Radiation a second time?

Anonymous
Anonymous Member Posts: 1,376
Radiation a second time?

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  • 1Daisy9
    1Daisy9 Member Posts: 8
    edited April 2018

    If you have already had radiation in the past and develop another DCIS or invasive mass and need a lumpectomy, can you have radiation again or would a mastectomy be required?

    I am asking for my sister. She has just been diagnosed with DCIS and is wondering if she should follow up with radiation after the lumpectomy. If you follow up with rads, what happens a few years later if you develop a new DCIS or invasive mass?

    Thanks.

  • gb2115
    gb2115 Member Posts: 1,894
    edited April 2018

    I don't think you can radiate the same area twice. My radiation oncologist said I should always protect the area with sunscreen because that skin has received it's "lifetime radiation dose."

    I would not use this info to skip radiation after a lumpectomy though, if it's what they say is needed. I think the risk of it coming back if you skip radiation is a lot higher than coming back in the radiated area. However maybe it's different for DCIS. For IDC you really have to do radiation after lumpectomy or you're kind of asking for it...

  • Ingerp
    Ingerp Member Posts: 2,624
    edited April 2018

    My understanding too is that each breast can only go through radiation once. My husband asked two years ago if it wouldn't be better to save that treatment "in case it returns." My RO said the goal is not to have that happen. She also said it'll cut the probability of recurrence in half. That's all I needed to hear to be convinced.

  • 1Daisy9
    1Daisy9 Member Posts: 8
    edited April 2018

    I would definitely advise to do everything if it's invasive. But...it's a very small DCIS area. She is 69 years old. My concern is - even if you don't get a recurrence in the same area, you could possibly get a new, invasive spot. Then you would need a mastectomy.

    It really is hard trying to decide the best course of treatment.

    Thanks for your help.

  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited April 2018

    I'm just curious - is it that your sister is really afraid of ever needing a mastectomy? I would say deal with the DCIS she has now, and worry about the mastectomy later if that ever becomes necessary.

    After her surgery you will have more information on the characteristics of the DCIS. Sometimes adding tamoxifen can prevent new abnormal cells from developing, but that's only appropriate for some people.

    I agree with what the Dr said though - the radiation is supposed to keep it from coming back. It's better to treat the cancer adequately the first time so you don't have to deal with it later!

    To answer your original question though, yes - you would generally need a mastectomy if she had already had radiation. You could ask about SAVI radiation, which is only to part of the breast.

  • 1Daisy9
    1Daisy9 Member Posts: 8
    edited April 2018

    She's pretty much afraid of it all.

  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited April 2018

    That's completely understandable - it's scary. But, the bright side is that your sister's disease is so treatable right now, and she won't have to go through some of the worst treatments.

    When I'm afraid of treatment I remind myself that not treating the cancer, and allowing it to progress won't be good either. This disease truly puts us between a rock and a hard place.

    Getting a second opinion can be helpful. Go to an NCI designated hospital if possible. Different doctors have different approaches, and if breast conservation is a top priority they may be able to find a way. Best wishes to you.


  • Lula73
    Lula73 Member Posts: 1,824
    edited April 2018

    Has your sister had a breast MRI to make sure there’s nothing else going on? Mammos & ultrasounds don’t pick up everything. It’s important to know if there’s any other areas so the lumpectomy can include those areas too. And if in the future she does need a mastectomy, it’sno picnic but it’s not as bad as I thought it would be with natural tissue reconstruction.

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