Stage 4?

Options
Sparrow
Sparrow Member Posts: 262

Well here I am again. The first time around I was stage 1 and zero in both breasts. I had double lumpectomies in 2009, took tamoxifen for 5 years, did radiation to my left breast.

My left arm started swelling a couple of years ago. My onc and I thought it must have been lymphedema. I was treated for that. It got better for a while but then it got worse. The veins going from my neck to my left arm got swollen. I had an ultrasound guided biopsy of my left axilla last week. I got the results yesterday- it's cancer. My breasts are OK but my underarm is not.

I'm just thinking about how much treatment I want to do. I don't want chemo. What's the point? I don't have kids. Really, I'm over all of this. Does that sound bad? I'm tired of fighting.

Comments

  • finallyoverit
    finallyoverit Member Posts: 382
    edited April 2018

    Oh, Sparrow. I am so sorry you are joining the exclusive club that no one wants to join. While I don’t know what treatment options your MO might have up their sleeve, it doesn’t necessarily mean you need to go back on chemo. I was diagnosed stage iv almost a year ago and my life is a lot like it was before. Sure, more scans and more appointments but no one at my work knows or even suspects that I’m dealing with this.

    I totally understand the feeling about being done with fighting. Only you can make that decision.. but please at least talk with your MO and see what their plans are.

    As you know, there are many amazing people on this site. Chances are, you’ll be able to find someone who has been on any sort of treatment your MO recommends. You can trust that your fellow BC sisters will tell you the good/bad of any proposed treatment so you can make an informed decision.

    Wishing you peace no matter what decision you make

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2018

    If it has not spread beyong the axilla, it is still considered curable. Seek multiple opinions. Recurrences suck. Keep us posted on how you're doing.

  • LoriCA
    LoriCA Member Posts: 923
    edited April 2018

    Oh Sparrow I'm so sorry to hear that. Nothing I say can console you about the progression, but I do want to share that my cancer also metastasized throughout my brachial plexus nerves into the axilla. If you want to know while considering your decision, I can tell you exactly how bad it can get because my cancer was extremely fast growing and I ended up losing all use of my arm before things got better. I won't say more than that (pain level, etc) unless you want to hear it. The good news is that I had an almost immediate response to chemo with noticeable results after just my first infusion. Each week it got better, and within a month I was doing PT exercises to regain full range of motion. I'd say that my arm is about 97% right now, I only have some limitations with reaching directly overhead that I'll probably never regain.

    Please do consider trying the chemo. It sounds like your cancer isn't growing nearly as fast as mine did but losing use of an arm is horrible for quality of life, not to mention the problems before you even reach that point. As hard as chemo can be, it really is worth giving it a try. I don't have kids either (just a wonderful husband), so I understand how that plays into your decision making process.

    One other thing - when I was in the hospital the nurses had my arm iced and elevated. My M.O. later suggested I instead try heat to relieve the pain and swelling, and I found heat to be much more effective. I just tucked a heating pad into my armpit.

    Hugs!

  • Sparrow
    Sparrow Member Posts: 262
    edited April 2018

    Thank you for your encouragement, you guys. :) KBeee, my mother and maternal grandmother both died from metastatic breast cancer. They got it in their 70s. I was diagnosed a lot earlier than they were. I had a chest CT scan last week. They saw some nodes in my lungs. I'm thinking it might be mets, that's what happened to my mom. LoriCA, your experience sounds a lot like mine. I have been through PT and lymphedema treatment for my arm. I will see what my onc thinks at my next appointment. I'm just so tired of this stuff and I want it to be over already. ;)

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2018

    Will they test those lung spots? Hoping they are unrelated!

Categories