April 2018- Starting Radiation

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  • metoo2018
    metoo2018 Member Posts: 64
    edited April 2018

    Back from 19/30 and ready for the weekend! It is finally sunny here in Buffalo with some warmth coming next week -should do wonders for my energy level!

    Still doing well, some pinkness, some itching, some odd sensations occasionally but overall better than I expected at this stage of treatment. 6 more whole breast then my 5 boosts. I think I am getting drawn for the boosts on Monday - always fun to come home and see the football play drawings all over my chest!

    I hope you all have a restful and relaxing weekend off from treatment - I know my skin always feels better on Monday than Friday!

  • rgoossen
    rgoossen Member Posts: 34
    edited April 2018

    Completed 15/33 treatments this morning. Looking forward to a warmer sunny weekend in NY. I have delayed planting early seeds in garden due to weather and range of motion in my right arm. Praying you all have a relaxing weekend.


  • Okkate75
    Okkate75 Member Posts: 151
    edited April 2018

    Week 1 of 4 of hypofractionated radiation in the books! No side effects yet, which my RO thought would be the case. When did y'all start seeing side effects like itching and burning? Not trying to borrow trouble, but I'm curious. Happy weekend, everyone!

  • rgoossen
    rgoossen Member Posts: 34
    edited April 2018

    Metoo it is nice to meet a New Yorker. I live near Watkins Glen, NY. It looks like your a few days ahead of me in your radiation treatments. I'm hoping the weather person is correct with warmer temps and sunny skies this weekend. Enjoy your weekend

  • Teacup7
    Teacup7 Member Posts: 10
    edited April 2018

    Hopeful AC,

    I haven't put any creams on my back. I have been putting them on my chest, breast, side and armpit. I know two people who had BC before I was diagnosed and they both said be sure and put lotion on the side and armpit area. HTH.

    15/30 rads

  • AgathaNYC
    AgathaNYC Member Posts: 473
    edited April 2018

    Hi. I just got home from my 4th treatment.

    A week or so after my lumpectomy I started getting soreness and pain under my breast, over my rib area. The face down prone position is proving to be REALLY difficult for me. Pressing down into that hole to get my breast in the right position hits at the exact most painful area of my ribs. I've been in tears from the pain every session.

    We may have to do a second simulation and set me up on my back. I hope this doesn't have bad effects on my treatment. I feel like such a baby not being able to suck up the 10 minutes of pain.

    I'll keep you guys posted. Thanks for listening. After getting through chemo and surgery I can't believe it's a radiology table that's bringing me to my knees!


  • Teacup7
    Teacup7 Member Posts: 10
    edited April 2018

    AgathaNYC, I’m so sorry your treatments have been so painful. I hope they can do the treatments in a different position where it won’t hurt your ribs and you won’t have to be miserable.

  • Jeremiah29-11
    Jeremiah29-11 Member Posts: 17
    edited April 2018

    #10/33 in the history books and no side effects yet.

    idiot nurse asked me at Northside if my breasts were tender yet, to which I replied, “i had a bilateral mastectomy”... Moron.

    I was advised to lotion my back. My appts are early afternoon so I can moisturize 3x/day. I use emu right after and then a coconut-based calendula oil I found on Amazon. I think coconut is a better base oil than olive. faithfully drinking a gallon of water a day and extra protein shakes.

    Hey, so this is weird... One of my stickers was coming off and I told the docs about it and they said the stickers were unnecessary now and I could take them off. woohoo! makes me feel better in front of the mirror now.

    I’m hoping for reconstruction in December. being flat has had its perks haha but i tire of being looked at like I’m broken. Hopefully skin will be able to handle expanders. looking for a local Atlanta surgeon who uses the cool new Aeroform air expanders. going for D’s because this allis going to end with a rainbow and pot of gold, right!?

    Oh, and no robe for me. I go straight back to the table, whip off my shirt, and start the party. No feeling like a patient for me.

    Crush it, ladies. We’re almost done with this chapter.


  • kaywrite
    kaywrite Member Posts: 219
    edited April 2018

    I rang the bell on Thursday. Yeah! 21/21 hypofractionated rads behind me. I start hormone therapy today.

    Okkate - I did not really itch or burn, so you may not either. My rads were 2.66 grays for whole breast, 2.2-ish for the boosts.

    Agatha - I feel for you sister. I got to lay on my back for rads, but I did the prone breast-hole thing for my stereotactic biopsy back in December, and it was torture. I cannot imagine having to do that every day.

    Hang in there, all. Love and peace

  • LiMa66
    LiMa66 Member Posts: 73
    edited April 2018

    Congrats kayright! I hope you have minimal or at least tolerable SE from the hormone therapy.

    Question to all- is anyone else having bolus material placed during your treatments?

  • Okkate75
    Okkate75 Member Posts: 151
    edited April 2018

    Congrats, kaywright! Woot! And fingers crossed I'll have the same results!

  • marleigh
    marleigh Member Posts: 17
    edited April 2018

    I finished #17 yesterday. I'm at my halfway point.

    No SEs yet. No fatigue, no color change in the area, no itching, no pains, still cruising along just fine. I hope this trend continues. 

    Congrats kaywrite for finishing your treatments!! As for the hormone therapy, my OC put me on Anastrozole (generic Arimidex) exactly 4 weeks post chemo. I was worried about taking it along with Radiation because I didn't want two different new things going on (Anastrozole + radiation) and not be able to differentiate between which one might be the culprit in the event SEs popped up. But I have not had any SEs from the Anastrozole. So good luck with your hormone therapy, hope you have great luck and no SEs.



  • Jeremiah29-11
    Jeremiah29-11 Member Posts: 17
    edited April 2018

    Congratz kaywrite!!!!!

    LiMa66 - Yes, bolus for me, too. Kinda freaks me out, but then, freaky things are par for the BC course! :)


  • Hats2
    Hats2 Member Posts: 7
    edited April 2018

    Hello ladies I'm joining you for the radiation roller coaster. You are providing lots of encouragement. I had 3/30 yesterday after what seemed like lots of delays and missteps. I'm lucky in that I'm comfortable with my arms over my head and head turned for the treatment. It seems like it takes a long time for the techs to get me into position but then treatments are pretty quick - 5 minutes. I've tried to count the timing of the exposures (does anyone else do that?) and each exposure is slightly different but also different from day to day. It's on my list of questions for my RO.

    I feel so bad for those of you who have had to wait in waiting rooms, reschedule and then are dealing with variable schedules. I'm lucky to have landed an 8 a.m. spot so the techs and I start our days together every day for the next 6 weeks.

    Enjoy your weekend!

  • rgoossen
    rgoossen Member Posts: 34
    edited April 2018

    Congrats kaywrite

  • kaywrite
    kaywrite Member Posts: 219
    edited April 2018

    Thank you for the kind thoughts everyone.

    Marleigh, mine wound up being anastrazole, too. Wicked expensive @ $900 for 3 months. I'm already out of pocket max (in January), so didn't put a dent in my wallet, but an eye opener.

    Radiation after-effects: three days out the boost area is noticeably "sunburned." The nipple in particular is bright red and sensitive. I'm keeping it soft with calendula lotion several times a day. I've given up on Aquaphor as I found it too greasy. So all under my arm and the taped off soccer field on my chest, which encompasses the "whole breast" rads, have turned to tan. No pain or itching. Just the nipple sensitivity.

    I'm still wearing the skinny girl smoother and shaper for a bra during the day, i.e. No wires. It prevents my breast from rubbing against anything and being jostled. Still loose white cotton tee for sleep

    I'm told to start massaging the breast after a week or two. Right now it feels like a hockey puck is under my nipple, and the thought of disturbing things is a little unsettling. I'm told this is all normal. ???

  • Teacup7
    Teacup7 Member Posts: 10
    edited April 2018

    LiMa66, I get a wet towel bolus every other treatment. I call it my spa treatment.


    Question for all who receive bolus treatments: How often do you receive bolus treatments?

  • LiMa66
    LiMa66 Member Posts: 73
    edited April 2018

    I get the bolus spa experience every treatment, so far anyway. Oh, hubby noticed last night that my skin in the treated area is getting tan. Slathering on the calendula cream 3-4 times per day now. I've sure enjoyed these two days off.

    Making muffins to take to my techs tomorrow. Yes, bribery works. :)

    Enjoy the rest of your weekend y'all.

  • PrincessButtercup
    PrincessButtercup Member Posts: 200
    edited April 2018

    Is it bad that my stickers came off before my first radiation appointment? The nurse had told me it was ok if they did fall off, but then I wonder what was the point of them in the first place?

  • trinitymom2
    trinitymom2 Member Posts: 7
    edited April 2018

    I started last week, only did 3 and have 17 treatments left. I have stage 1, Grade 3. I opted not to do chemo and cannot do hormonal therapy due to my grade 3 ( aggressive cancer). Radiation was pushed off for over 2 months, had allergic reaction after surgery then that cleared after weeks then got infection. I read a lot of stories about radiation and I’m prepared ( I think) if I burn or not. I go during lunch break. I wish you the best!

  • Teacup7
    Teacup7 Member Posts: 10
    edited April 2018

    Muffins? I love that idea. I’ve been contemplating doing something for my techs on the last day of my treatments. Muffins sound like a splendid idea. Thanks for the idea LiMa66.

  • Teacup7
    Teacup7 Member Posts: 10
    edited April 2018

    Congratulations Kaywrite! So glad rads are behind you.

  • AgathaNYC
    AgathaNYC Member Posts: 473
    edited April 2018

    I feel left out ;-) What's a bolus?!

  • Teacup7
    Teacup7 Member Posts: 10
    edited April 2018

    AgathaNYC, in my case, a bolus is just a wet warm towel they put on my chest during rads. My techs said it helps keep the radiation closer to the skin. I like it because it keeps me nicely covered. Lol.

  • Paco
    Paco Member Posts: 208
    edited April 2018

    Morning, ladies.

    I'm looking forward to wrapping this thing up, I go in for #19/20 in about an hour. This weekend I had a few pains directly in the nipple area, likely due to the boosts. The redness on my chest has abated somewhat but I am more red under my arm but that could also be due to sweating (it is finally warm in Western New York and to celebrate, I went on the first run outdoors since my surgery in February!)

    The techs drape a warm white towel over me during treatment but I don't think it's a bolus (maybe just for modesty?)

    I like the idea of bringing something in for the techs on day 20 tomorrow. There is a rotating cast of characters but I guess I can still bring in a treat to those present on Tuesday. Muffins and cupcakes sound perfect and portable!

  • 98hgmom
    98hgmom Member Posts: 37
    edited April 2018

    Bummer. I wish I had a bolus

  • kaywrite
    kaywrite Member Posts: 219
    edited April 2018

    Paco - just one away! Yah!!! It flies by, doesn't it? I took my techs a dozen pretty cupcakes from Sugar Shack here in Atlanta. They loved it. I cried on the table during my last treatment, which got the techs all sniffly, too. We all cried when I rang the bell.

  • LiMa66
    LiMa66 Member Posts: 73
    edited April 2018

    Wait. A warm towel? What the heck? My bolus material is an always-cold (even when they "warm" it) gummy bear-like consistency. I'm taking my muffins back.

  • Jeremiah29-11
    Jeremiah29-11 Member Posts: 17
    edited April 2018

    LOL!!! My “bolus” wet towel is every other day. Starts off kind of warm but icky cold after we’re done.

    They said my stickers could come off so yeah, why some keep them and some can lose them is interesting... I mean, why did I even have to ask about the stickers before they said I could take them off?.....

    1/3 of the way through. so far, this is a cake walk compared to chemo. zero side effects

  • HopefulAC
    HopefulAC Member Posts: 63
    edited April 2018

    Kaywrite — congrats on being done !! And Paco for you too!

    teacup7 thank you on advice re where to put lotion. I’ve only done 4 of 28 but I’ll see my RO tomorrow (see her every Tuesday I’ve been told) and I think so far so good. I don’t get a bolus But I do pretend im getting some kind of fancy spa treatment when I go in

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