Chemo&hair

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Aliceinchains
Aliceinchains Member Posts: 64

I start chemo around mid May and was curious when i should expect (approximately) to start losing my hair. Thank you for any feedback

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  • ksusan
    ksusan Member Posts: 4,505
    edited April 2018

    It depends on which chemo, but often around 3-4 weeks from the first treatment.

  • cse70
    cse70 Member Posts: 43
    edited April 2018

    Both times I had chemo, day 13 after was when my hair began to fall out. I got a wig to match my hair style and color so no one ever knew!


  • Aliceinchains
    Aliceinchains Member Posts: 64
    edited April 2018

    Wow! That was quick! I too am thinking of getting a wig. Especially if I lose my hair right away. I’m gonna freeze my butt off lol

  • wrenn
    wrenn Member Posts: 2,707
    edited April 2018

    Mine was pretty much gone by day 19. I loved my chemo curls and kept them for over a year. I had always wanted curls.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited April 2018

    check your insurance, it should pay for a cranial prosthesis. Wig. Your MO can write te rx, and probably direct you to a wig shop.

  • Okkate75
    Okkate75 Member Posts: 151
    edited April 2018

    Mine fell out at day 14 and i wore hats or went bald. The fear of losing my hair was so much worse than the reality of it. Good luck!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2018

    My MO told me to expect to lose my hair sometime 2-3 weeks after first chemo. She gave me a prescription for a "cranial prosthesis" (wig) and urged me to go ahead a get it before the hair loss. I found a great natural-looking wig and was glad to have it on Day 17 when all my hair let go. I had my hairdresser buzz it to about 1/4" (never shave it off. It can cause skin infections.)

  • Aliceinchains
    Aliceinchains Member Posts: 64
    edited April 2018

    @wrenn, I’ve always wanted curls too

  • Aliceinchains
    Aliceinchains Member Posts: 64
    edited April 2018

    @mustlovepoodles, I’m so glad to hear that Insurance may help! I might go wig shopping next week 💖

    Thank you ladies for all your input ❤️ I’m not afraid to be bald, just afraid of being cold lol

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2018

    Definitely check with your insurance first. Some insurance companies require you to use a particular vendor. Mine said they didn't care where I got the wig. Unfortunately, they also tried to renege on paying for it and I had to get the State of Georgia Insurance Commissioner to hold their feet to the fire until they eventually paid the claim 15 months later. So, jump through all their hoops and keep notes of every conversation--dates, names, and content of the conversation. You never know when you might need that to justify your claim.

  • Aliceinchains
    Aliceinchains Member Posts: 64
    edited April 2018

    @mustlovepoodles, that’s great info! I appreciate it

  • DxAt37
    DxAt37 Member Posts: 52
    edited April 2018

    i recommend cutting your hair short ahead of time.

    It will give you and the people around you time to get used to the new look.

    Also, there was nothing worse for me than my hair falling out and into my face and mouth. I literally woke up at night feeling I have “hairballs” down my throat!

    So, once ai buzzed the hair, I felt so much better!

    I even rocked my haircut with some heels when i went for a lunch with my hubby.

    You can totally do it

  • ClareCo
    ClareCo Member Posts: 66
    edited April 2018

    Hi everyone. I start chemo May 2. Today I am going to go get a pixie cut, and I'll buzz itwhen it starts falling out. I'm reading different things about how short to buzz it -- sounds like if you go too short it hurts? For some reason that really freaks me out. Any advice on how short to buzz when the time comes? Thanks

  • Runrcrb
    Runrcrb Member Posts: 577
    edited April 2018

    I purchased my wig prior to starting chemo. Took a friend with me and tried a variety of styles. The shop owner was great. My MO did write an Rx and the shop handled the insurance.

    I noticed a lot of hair in my hands as I styled my hair two weeks after my first chemo. My hairdresser buzzed it that night (leaving about a 1/2"). I started wearing my wig the next day. What was left after the buzz cut was largely gone a few days later.

    Being cold was the tough part. When I had hair, I washed my hair in the shower, put in conditioner, and then washed my face and body. When bald, I reversed because as soon as my head got wet I was cold! Rather than buying special cancer head wraps, I used my Buffs as beanies when I wasn't wearing my wig. Easy to pull off to accommodate a hotflash, very comfortable for sleeping, and I still use them today when running.

    My radiation oncologist told me to expect hair to start growing back about 3 months after the last chemo. Mine started about 2 months after the last chemo. I stopped wearing the wig about 4-5 months after my last chemo. My hair was short! I'm about 11 months from the last time I wore my wig and my hair is super curly (almost 2x as long when wet than when dry) and I've had three haircuts to style it as it grows. No idea if the curls will stay or go - they are pretty strong now!

    Stay warm.

  • PhoenixCruiser
    PhoenixCruiser Member Posts: 118
    edited April 2018

    My hair was coming out in clumps during my showers and that was getting depressing so about three weeks in so I finally took out my husbands razor and got rid of it. Don't shave it all off use a guard so you don't end up with bumps.

    When my weekly Taxol I was done I still had my eyebrows and lashes. Those however decided to fall out a few weeks later - that was drpressing. I wish someone would have warned me. The brows are coming back really full and darker than in the past. So glad they are full. My lashes are slowing coming back but there are a lot of them. I'm now 12 weeks past Taxol. My hair is coming in very slowly.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited April 2018

    When you buzz the hair off - it doesn't really matter what length it is. You just don't want to actually shave your head and risk infection or irritated hair follicles.

    Any sensitivity or pain is usually experienced from the hairs loosening and the weight pulling on them. Buzzing it makes the scalp feel better.

    My hair started growing back before the TCHP chemo was even finished! However - no one warned me that my eyebrows would fall out when it was almost done followed by my eyelashes. The brows were never completely gone - some were growing while others were leaving so they were just patchy. The lashes were completely gone quickly and took a long time to grow back.


  • ClareCo
    ClareCo Member Posts: 66
    edited April 2018

    Thanks for all this helpful info, everyone! I got a pixie cut yesterday and the hairdresser was really nice and told me to come on back when I need it buzzed. Nice to know I have a plan

  • DebAL
    DebAL Member Posts: 877
    edited April 2018

    hi clareco, I got a pixie cut yesterday too. I agree with notverybrave ( something tells me she is VERY brave🙂!) The weight of even bob length hair pulls on the scalp and I feel much better with the pixie. Now I can get ready quicker than my husband! I'm guessing my 2nd treatment will knock the rest of my hair out next week. I'm lucky I hung on to it this long. For me, so far it seems the fear of losing the hair was worse than it is so far. It seems the lashes and brows tend to go near the end or after Treatment?

  • Runrcrb
    Runrcrb Member Posts: 577
    edited April 2018

    I was fortunate - eyebrows and lashes thinned but were never completely gone. The other thing no one mentions is pubic hair. It goes too. Oddly I found this more disturbing than being bald.

    You did a break from shaving legs and armpits. :)


  • DebAL
    DebAL Member Posts: 877
    edited April 2018

    ha ha, I was just going to post I hope I get the perk of not having to shave my legs. Good time of year for that I guess! Thank u

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited April 2018

    Thanks for the comment about bravery. I mostly have never felt particularly brave - just do what needs to be done. It seems like a contradiction, but I feel both stronger and more vulnerable since BC.

    I never really noticed too much difference in body hair. I have very fair hairs that are neither particularly long or thick on my body. I can get by with shaving once a week. But - the pubic hair loss was really weird. I was not happy with the "extra naked" thing.

    Also - when my facial hair grew back (didn't really notice it was gone), it was really long! I ended up trimming it with scissors since I was afraid to shave it. It's normal now. Whew!


  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited April 2018

    Keep in mind ladies that you may lose nose hair too! Without nose hair, a drippy nose REALLY drips cause there is nothing to slow it down.

  • DebAL
    DebAL Member Posts: 877
    edited April 2018

    Bella, thanks for the nose hair tip since allergy season has started. Better stock up on tissues. Not very B, I agree. We just do what we need to do. I feel the same as far as stronger but vulnerable too. Pixie cut since Friday working out ok. Too bad I won't be able to keep it. Hair still thinning but so weird..when I comb it only grey comes out lol. Didn't have a ton, just enough to color every few months. Heckuva way to lose the grey! Today's second treatment will take care of the rest of the hair this week I'm sure. I'm on TC and most said day loss by day 14, this is 21 so thankful for that. Thank you all for the hair tips.!

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