Lumps 7+ months after MX...

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  • KBeee
    KBeee Member Posts: 5,109
    edited April 2018

    With my recurrence, I had the one recurrent lump found, and then with surgery, they found a second, that did not show up on MRI. If you are ER positive, HER2 negative, request oncotype. I had one MO tell me that he was "sure" my recurrence was just a little left over from last time. My gut disagreed and thought it was more aggressive. Indeed, it was. My local oncologist ordered the oncotype, which came back very high. Just something to consider.

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  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited April 2018

    Thank you KBeee. Did you have two onco's then? And they changed? I feel like this is new myself....it's considered the "same" but my progestron is 40% different. This is the first one I actually felt and I could tell it was growing in only a mater 6-8 weeks. (loosing track of time now.) I guess in my head---thats differnet though no one seems to care too much about it to be specific. lol

    Just left the RO's office....she's very kindly saying to start rads much sooner than later. She's hoping 3 weeks after surgery unless chemo comes first.

    As my husband said, he feels everyone is being calm and nice but making it clear this is agressive and they want to attack it. Find out more for chemo on Monday....wondering what he will say for sure.

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  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited April 2018

    pet CT is clear!!!! Still stage 1. Not to figure out rads and chemo or not. Thank you all ladies!!

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  • KBeee
    KBeee Member Posts: 5,109
    edited April 2018

    Great news about PET/CT. Long story to answer your question. I had an oncologist locally, but changed when he told me to ignore lumps because "I was not at risk for recurrence". I could not change within the practice, and because it's the only practice in town, I had few options. At the time, I did not know anyone nearby who had good oncologists to recommend in nearby cities, but I had a friend who recommended a well known major medical center a few hours away. Since I was on semi-annual appointments, I did not mind driving...so I was seen by that oncologist initially with my recurrence. That was the one who was insistent it was non-aggressive. My surgeon was able to get me in to see a different doctor in my original practice; the one many I know locally really likes. So I saw the local guy for my second opinion, (especially since I did not want to drive 3 hours each way, each day for things such as radiation). He's the one who also felt this was more aggressive and ran the oncotype. He does still send my info to the other medical center to keep my files there up to date, should I ever need to consult with them again.


    If it seems aggressive, be prepared that chemo may be on the table. Also know that it is your best weapon with an aggressive tumor, in preventing metastasis. I never thought of it as my enemy, but as my ally in my fight against cancer (the enemy). If you do face chemo, I highly, highly recommend joining the May chemo group. My chemo gals...both times...all were life savers during that time. We are still all in touch, and I've gotten together with many of them, and consider some of them to be very close friends now.


    Do let us know how the appointments go. No matter what they recommend...You CAN do this.

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  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited May 2018

    Thanks KBeee...My MO did not feel onco was needed today. As I was getting dressed all I could think about was you. lol I went and tracked down his nurse...they will request the onco as soon as she can after surgery Wednesday. Looks like unless onco or local pathology is completly off than expected, no chemo. First time it was a YA!! ... this time I feel like begging for it. lol

    So we shall see....regardless rads will be started. 6 1/2 weeks Mon-Fri. This seems longer than I thought people had...might have to go over to the rads folder. Wondering how they decide that schedule....

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  • Cpeachymom
    Cpeachymom Member Posts: 518
    edited May 2018

    GreenEyes81- 6 1/2 weeks, 5 days a week sounds in the normal range. I had 33 treatments. Seems like it goes on forever, especially if you get a bad skin reaction with weeks to go. ☹️ My best advice is to be super gentle with your skin right from the beginning so the healthy skin there can stick around as long as possible. I know not everyone has a rough time, and hopefully you’ll sail through!

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  • KBeee
    KBeee Member Posts: 5,109
    edited May 2018

    I am glad they are requesting it so you’ll Have firm data.

    Keep us posted

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  • DebAL
    DebAL Member Posts: 877
    edited May 2018

    I will be thinking of you Wednesday green eyes. Nothing but positive vibes coming your way!

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  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited May 2018

    Thank you ladies, surgery was actually last week. lol Time is flying by! Pathology came back today....doctors are super excited, like way excited that it appears to just be some missed cells from the first time. lol Ya! You have cancer still...what ever. lmbo

    Onco was sent off today, and have a 2nd opinion on rads (to do local rather than out of state) on Wednesday. Hoping it goes well.

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  • Lula73
    Lula73 Member Posts: 1,824
    edited May 2018

    GreenEyes81-that’s fantastic exciting news. I’m sorry you had to hop back on the crazy roller coaster for a bit, but hopefully Onco score will help get you back on the smooth enjoyable non-crazy coaster again.😀

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  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited May 2018

    The things that excite doctors! Although - I'm sure "still cancer" IS better than "cancer again" so let's hope they fix it right this time. 😉


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