general 80% stat. The BI-RADS score given on the report is 4a, whichever I realize is low suspicion, but any suspicion is terrifying. I think I saw something like 6-13% of biopsies in this range are malignant but I don't know.
I keep wondering if I felt this at a smaller size and dismissed it since I have lumpy tissue. Is it the initial spot I forgot about and then couldn't remember the location of? If so, it was smaller then. Did I dismiss it as a cyst and now have infiltrating cancer? My head is an ugly place right now. I felt like what I imagine a cancer patient feels today with the machines and the tests and the fear. Ironically, I wore a beanie with my hair up, so seeing myself in the mirror did not help.
I have such a terrible feeling about all of this. I realize feelings aren't facts. I have few of those right now.
I want to feel like I can somehow handle whatever the results are but, honestly, I'm already pretty crazy so I don't feel equipped to do anything but crumble if the news is bad.
I'm rambling, sorry. It's been 5 days since being told I need the biopsy and I still have 4-5 days before the results are expected. I'm completely drained and feeling quite despondent.
Thank you for listening and for anything you'd like to share. I need everything I can get.
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AprilMay,
I have been where you are just a couple of months ago. I found a lump that was difficult to find, but doc had me locate it and keep my finger on it and she placed her finger over mine as I removed my hand. That did the trick and she’s felt it too. My breasts are heterogeneously dense so very difficult to see abnormalities on mammo too. I was sent for spot magnification and then on for US and then US guided core biopsy. Oddly enough, the lump I came in for was simply an area of fat necrosis; however, during all the testing, it turns out there is an a asymmetry seen in the opposite breast. So, six months follow up mammo, but due to density I’m also having an MRI just for peace of mind. Maybe you could request the same to ease your anxiety :0)
Best of luck and I praying all goes well for you.
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Thank you, Fab. It's really quite frustrating having dense tissues and no better options for screening, however, we work with what's available. I think it's great that you're advocating for your health.
I am in a weird place with all of this now. I think I'm trying to come to terms in some way with the fact that there is a real possibility that my results could be positive. Negative would be fantastic, of course, but trying to hang my hat in that isn't helping me cope. So, I'm trying to make peace with whatever may happen as best as I am able.
Everything is up in the air right now. We are in the middle of selling our home due to having a mold problem from a water leak (we can't afford to properly remediate it), so things were already pretty stressful before I got the news about reqiring a biopsy. It's really been a rough year all around so far, without going into detail.
Life is funny, isn't it?
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A Birads 4a is a less than 10% chance of being cancer and the doc has told told you that he thinks it is benign.
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Thank you, Melissa. I appreciate your reply. I think what is driving my need to prepare myself is that the lump disappeared sort of between my ribs when palpated from some angles (I'm scrawny and have very small breasts), so I have to wonder if that's why it's also looking like normal tissue from some angles on u/s. I don't know what score he would have given if that weren't but the case. He said it doesn't have the classic characteristics of cancer but is suspicious. He thinks it's most likely benign rather than that it is benign. When I asked why he feels confident, he pointed out that if he was confident that it's benign, he wouldn't want to do a biopsy. The difference seems significant to me but I can't really know if it is, if that makes sense. I've read that irregular shape and poorly defined margins can be highly predictive of malignancy while no vascularity and not being markedly hypoechoic can be good signs. All I can do is wait.
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Biopsy is performed if the radiologist has even a 3% suspicion of malignancy. BIRADs 4a is considered suspicious, but only about 3-10% will turn out to be cancerous. Therefore, about 90-97% will be benign. Hopefully, you will fall into that category.
Try not to grieve all this right now. It's never a good use of your time and energy to grieve something that has not happened and may never happen. If it turns out to be malignant after all, well, you'll have plenty of time to grieve then. While you're waiting try to keep your hands busy. Busy hands make for a busy brain. Anything you have to concentrate on, like sewing, painting, cleaning, or gardening. Definitely limit your internet searching--that will just lead you into a dark place and most of the information will not even apply to you.
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Thank you, poodles (how strange it sounds to call someone that, ha)! I hope so, as well. I agree that busy hands are good. I lost all of my yarn due to the aforementioned mold problem, so I want to go buy just one skein of pretty yarn and find a pattern for something beautiful to knit. I'd love to be packing house right now but we don't have boxes yet. Knitting would be good, though. It's great for anxiety. I also taught myself to crochet enough to make a Harper (from the Trolls movie) hat for my niece last Christmas. It took an age but she loved it!
P. S. All of my posts are edited due to my phone not playing well with the website. Crazy typos show up and some things end up being truncated. Strange.
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We packed up hearth & home last fall when we sold our house. I bought lots of boxes of different sizes at Home Depot and Lowe's. They also had tape, packing materials, and even a large box for our big screen TV. I love packing as a distraction!
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Poodles- I may still purchase some. I’d like to pack some things in plastic totes, though, so I don’t want to buy twice. My other half’s mother has been collecting boxes for us and just dropped them off a little while ago, so I’m hoping to get started tomorrow.
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April/May
Worry is so energy draining -- as the saying goes: its like paying on a debt that may never come due -- but its impossible not to worry when there is a chance of BC. So we've all been there and understand. Your chances of having a malignancy are so small (even benign cysts can grow so growth by itself doesn't indicate anything) but if you are a worse case scenario type of person just be assured that no matter what your biopsy results are you can get through treatment. For example you mentioned great fear of nausea from chemo but I had the most aggressive chemo there is (I think) and did not have nausea one time. The odds are so favorable to you on this. Keep up posted. Polly
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Thank you, Polly. It’s good to hear from people who tolerated treatment well. Everyone responds differently to drugs, of course, but it’s still good to hear when you’re afraid you may have to take them. I watched several people in my family go through cancer treatments and it was awful but that was many years ago. I’m so glad you did well!
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I got the call a little while ago. B9! Fibrocystic changes. Normal breast tissue. U/s and mammo in 6 months. I will ensure that the lump I presented with correlates to the sampled area when I follow up with my doctor.
Thank you for listening to my crazy! It helps to hear from people who have been there and come out the other side. I’d like to stick around to pay it forward.
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AprilMay - there ain't a feeling like it....B9 indeed! *high 5* I'm SO happy for you and relieved! I think you should stick around because you're so darned nice....oh yes pay it forward too lol! Go get your celebrate on and happenin! Congrats!
Edited to add:I’m not a betting woman but I think the odds are very likely that this was you after receiving the news:
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Whew! Great news!
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Thank you, guys!
Egads, that reaction was delayed. First, I sobbed and shook for ten minutes while my other half tried to figure out what to do, then needed some time to recover from the adrenaline crash, then did some things that hadn't been done, and when I finally went to bed, fell asleep almost instantly and woke up ten hours later.
I only wish no woman had to go through the fear (or diagnoses) of bc, or any human the fear of any cancer. It's a cosmetically unfair hand. Some folks here may hate hearing that you're strong because you're doing what is necessary, but you are. I had a second cousin who shut down after a cancer diagnosis (which I don't judge her for) and decided she didn't want treatment. Valid choice, of course, but to see people going through treatment with more grace than I am likely capable of gives so much hope to those who are or may be beginning their cancer journeys.
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AprilMay,
So glad to hear you got the all clear! Sigh of relief 😌 One thing I have learned from all the great ladies here in the last year is to try and relax until you have a definitive diagnosis. I worried myself sick over my lump because of all the family history, only to find out it was simply fat necrosis. Life is too short to let fear steal one second of your happiness. Best of luck to you and may you be blessed with a smooth sale of your home and a better healthier one in it place 😉🙏🏼
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