Recent diagnosis + oncotype dx 59

Options
Puzzlewoman
Puzzlewoman Member Posts: 171
edited July 2018 in DCIS (Ductal Carcinoma In Situ)

Hello all, I am very grateful I have found this community. I am really struggling with understanding my diagnosis and test results. I have a wonderful medical team who have helped explain and answered all of my questions, but I’m not sure I even know what to ask. I have had the surgery and will begin radiation next month. No further findings beyond grade 3 dcis and clear margins and I have really transparent tissue so they said mine was really easy to see (for them, not me).

But I have an oncotype dx score of 59, so they highly recommended radiation. I looked further at this report and have searched online, but I don’t understand why there is a category on the report for > 70. It’s not my number, but I was hoping it would help me understand better. Does anyone know what this means? Or would it be best toask my rad onc?

· Share on FacebookShare on Twitter

Comments

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited April 2018

    Hi there. I believe for DCIS the highest category is >54, and you are correct that the higher number means you'll benefit most from radiation. Here's some info. from the main section of this website:

    http://www.breastcancer.org/symptoms/testing/types...

    Hope that helps.

    · Share on FacebookShare on Twitter
  • Puzzlewoman
    Puzzlewoman Member Posts: 171
    edited April 2018

    Thank you!

    I would love to connect with anyone who had a similar diagnosis - high grade dcis. I’m not sure if this is the right place to ask that

    · Share on FacebookShare on Twitter
  • Kkubsky
    Kkubsky Member Posts: 231
    edited April 2018

    There is a facebook page for us high grade hormone receptor negative ladies....

    · Share on FacebookShare on Twitter
  • Ingerp
    Ingerp Member Posts: 2,624
    edited April 2018

    I had high-grade DCIS two years ago. I too questioned the need for radiation but when my RO told me it would cut the probability of recurrence in half, it was an easy decision. Numbers help me--you might want to ask about your probability with and without radiation.

    · Share on FacebookShare on Twitter
  • Puzzlewoman
    Puzzlewoman Member Posts: 171
    edited April 2018

    thanks! I think I found it

    · Share on FacebookShare on Twitter
  • Mackadoo
    Mackadoo Member Posts: 10
    edited May 2018

    Hi, I have similar diagnoses. Pure Dcis 4mm grade 3. Lumpectomy. Rads starting next week, 3 week course whole breast. Oncotype dx 62. Original biopsy showed ER weakly 10 percent positive, but Oncotype said I am ER AND PR negative.

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited May 2018

    Mackadoo - We're so sorry for what brings you here, but wanted to say welcome to the BCO Community, we hope you are finding the forums helpful.

    We wish you all the best with treatment. Members here will help you with their own experiences, great advice and support. And if you need help around the boards at all feel free to send us a private message.

    Gentle hugs,

    The Mods

    · Share on FacebookShare on Twitter
  • Puzzlewoman
    Puzzlewoman Member Posts: 171
    edited May 2018

    Hello all,

    Thank you for helping me feel less alone. I’m sorry you have to go through this too. I have my radiation 1st appt May 22

    · Share on FacebookShare on Twitter
  • Georgia1
    Georgia1 Member Posts: 1,321
    edited May 2018

    Puzzlewoman and Mackadoo - radiation treatments can be a pain but there is a lot of good information on this site about lotions (like calendula cream and Miaderm) and other tricks to make it less annoying. You might also look for, or start, a thread called Starting Radiation in May 2018. I felt SO MUCH BETTER having a posse to check in with along the way.

    All best wishes to you.

    · Share on FacebookShare on Twitter
  • Mackadoo
    Mackadoo Member Posts: 10
    edited July 2018

    Puzzlewoman I hope your radiation went as good for you as it did for me. I sailed through it with a tiny rash and NO fatigue! I was really worried about that as I was going to Ireland 2 weeks after treatment. Trip was great! Feel very fortunate. Hope you are doing well also.

    · Share on FacebookShare on Twitter
  • Mackadoo
    Mackadoo Member Posts: 10
    edited July 2018

    Forgot to add that my dcis is ER and PR negative also. So hormone blocking therapy will not do anything for me. Can't say I'm sad to not take them.

    · Share on FacebookShare on Twitter

Categories