Looking for Her2 Positive survivor stories

I have been dx with ER/PR/ Hers-2. I had 2 Hers-results The 1st was pos during my needle biopsy and the 2nd. 2 wks later was negative

My oncologist researched this and feels I may still have microscopic cancer cells. I am being treated with 12 weekly chemo treratments.

Then I will continue with one treatment every 3 wks. I will also have 16 radiation. This will increase my chances by 10%

I am pertified about the treatments as I have fibromyalgia and already am in pain daily. I am also afraid of the naseau 

Please share your positive experiences with me. One last question what do I wear for chemo?

Almost forgot. Wear something comfortable that will allow the nurses to easily access your port or veins.

Hi Evergreen9,

I am her2 triple positive and I have a question. Did you do hormone blocking therapy after you were finished with everything? I am on a hormone blocker and it is causing me alot of PMS type symptoms, crying spells, hot flashes 3-4 times a day, and I have to be on these blockers for 5 years. I dont know if I can handle living on the edge like this every day. I have talked to my Oncologist but he doesnt really understand being a man....

I went through all the treatments with such confidence and faith and this is really causing me alot of difficulty.

AngelsGal57

Hi ladies!

Just wanted to check in here. I was diagnosed in December of 2014 at 37. At the time, I had a six month old and 1.5 year old child. I had ten(yes ten!) tumors in my left breast that covered a ten cm area. I was astounded and so worried that my regimen would not work.

I did TCHP, followed by a double mastectomy and then radiation. I also had a PCR!! I could not feel any tumors after the first chemo.

My hair has grown back, I feel great, and my children remember nothing. I did fat grafting in November and might do another round in the future.

We were about to try for a third child when I was diagnosed. I was devastated that breast cancer had interrupted my child bearing years. Now, three years later at 40, I am miraculously pregnant again. Big surprise!

I hope this gives some hope to other women going through this!

Angels gal, so sorry to hear you are having such misery with your hormone blocker. My original diagnosis was similar to yours. I had a lumpectomy followed by radiation 17 years ago. Then, 6 years ago, in same breast I had cancer recur. You can read my diagnosis and treatment. Had i taken the hormone blocker as suggested by oncologist, perhaps my cancer would not have recurred. I would strongly encourage you to remain on a blocker, but you may need one from a different manufacturer. The lingering after effects of my treatments the second time around are really difficult and have changed my body drastically, not in a positive way. You do not want that cancer to come back! Wishing you the best.

Hi all...just chiming in to hopefully bring a smile to your face. You can see from my bio that just like many of you..I've been through a lot!! Her 2+ is scary and I heard all of the scary stories that are out there. But Today I am happy, healthy, have a full head of hair 😉, am almost 5 years out from diagnosis and am cancer free!!! I'm so thankful every day. Looking back I was so sick, depressed and fearful. With cancer you never can predict the future but keep moving forward; you can do it, Many blessings to you ❤️❤️

Thanks for posting girlstrong - that's such great news. Wishing you continued good health and happiness

Raleighgirl   Woot, woot....Congratulations on the pregnancy!  Thanks for stopping in and sharing your survivor story and for offering us hope.

Hi! Checking in to say that I was diagnosed August 2014 and completed all surgeries and treatments in April 2016! I've attended three (3) follow up appointments and so far, all is clear!!!!!

My next check is May, 2018. I struggled with HUGE anxiety, PTSD and fear of recurrence [have been identified as high risk for same]. Letting you know that, for me, I am JUST NOW starting to feel a little less afraid. My life is FINALLY starting to feel less gloomy. I am starting to feel as though I WILL see my children become adults and possibly even be a grandmother one day!!! That would be sweet.

Perangusta. I agree, this site had helped me so much. Just to know I wasn't alone in this and that others were there to walk me through it. Thanks for stopping by and checking in with us.

Invasive Lobular Carcinoma, Nottingham Grade 2. The tumor is multifocal, the largest focus measuring 50.0mm in maximum dimension. Florid Lobular carcinoma in situ with necrosis. Positive for Angiolymphatic invasion. 10 malignant /20 lymph nodes removed. Estrogen receptor positive, progesterone receptor positive and Her2 positive. Just had a Right Modified Radical Mastectomy and a Left Simple Mastectomy with a sentinode biopsy on two nodes which were negative. Saw oncologist today and I am staged at 3C and she wants to begin treatment on June 4 of 6 cycles of Chemo Carboplatin, Taxotere, with anti Her2 meds Perjeta , and Herceptin followed out for a year. After 6 cycles of chemo then followed up by 61/2 weeks of radiation and a hormone pill for 5 years.
I am HORRIFIED to say the least. I would like to hear some stories of people who took these drugs and their experiences... NEED ENCOURAGEMENT

SetFree.  I highly encourage you to join the triple positive thread.  You WILL find encouragement there.  Support. Tips. Love and Light.

As Jo said above, this is doable.  You can do this and it helps with support from those who are going through it or have already gone through it.  Hugs to you.

(edited to add link below)

https://community.breastcancer.org/forum/80/topics/764183?page=1210#idx_36279

Melanie

lkc - CONGRATULATIONS on 13 years! You ALWAYS have given me so much hope and

encouragement! I cannot thank you enough for staying on these boards to give newbies that

same encouragement!

Keep living large!

ikc- it's always great hearing that you're doing well. Continue to live large in your Tropical Paradise.

ikc, so happy for you. congratulations are in order.